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Hoofing It Around the Globe for Neuroendocrine Cancer Research

HOOFING IT Around The Globe, a fundraiser run by the Canadian Neuroendocrine Tumour Society (CNETS), is taking place from July 1st to September 15th, 2021. The goal is to raise $100,000, of which every penny will go to neuroendocrine cancer research. Participants create their own fundraising activities, either on their own or as part of a team, and travel as many kilometres as they can by whatever mode they choose – for example walking, cycling, swimming, etc. See the CNETS website for more information.

Canada Walks for Bladder Cancer

Bladder Cancer Canada's annual Awareness Walk is taking place again this year on September 25th and 26th, 2021. This year, participants are encouraged to ‘walk where you are’, keeping in mind local public health directives. This event raises funds for Bladder Cancer Canada's free programs and services for bladder cancer patients and their caregivers. By registering, you help to support the 80 000 Canadians living with a bladder cancer diagnosis. The first 2000 individuals to register or donate at least $20 minimum to an individual or team will be eligible to receive a Bladder Cancer Canada cling (sponsored by Hannah Promotions) for your car or your home.

Survey for Lung Cancer Patients and Caregivers from the Lung Association

The Canadian Lung Association is conducting a survey in order to inform their development of new lung cancer informational resources. Lung cancer patients, caregivers for lung cancer patients, and healthcare workers are encouraged to take this survey and tell the Canadian Lung Association what lung cancer related resources they would find most useful.

Call for Abstracts for National Lymphedema Conference

The call for abstracts is open for the 2021 National Lymphedema Conference! The Canadian Lymphedema Framework (CLF) is accepting abstracts for either an oral or poster presentation at the conference, which will take place virtually on December 3-4, 2021. The CLF welcomes abstracts from all stages of the research process, including study protocols, feasibility and pilot studies, and clinical case series. However, submissions are not limited to research-based abstracts. If you have a special interest in a topic that is important or have a special case study, the CLF encourages you to submit an abstract to share knowledge with your colleagues.

Key Dates

Engagement on the Disability Inclusion Action Plan

The Government of Canada is engaging Canadians on how to improve the lives of Canadians with disabilities. Your feedback will support the development of the Disability Inclusion Action Plan, which will focus on:

• reducing poverty among persons with disabilities in Canada;
• getting more persons with disabilities into good quality jobs;
• helping meet the Accessible Canada Act goal of a barrier-free Canada by 2040;
• making it easier for persons with disabilities to access federal programs and services; and
• fostering a culture of inclusion.

Lung Cancer Support Survey

The Lung Health Foundation is committed to delivering a support service to Lung Cancer patients and caregivers that is current, relevant and meaningful. With that goal in mind, they have created a survey to gather input and insights from those with lived experience to increase our understanding of the lung cancer journey, including diagnosis, navigation of care and gaps in support. This survey will take a few minutes to complete.

Survey for Young Adults with Cancer

Survey About the Survivor Identity for Breast Cancer Patients – UBC

The Survivor Identity Index: How Does Cancer Survivor Identity Relate to Emotional Well- Being?

You are invited to take part in a research study, “The Survivor Identity Index: How Does Cancer Survivor Identity Relate to Emotional Well-being”. People who have been diagnosed and treated for cancer vary in their comfort with the concept of "cancer survivorship". We want to learn more about how a person’s comfort with the idea of survivorship relates to their type of cancer, treatment history, and their relationships with the primary members of their healthcare team.

Criteria:You are invited to take part in this research study if you are over 18 years old, have been diagnosed with breast cancer, and can read and understand English.

Survey includes:If you choose to participate, you will be asked to complete an online survey. The survey contains questions about the following: - The extent to which you are comfortable identifying as a cancer survivor - Measures of emotional comfort - Your demographic information - Your breast cancer history - Your relationship with your healthcare providers

The questionnaire is expected to take between 15-20 minutes to complete. By participating in the study, you will have the option to enter a draw for one of three $50 gift cards for Amazon or Tim Hortons.

Take action on federal medicine price controls (PMPRB)

The federal government has introduced new price controls for patented medicines and vaccines (also referred to as the changes to the Patented Medicine Prices Review Board or PMPRB). The lack of clarity in how the new rules will be implemented along with the steep new price reductions for new medicines and vaccines have already had major negative impacts on Canadians. If you are concerned about the PMPRB changes, please use the following email form letter and social media post to contact the federal government. (more…)

Participate in a New Lung Cancer Program – Online Via Zoom

Calling All Lung Cancer Survivors – Participate in a Research Study and You Could Earn $100

CCSN is conducting a new research study to understand the meaningful results of lung cancer clinical studies from the point of view of survivors of early stage lung cancer. (more…)

Right2Survive – Share Your Voice and Your Story

Despite being the number one cancer killer in Canada, outcomes in lung cancer lag behind other cancers. We can do more. Lung cancer patients deserve a chance to become cancer survivors. Share your survivor story and add your name to stand with cancer survivors.