The Canadian Cancer Survivor Network accomplishes its vision and mission by partnering with a variety of patient and medical groups. These groups work in collaboration with CCSN to deliver on evidence-based, best practices and share our vision to alleviate the medical, financial, emotional and social costs of cancer. Partnership activities include collaboration on letter writing, healthcare technology assessments, or attending in-person meetings with policymakers. Partners are also frequent guest speakers in our webinars, podcasts, or All-party Cancer Caucuses. These partners are listed in alphabetical order below.
Oftentimes, several patient and partner groups will come together to form a coalition. These organizations work together to bring a pressing issue to the attention of policymakers or the cancer community. By adding our voices and resources together, coalitions can provide greater outcomes for cancer patients and bring attention to under-reported issues in the cancer community. Please check the “coalitions” tab for more information abut these groups.
If you would like to partner with CCSN, please email ltimm@survivornet.ca
The Alliance for Safe Biologic Medicines is an organization composed of diverse healthcare groups and individuals—from patients to physicians, biotechnology companies that develop innovative and biosimilar medicines and others who are working together to ensure patient safety is at the forefront of the biosimilars policy discussion. Our membership list and steering committee reflect the wide range of voices within the healthcare community. Our coalition ultimately strives to position itself to be an authoritative resource center of information for the healthcare and policy communities. READ MORE.
The BEAT Cancer Coalition is a collaborative coalition of patient advocates, clinicians, academic centers, diagnostic manufacturers and pharmaceutical companies. Our vision is that all Canadian oncology patients, regardless of where they live, should receive timely and appropriate advanced molecular testing in order to receive the optimal therapy for them, giving them the greatest chance of treatment success and the greatest opportunity to live their best life. READ MORE.
The Best Medicines Coalition is a national alliance of patient organizations with a shared goal of equitable and consistent access for all Canadians to safe and effective medicines that improve patient outcomes. The BMC’s areas of interest include drug approval, assessment and reimbursement, as well as patient safety and supply issues. As an important aspect of its work, the BMC strives to ensure that Canadian patients have a voice and are meaningful participants in health policy development, specifically regarding pharmaceutical care. READ MORE.
The BioCanRx Cancer Stakeholder Alliance (CSA) is a consortium of charities and non-government organizations that are focused on cancer research, advocacy, and support for patients and their families. READ MORE.
The Biosimilars Working Group is a key collaboration of diverse non-profit organizations, registered health charities, and health care advocacy coalitions who are dedicated to ensuring that good outcomes for patients are at the centre of health policy in Canada, specifically in the biologic medication treatment areas. READ MORE.
The Canadian Immunocompromised Advocacy Network (CIAN) is a group of patient groups and people with lived experiences who are dedicated to raising awareness and understanding about protecting the well-being of immunocompromised Canadians. Our vision is A world in which the basic human rights of immunocompromised people are met allowing them to thrive in safer, more inclusive communities. READ MORE.
Cancer Action Now is a national alliance of patient organizations, professional associations, and life science companies who are witnessing the magnitude of the problem our cancer care systems and its patients are facing. We have come together to call on governments to address the issues in our cancer care systems so that Canadians with cancer have a chance to live longer, better lives than anywhere else in the world.
The diagnosis and treatment of cancer can result in long-lasting side effects, which interfere with a person’s ability to work, engage socially, and perform daily activities. To optimize patient outcomes, the healthcare system must focus not only on controlling the cancer but also on improving functioning and quality of life for individuals. READ MORE.
Coalition Priorité Cancer au Quebec, a group of more than 45 organizations from all regions of Quebec, wants to improve the health care system in Quebec for the good of those affected by cancer. In particular, it defends the rights and interests of patients and caregivers. It also promotes accessibility to innovative treatments, advanced technologies, and clinical research. READ MORE.
The HEALTH COALITION OF ALBERTA is an alliance of patient and consumer individuals, groups, health charities, non-profits, and other coalitions. We have come together to strengthen our voice in advocating for and supporting a health care system that provides the best care and treatment options to every Albertan. We are a united voice advocating for better access to optimal health care for all Albertans. READ MORE.
The More PETs Coalition is working to ensure that patients have access to the full potential of PET scans within Ontario’s healthcare system. A positron emission tomography (PET) scan is a powerful imaging tool used to diagnose and map the progression of many life-threatening diseases such as prostate and colorectal cancer, lymphoma, leukemia, epilepsy, and heart disease. READ MORE.
MedAccess BC is a coalition of 30 chronic disease specific non-profit organizations and other groups, representing over two million constituents, with a mandate to improve patient outcomes by increasing timely and equitable access to evidence-based prescription medications, medical technologies and treatments for people of British Columbia. READ MORE.
The National Ovarian Cancer Coalition (NOCC) was founded as a 501(c)3 non-profit organization in 1995 when passionate women and their families came together in response to the need for better information and more public knowledge about ovarian cancer. Women, survivors, loved ones, caregivers and the healthcare community all work hand-in-hand and tirelessly to support the NOCC’s mission. Establishing itself as an important national advocate for ovarian cancer patients, the NOCC remains steadfast in its mission to raise awareness and promote education about ovarian cancer. The Coalition aims to improve the survival rate and quality of life for ovarian cancer patients and provide support and resources to family and friends of ovarian cancer survivors. READ MORE.
Since 2019, Simonne Cormier, Founder of Au Naturel Solutions has been working tirelessly to bring an all-natural handcrafted external breast prosthesis to fill a gap in the prosthesis marketplace. Simonne has established a manufacturing and supply chain partnership right here in Atlantic Canada, bringing empowerment to patients for the feeling of comfort and confidence, offering total freedom of choice, not previously available. READ MORE
The Alberta Lymphedema Association (ALA) is a charitable organization founded in 2003 by a team of people who recognized the need to help people living with, or at risk of, lymphedema. An association committed to ongoing education of its stakeholders, ALA works to make a difference and empower affected individuals and their families to help manage this condition. ALA works from the patient standpoint. READ MORE.
Welcome to the Anal Cancer Patient & Family Support Group “A Bum Rap”, based in Ottawa, Canada.
If you need someone to reach out to, a hand to hold, a shoulder to cry on and a confidante who KNOWS WHAT IT’S LIKE to have been diagnosed with anal cancer and has gone through the intensive treatment, then please contact us. We offer email, phone, on-line support… and face to face support if you live in Ottawa & area. READ MORE.
Bladder Cancer Canada offers patients and caregivers an informative bilingual website, an online discussion forum, telephone and email support, patient meetings and support groups in various locations throughout the year and a quarterly newsletter.
Brain Tumour Foundation of Canada is the only national charity that offers information and support to patients affected by any kind of brain tumour – be it cancerous, non-malignant, or metastases. The organization also funds research across North America, and since 1982, has dedicated more than $5.8 million to finding a cure for the disease and improving treatment for brain tumour survivors. READ MORE.
Breast Cancer Action is a resource and support centre for breast cancer patients and survivors. They are the here and now for women, providing programs such as pre-operative & lymphedema workshops, peer support, dragon boat teams, and a variety of fitness programs throughout the city. As they receive no government support, all their funding comes from membership, donations, grants and events. READ MORE.
Since 1988 Camp Quality Canada has run volunteer-led overnight summer camps for youth 7-17 affected by cancer and blood disorders and the best part? They’re 100% free for all participants. We believe the joy of camp and the healing power of laughter brings strength to families and children living with childhood cancer and blood disorders. READ MORE.
The Canadian Cardiac Oncology Network is a virtual networking and research collaboration initiative in cardiac oncology.
Multidisciplinary collaboration is invaluable in the treatment and management of cancer patients. The Canadian Cardiac Oncology Network was established to facilitate collaboration among health care professionals interested in the emerging field of cardiac oncology. READ NOW.
The Canadian CML Network is a Toronto-based non-profit organization dedicated to the educational, social and emotional support of people living with Chronic Myelogenous Leukemia and those who care about them. The Canadian CML Network runs regular patient meetings and also hosts a series of “Living Well with CML” educational conferences every year across Canada. READ MORE.
Canadian Lung Cancer Advocacy – Breathe Hope, was created by a small group of Canadian lung cancer patients. At our core, we saw the value in having a supportive, collaborative and sharing community which would reach Canadian LC patients and caregivers from coast to coast. READ MORE.
The Canadian Lymphedema Framework (CLF) is an academic and patient stakeholder collaboration, which is part of an international initiative to promote research, best practices and lymphedema clinical development worldwide. READ MORE.
The Canadian MPN Network (CMPNN) was founded in 2014 as an organization connecting and helping Canadians from coast to coast to coast who are dealing with the challenges of living with a myeloproliferative neoplasm (MPN). The CMPNN is led by a volunteer cross-Canada Board of Directors composed primarily of MPN patients who meet virtually. The Board has a “patient first” mindset and is dedicated to improving the quality of life for Canadian MPN patients by providing education, advocacy, and support. READ MORE.
The Canadian Psychosocial Oncology Partnership initially developed out of a meeting held during the 2006 annual Canadian Association for Psychosocial Oncology (CAPO) conference. At this meeting, representatives from 11 community-based organizations (CBOs) met with representatives from the Canadian Association of Psychosocial Oncology to discuss how CAPO could support them. READ MORE.
Canadian Virtual Hospice is the most comprehensive online source in the world on living with advanced illness, palliative care, and grief. It serves the information and support needs of people living with life-limiting illness, families and caregivers, health providers, researchers, and educators. READ MORE.
A united voice for high-quality cancer treatment for all patients regardless of age, income or postal code.
The CanCertainty Coalition is the united voice of more than 30 Canadian patient groups, cancer health charities, and caregiver organizations from across the country, joining together with oncologists and cancer care professionals to significantly improve the affordability and accessibility of cancer treatment. READ MORE.
CancerPEP.com offers a comprehensive six-month daily empowerment program which has been scientifically shown to improve the mental and physical health of people who have been given a cancer diagnosis. It is lead by an Oncologist and a Psychology Professor Scientist, Associate Professors at Dalhousie University. READ MORE.
Cancer Fatigue Services (CFS) is Canada’s first medical clinic dedicated entirely to cancer-related fatigue. Whether you’re in treatment or years in survivorship, if fatigue is limiting your life, we’re here for you.
From your free consultation to your personalized care plan (covered by OHIP pending eligibility), we support you every step of the way. READ MORE.
The Carcinoid-Neuroendocrine Tumour Society Canada (CNETS Canada) is a Canadian charity established in 2008. The first two projects were presented at our 2012 Ottawa International Conference for Medical Professionals and Patients. We have a cross-Canada Board of Directors of 10, including medical professionals, and a membership of 20 support group leaders or members who run face-to-face support groups. READ MORE.
CLL Canada is a national advocacy group seeded in 2002 at an education meeting organized by Ontario CLL patients. It was formalized in 2007 at it’s first Board meeting. It continues as a volunteer driven organization of CLL patients and persons with an interest in CLL. READ MORE.
Colorectal Cancer Canada is the nation’s non-profit colorectal cancer patient organization. We are dedicated to colorectal cancer awareness and education, supporting patients and caregivers, and advocating on their behalf. Our goal is to reduce the incidence and mortality of colorectal cancer in Canada and to improve the quality of life for patients, their families and caregivers. READ MORE.
In June 2006, Craig Schurman Condon, started to feel unwell, experiencing acid reflux, white stool, dark urine and yellowish skin. Concerned, he visited his physician. His physician suspected Hepatitis A. When this came back negative, his physician was stumped. This is where Craig’s pancreatic cancer journey began. In July 2006, Craig was diagnosed with pancreatic cancer. By September, he had passed away, at the age of 63, eight weeks from diagnosis. READ MORE.
The Centre for Health Innovation (CHI), the new home for the Ottawa Integrative Cancer Centre (OICC), provides excellence in health care for our community. Today, our services include both Supportive Cancer Care and General Health Care with an exceptional multidisciplinary team of practitioners. READ MORE.
Debbie’s Dream Foundation: Curing Stomach Cancer (DDF) is a 501 (c)(3) non-profit organization dedicated to raising awareness about stomach cancer; advancing funding for research; and providing education and support internationally to patients, families, and caregivers. DDF seeks as its ultimate goal to make the cure for stomach cancer a reality! READ MORE.
Dense Breasts Canada (DBC) is a non profit organization made up of breast cancer survivors and health care professionals dedicated to raising awareness about the risks associated with dense breasts. Dense breasts are normal and common. 40% of women over age 40 have dense breasts. Dense breasts make it harder for radiologists viewing your mammogram to spot cancer because dense breast tissue shows up as white and so does a cancerous tumour. READ MORE.
Fertile Future is a Canadian national non-profit organization that provides fertility preservation information and support services to cancer patients and oncology professionals. Each year, an estimated 10,000 young Canadians face a cancer diagnosis. Approximately 8,000 of them will win this battle. Without knowing the importance of fertility preservation prior to their treatment, many are left infertile with few options. Fertile Future aspires to change this reality for cancer patients. Our mission is to inform, educate and support cancer patients who are facing fertility-risking medical treatment, and oncology professionals who are providing this care. READ MORE.
The Georgian Bay Cancer Support Centre is a cancer support Centre providing psychosocial support to people living with cancer, their families and caregivers in the community. The Georgian Bay Cancer Support Centre (GBCSC) was founded by Sandy Cornell, a cancer survivor. Sandy Cornell was diagnosed with an aggressive form of breast cancer in May 2008. At that time, she was an active and committed community volunteer, drawing on her background as a both a registered nurse and interior designer. A love of her work and her nurturing nature led her to projects with Hospice Huronia and Physicians Recruitment, to name but two. READ MORE.
Welcome to Gilda’s Club Greater Toronto (GCGT), a registered charity that is making an important difference for cancer patients, their family and friends in the Greater Toronto Area. Our Mission is to ensure people living with cancer are empowered by knowledge, strengthened by action, and sustained by community. READ MORE.
HPV Global Action, established in 2006, delivers inclusive, evidence-based education on sexual and reproductive health. We focus on HPV, related cancers, and gynaecological health, promoting equity and empowerment. Collaborating with global leaders, we advocate for HPV prevention, cervical screening, and treatment access, especially in diverse communities where cultures and ideologies intersect.
The Institute for Optimizing Health Outcomes is a not-for-profit organization based in Toronto, Ontario. We bring together individuals and organizations with the commitment, experiences, and expertise to bring the vision of optimal health to reality. Our Board of Directors includes physicians, allied health professionals, health educators, and patients. Our partners include patient organizations, healthcare institutions, government and industry. READ MORE.
Our story began in Toronto in 1955 when five women concerned with the lack of focus on leukemia research decided to raise money for research. At the time, the prognosis of a leukemia diagnosis was very poor. To start, they raised funds for the City of Hope Hospital in California. Then their focus changed to Canadian research and funds raised were directed to Canadian hospitals shortly after the first provincial charter for the City of Hope Leukemia Fighters was issued in 1957. READ MORE.
Lung Cancer Canada is a national charitable organization, which aims to increase awareness for lung cancer, support patients and the individuals who care for them, and provide educational resources to patients, family members, healthcare professionals and the general public. READ MORE.
Currently, the Lymphedema Association of Ontario (LAO) strives to help people living with lymphedema and healthcare professionals by offering information about lymphedema and lymphedema resources in Ontario. READ MORE.
Make-A-Wish Eastern Ontario is proud to grant the wishes of children with life-threatening medical conditions to enrich the human experience with hope, strength and joy. READ MORE.
Melanoma Canada provides support services, information, and programs for individuals whose lives have been changed by melanoma and skin cancer. Melanoma Canada is the leading national voice for patients in Canada, advocating for drug therapies, for early detection and improved treatment access. They work diligently to prevent more Canadians from developing skin cancer through public awareness and sun safety. READ MORE.
The Mesothelioma + Asbestos Awareness Center brings attention to the dangers of asbestos and the deadly form of cancer it causes: mesothelioma. We are an independent group working to help mesothelioma patients, caregivers, advocates and others looking to learn more about the disease. READ MORE.
Fight back against mesothelioma! – Four words that mark our mission at The Mesothelioma Center. We’re here to help those who need to know how to battle this disease. Our website is loaded with information about treatment, and what we do best is collect information about mesothelioma cancer and use it to help people and families affected by the disease. READ MORE.
Mesothelioma Group is a small team of caring healthcare professionals, patient advocates, and communication specialists dedicated to helping you and your loved ones understand what is mesothelioma, where and when was your exposure to asbestos, and what are your treatment options. At Mesothelioma Group, we believe that everyone needs an advocate who can provide valuable resources and practical advice to empower the decision making prcess for those who have been affected by this disease. READ MORE.
Mesothelioma Vets is a source for the latest information about mesothelioma and other asbestos-related illnesses pertaining to United States veterans. They serve the men and women who have served our country by providing them and their families with all the resources they need to understand and fight their disease. READ MORE.
Nankind transforms the cancer experience for families by providing free support programs. Throughout a parent’s cancer journey, from diagnosis through bereavement, Nankind’s community of Volunteer Angels give children the tools to build lifelong emotional resilience. Parents with cancer get time back to rest and recover, knowing their kids will be supported. To date Nankind has supported 2,000+ families, empowered 4,000+ children, provided 30,000+ hours of free childcare and delivered 60,000+ meals to families in need. READ MORE.
Olive Us Care is a non-profit volunteer service focused on providing free in-home childcare for children under 12 years of age. Olive Us Care will provide 10 volunteer childcare hours per month to families dealing with cancer; parent or child. This time can be used to run errands, attend appointments or simply spend time with friends and family. Knowing that the children/siblings are being well looked after will provide peace of mind. READ MORE.
Ontario Parents Advocating for Children with Cancer (OPACC) has been supporting childhood cancer families in Ontario since 1995 through our signature Parent Liaison in-hospital support service, establishing a network of community-based parent support groups so that families have a support network once they leave the hospital, and advocating on issues of importance to childhood cancer families. READ MORE.
The Ottawa Cancer Foundation provides community-based programs and services out of our beautiful location at 1500 Alta Vista Drive. When you walk through our doors, you will be greeted by a professional team, community partners, health care practitioners and volunteers who are here to offer you options in a variety of health and well-being activities. READ MORE.
Pancreatic Cancer Canada (PCC) is a vibrant, progressive organization taking on the world’s toughest cancer with the ultimate goal to save more lives. We are committed to raising the survival rate through major investments in research and increased awareness of the disease among the general public and healthcare professionals, while ensuring patients and their families have access to the specialized care and support they need at every stage. READ MORE.
Established in August 28th, 1997 by the late Rosa Francia-Meneses as a direct result of the 1st World Conference on Breast Cancer in Kingston, Ontario, Canada, the Philippine Breast Cancer Network (PBCN) is the leading national network of breast cancer victims and fighters in the Philippines. The PBCN works from the knowledge that breast cancer is not simply a personal tragedy, but a public health priority that demands action from all. READ MORE.
Prevent Cancer Now began with a long distance telephone discussion among 15 Canadians in various parts of the country in December 2004. We decided that Canada needed a bold new initiative to focus on primary cancer prevention, to balance costly, seemingly endless searches for cancer cures, and attempts to control cancer through more widespread screening and early diagnosis. In 2007, after finalizing our constitution and bylaws, Prevent Cancer Now was legally incorporated. READ NOW.
Prostate Cancer Support Ottawa is a volunteer organization of prostate cancer survivors and our supporters. Our aim is to:
- help men recently diagnosed with prostate cancer.
- provide support for men and their families who continue to live with recurrent cancer, and
- promote awareness of this disease and the associated issues.
PYNK: Breast Cancer Program for Young Women is a unique program at Sunnybrook Health Sciences Centre in Toronto, the first of its kind in Canada. It is aimed at addressing the special clinical, research, and educational needs of very young women (? age 40) with breast cancer. READ MORE.
The Quebec Cancer Foundation supports people with cancer and their loved ones, here in Quebec, through services suited to their needs and daily concerns. We are here listening, informing, comforting, caring and providing lodging for Quebecers when cancer strikes, turning their lives upside down. READ MORE.
Rural Women’s Network Nepal (RUWON Nepal) is an autonomous non-government social organisation, working for the rights and social justice of women, youth and children in Nepal. In 2007, the organisation was registered in the district administration office, Sindhuli, with the NGO Federation Nepal, and the Internal Revenue office, Janakpur. In addition, it has undertaken affiliation from the Social Welfare Council, Nepal. Though RUWON is a young organisation, it has already implemented a number of projects across the country, with the majority being located in the districts of Sindhuli and Kathmandu. READ MORE.
The Save Your Skin Foundation was created by family, friends, and colleagues of Founder Kathy Barnard. Kathy is currently fighting her own battle with melanoma. The Foundation started with the dream of Kathy’s sister Rose. One day as Rose was running through the beautiful trails of North Vancouver, she knew it was time to take action. The family had been through a stressful few years trying to find information on melanoma treatments and research and discovered that there was not much current information available. READ MORE.
Team Shan is named after Shanna Larsen. Shan was only 24 when she lost her life to breast cancer. Shan’s symptoms were misdiagnosed by medical professionals. Shan was diagnosed late with metastatic breast cancer and passed away a few months later. Shan’s story is not unique. Young adults are frequently diagnosed late due to either patient or physician inaction. READ MORE
Testicular Cancer Canada is committed to raising awareness about testicular cancer while supporting those affected by the disease. We equip men with the tools they need to identify testicular cancer early so they can avoid painful, lengthy treatment and life-altering complications like impotence and infertility. READ MORE.
Young Adult Cancer Canada (YACC) was established in 2000 by Geoff Eaton after his first cancer challenge. Geoff’s vision focused on educating and supporting young adults. YACC is Canada’s leading registered charity focused on providing information and support for young adult cancer survivors throughout the country. We know life is different when you’re a young adult—that means cancer is, too. We try to bring young adult cancer survivors together through our programs so they can work through issues such as relationships, finances, fertility, and education with others who “get it,” and make the rest of their lives the best of their lives. READ MORE.