Call for Abstracts for National Lymphedema Conference
The call for abstracts is open for the 2021 National Lymphedema Conference! The Canadian Lymphedema Framework (CLF) is accepting abstracts for either an oral or poster presentation at the conference, which will take place virtually on December 3-4, 2021. The CLF welcomes abstracts from all stages of the research process, including study protocols, feasibility and pilot studies, and clinical case series. However, submissions are not limited to research-based abstracts. If you have a special interest in a topic that is important or have a special case study, the CLF encourages you to submit an abstract to share knowledge with your colleagues.
Key Dates
April 15 - Call for English abstracts officially opens April 30 - Communication and Call for French abstracts officially opens August 1 - Deadline for abstract submissions September 15 - Notification of accepted abstracts2021 CADTH Symposium: Call for Abstract Reviewers
The 2021 CADTH Symposium is being held virtually on November 2, 3, and 4, 2021. CADTH is looking for volunteers to review the abstracts submitted for presentation at this year’s conference. Volunteer reviewers help CADTH shape an engaging and well-rounded program. This is a great opportunity for individuals at all career levels, including students, to get involved in the 2021 Symposium. To join the Abstract Review Committee, simply complete the questionnaire by Tuesday, June 22, 2021. The call for abstracts for the symposium is also open! Abstracts must be submitted by Tuesday, June 22, 2021.
Modernizing Health Canada’s Clinical Trials Framework
Health Canada, the federal regulator for drugs and health products, is proposing to modernize the way it regulates clinical trials. Clinical trials are required for all kinds of health products, from prescription medications to medical devices, in order to ensure they are safe and effective. Health Canada regulates clinical trials to make sure that participants are safe, ethical principles are followed, and the results of the trial are reliable. Health Canada is in the process of consulting with stakeholders – including all interested Canadians – about the proposed changes to the regulations. For more information, see the Clinical Trials Regulatory Modernization Initiative on the Health Canada website.
How can you participate in these consultations?
First, read the consultation paper: it introduces the proposals for transforming Canada’s regulatory framework for clinical trials related to human drugs, medical devices, and natural health products. Then, you can fill out the accompanying questionnaire. You may also submit written input by email. Finally, Health Canada is also conducting a series of webinars with specific groups of stakeholders. This series includes a webinar discussion with patients and patient groups, taking place on June 21st, 2021. If you would like an invitation to this webinar, contact jonathan.wu@canada.ca.Canadian Organization for Rare Disorders looking for people to join their Board of Directors
The Canadian Organization for Rare Disorders is looking for passionate, creative, committed, qualified people to join our Board of Directors for the 2021-2024 term to help guide our organization to meet the needs of the rare disease community. CORD wishes to invite interested candidates to submit their application to join the Board of Directors for 2021-2024 term. We are particularly interested in hearing from individuals whose experience and skill set includes a combination of the following:
- Finance, accounting
- Grant writing
- Fundraising and special events
- Health policy development
- Public relations, communications
- Advocacy on a provincial/federal level
- Nonprofit, governance, management, administration experience
Application Deadline: June 10, 2021
Please submit your application to: https://www.surveymonkey.com/r/PKF9GMC
Canadian Organization for Rare Disorders
151 Bloor St W, Suite 600
Toronto, ON M5S 1S4
T: (416) 969-7464
F: (416) 969-7420
E: info@raredisorders.caSurvey by Bladder Cancer Canada
Are you, or someone you love, living with stage II or higher muscle-invasive or metastatic bladder cancer? Then Bladder Cancer Canada wants to hear from you!
The Canadian Agency for Drugs and Technologies in Health (CADTH), an important drug review body that evaluates the cost effectiveness of new drugs, will be reviewing Padcev™ (enfortumab vedotin-ejfv) for the treatment of adults with bladder cancer and cancers of the urinary tract (renal pelvis, ureter or urethra) that has spread outside the bladder or cannot be removed by surgery. CADTH does this evaluation to determine whether to recommend the drug for reimbursement by provincial and territorial drug plans.
To ensure that advanced or metastatic bladder cancer patients and their families have their voices included in this vital review process, Bladder Cancer Canada invites you to participate in a short, 20-25 minute survey. The survey results will be included in our patient input submission to CADTH, which will help inform their recommendation to make Padcev accessible through publicly funded drug plans to patients who would most benefit.
If you have specific experience with Padcev we urge you to contact us as well as complete the survey.Participation is voluntary and anonymous. You do not need to live in Canada to complete this survey.
Survey closes June 11, 2021.
Engagement on the Disability Inclusion Action Plan
The Government of Canada is engaging Canadians on how to improve the lives of Canadians with disabilities. Your feedback will support the development of the Disability Inclusion Action Plan, which will focus on:
- reducing poverty among persons with disabilities in Canada;
- getting more persons with disabilities into good quality jobs;
- helping meet the Accessible Canada Act goal of a barrier-free Canada by 2040;
- making it easier for persons with disabilities to access federal programs and services; and
- fostering a culture of inclusion.
Lung Cancer Support Survey
The Lung Health Foundation is committed to delivering a support service to Lung Cancer patients and caregivers that is current, relevant and meaningful. With that goal in mind, they have created a survey to gather input and insights from those with lived experience to increase our understanding of the lung cancer journey, including diagnosis, navigation of care and gaps in support. This survey will take a few minutes to complete.
Survey for Young Adults with Cancer
The Canadian Cancer Society (CCS) and the Princess Margaret Cancer Centre (PMCC) invite young adults aged 19 – 39 with cancer to share their experiences and needs throughout the cancer journey. This survey will help CCS and PMCC better understand and address the unique care needs of young adults living with cancer.Survey About the Survivor Identity for Breast Cancer Patients – UBC
The Survivor Identity Index: How Does Cancer Survivor Identity Relate to Emotional Well- Being?
You are invited to take part in a research study, “The Survivor Identity Index: How Does Cancer Survivor Identity Relate to Emotional Well-being”. People who have been diagnosed and treated for cancer vary in their comfort with the concept of "cancer survivorship". We want to learn more about how a person’s comfort with the idea of survivorship relates to their type of cancer, treatment history, and their relationships with the primary members of their healthcare team.
Criteria:You are invited to take part in this research study if you are over 18 years old, have been diagnosed with breast cancer, and can read and understand English.
Survey includes:If you choose to participate, you will be asked to complete an online survey. The survey contains questions about the following: - The extent to which you are comfortable identifying as a cancer survivor - Measures of emotional comfort - Your demographic information - Your breast cancer history - Your relationship with your healthcare providers
The questionnaire is expected to take between 15-20 minutes to complete. By participating in the study, you will have the option to enter a draw for one of three $50 gift cards for Amazon or Tim Hortons.
Canadian Cancer Research Alliance (CCRA) Nominations for the 2021 CCRA Awards Now Open
The Canadian Cancer Research Alliance (CCRA) is seeking nominations for the 2021 CCRA Awards. The CCRA Awards, initiated in 2011, recognize and celebrate individuals who have had a remarkable impact on cancer research and the cancer research community. Learn more about CCRA Award nominations To submit a nomination, please provide the nominee’s contact information and a brief overview of the reasons for nomination through the 2021 CCRA Awards Nomination webform. Nominators have the option to save their progress and complete the form at a later time. Self-nominations will be accepted and are especially encouraged for individuals from equity-seeking communities. Nominations are open to all, including past nominees. Nominations will remain open until May 31, 2021. Should you have any questions or wish to receive further information about the CCRA awards, please contact CCRA at ccra.team@partnershipagainstcancer.ca.
Take action on federal medicine price controls (PMPRB)
The federal government has introduced new price controls for patented medicines and vaccines (also referred to as the changes to the Patented Medicine Prices Review Board or PMPRB). The lack of clarity in how the new rules will be implemented along with the steep new price reductions for new medicines and vaccines have already had major negative impacts on Canadians. If you are concerned about the PMPRB changes, please use the following email form letter and social media post to contact the federal government. (more…)
Patients and Caregivers Experiences and Knowledge with Biomarker Testing in Canada
Colorectal Cancer Canada is inviting all cancer patients previously-treated, or currently undergoing treatment and/or their caregiver(s) to complete the following survey, which should take 20 minutes. (more…)
Now Recruiting Metastatic Kidney Cancer Survivors for a New Study
The University of Toronto is currently recruiting metastatic kidney cancer survivors for a study looking at changes in cognition, aerobic fitness, and activity patterns.Participate in a New Lung Cancer Program – Online Via Zoom
Inspire Now is a new program for lung cancer patients who may have physical and emotional concerns such as fatigue, shortness of breath, worry, pain, sadness, and may experience stigma.Calling All Cancer Patients 65 Years or Older. Share Your Experience and Earn a $25 Gift Card
Are you 65 years or older and have been diagnosed with cancer on or after March 1, 2020? Share your experiences about the impact of COVID-19 on older adults with cancer in this study conducted by the University of Toronto.Survive & Thrive – Participate in this New Program for Breast Cancer
You are invited to participate in Survive & Thrive, an 8-week small group online program offering knowledge from community Health & Wellness professionals to provide YOU with tools to not only “survive” cancer, but continue to THRIVE - in your life right now and beyond. Survive & Thrive begins Wednesday, Feb 17, 2021.PMPRB Call For Submission
You have been invited by The Patented Medicine Prices Review Board (PMPRB) to comment on two proposed consequential amendments to the new PMPRB Guidelines resulting from the decision to delay the coming-into-force date of the Regulations Amending the Patented Medicines Regulations (“Regulations”) a further six months, from January 1, 2021 to July 1, 2021.
Cancer Survivors Needed For a New Online Study!
(more…)An online study that looks at how treatments for cancer effect survivor's quality of life and gastrointestinal health after treatment completion is being conducted and your input is critical!
Are You a Patient, Survivor or Caregiver Affected by Childhood Cancer? Your Voice Matters!
(more…)If you are a patient, survivor, caregiver or clinician affected by childhood cancer, your input is critical! Please complete a short survey to have YOUR ideas represented within a new, national childhood cancer research agenda.Calling All Lung Cancer Survivors – Participate in a Research Study and You Could Earn $100
CCSN is conducting a new research study to understand the meaningful results of lung cancer clinical studies from the point of view of survivors of early stage lung cancer. (more…)
Submit Your Feedback: Treatment of Adult Patients with Chronic Immune Thrombocytopenia after Failure of First Line Therapies
CADTH invites you to submit feedback on a new project on Treatment of adult patients with chronic immune thrombocytopenia after failure of first line therapies. Last day to submit feedback is Thursday, January 21, 2021. (more…)
CAPO 2021 Call For Abstracts
The Canadian Association of Psychosocial Oncology (CAPO) is now accepting abstracts for posters, papers, and workshops for the 36th Annual Conference to be held virtually from June 8 to 10, 2021. (more…)
Patient Partners Leadership Training – Canadian Organization for Rare Disorders (CORD)
Today, effective partnerships with patient leaders are more important than ever! Don’t miss your chance to learn from patient, policy, and industry leaders in a highly innovative training format designed specifically for today’s virtual environment. Not just for rare diseases, CORD’s Patient Partners Leadership Training program in-person (virtual) sessions start on Friday, September 18, 2020 and will run bi-weekly until Friday, February 5, 2021 and is limited to 30 participants. Speakers include international and Canadian experts from government, research, industry, and patient organizations. (more…)
Right2Survive – Share Your Voice and Your Story
Despite being the number one cancer killer in Canada, outcomes in lung cancer lag behind other cancers. We can do more. Lung cancer patients deserve a chance to become cancer survivors. Share your survivor story and add your name to stand with cancer survivors.