Prostate Cancer Survivors Aged (18+) Needed for Survey
Prostate Cancer Survivors Aged (18+) Needed for Survey
Researchers at the University of Toronto and the University of British Columbia are trying to learn more about how to help prostate cancer survivors move more and sit less.Who can participate:
Men Diagnosed with Prostate Cancer 18+ years old Engaging in less than 150 minutes of physical activity a week Not receiving radiation therapyWhat's involved :
Three assessments: surveys, strengths test, and wear an activity monitor for 7 days at each 12 week program: You'll be randomly selected to receive a 12 week program and a Fit Bit , Or to only receive a FitBitInterested?
Contact us to find out more about the study and if you're eligible to participate :Email: Exercise.Oncology@utoronto.ca
Call: 416-946-5856
The Canadian Organization for Rare Disorders Board of Directors Application Call Out
The Canadian Organization for Rare Disorders is looking for passionate, creative, committed, qualified people to join our Board of Directors for the 2022-2025 term to help guide our organization to meet the needs of the rare disease community. CORD wishes to invite interested candidates to submit their application to join the Board of Directors for 2022-2025 term.
We are particularly interested in hearing from individuals whose experience and skill set include a combination of the following:
- Finance, accounting
- Grant writing
- Fundraising and special events
- Health policy development
- Public relations, communications
- Advocacy on a provincial/federal level
- Nonprofit, governance, management, administration experience
Application Deadline: July 11, 2022
Canadian Association of Psychosocial Oncology (CAPO) – Cancer Advocacy Survey
The Canadian Association of Psychosocial Oncology (CAPO) is creating a repository of Canadian organizations that advocate on behalf of patients and caregivers when it comes to their cancer supportive needs.
Please fill this survey so your organization can be to the list of cancer advocacy organizations.
New Science Advisory Committee on Pest Control Products.
Health Canada has launched its new Science Advisory Committee on Pest Control Products.
The Committee will provide scientific advice, as appropriate, on certain evidence-based decisions of the Pest Management Regulatory Agency (PMRA) on pesticides. It is comprised of science experts covering a broad range of expertise in both human health and environmental science, as well as value assessment. The Committee is representative of Canada and has been expertly vetted to have low to no conflict of interest. The Committee will be supported by a Community of Specialized Experts that will be called upon when specialized expertise is required. Please visit Health Canada’s website to learn more about the Science Advisory Committee on Pest Control Products and its membership. For any questions, please contact the Committee secretariat at pmra.sacpcp-ccspa.arla@hc-sc.gc.ca Secretariat of the Science Advisory Committee on Pest Control Products/ Secrétariat du Comité consultatif scientifique sur les produits antiparasitaires Transformation Task Force/ Groupe de travail sur la transformation Pest Management Regulatory Agency/ L’Agence de réglementation de la lutte antiparasitaire Health Canada/ Santé Canada Government of Canada/ Gouvernement du Canada Bladder Cancer Patient Insights Survey
At BCC, patient support is a cornerstone of our mission and that includes understanding the evolving needs of our community.
We’re looking for bladder cancer patients and caregivers to complete our Patient Insight Survey to ensure we are supporting patients in the best way possible.Prostate Cancer Support Canada Prostaid Calgary Annual General Meeting
Colorectal Cancer Patient Values Survey
We invite adults (18+) metastatic & non-metastatic Canadian Colorectal Cancer patients and/or caregivers to participate in our Colorectal Cancer Patient Values Survey. The purpose of this study, which is sponsored by Colorectal Cancer Canada and led by Dr. Deborah Marshall from the University of Calgary, is to measure how patients and caregivers value the risks and benefits of colorectal cancer treatment. Help us make a difference.Register Here
14th Annual Myeloma Canada Multiple Myeloma March
It’s time to register for the 14th annual Multiple Myeloma March!
Walk the walk. Make Myeloma matter.
We’re so excited that the 14th Annual Myeloma Canada Multiple Myeloma March season has officially kicked-off! Communities across Canada will be coming together again this fall either in person, or online to participate in Myeloma Canada’s flagship fundraiser, Myeloma Canada's annual 5km walk event. (more…)CADTH Call for Participants: Pediatric Glioma Concerns and Considerations
CADTH is organizing a meeting to discuss your and your family's experiences and priorities when it comes to treatment for pediatric glioma. The meeting is planned to be held on Friday May 27 at 1 pm EST or Monday May 30 at 11 am EST. An honorarium will be offered as compensation for your time. (more…)
Do you want to benefit from content delivered by 20 colorectal cancer experts?
Silent Viewing Available for CCRAN's My Colorectal Cancer Coach Training & Certification Conference CCRAN is delighted to announce that we will be holding our My Colorectal Cancer Coach Training & Certification Conference from June 14-16, 2022.This conference is a training and certification program for CCRAN's Colorectal Cancer Coaches. (more…)
CAPT-ACTP 2022 Conference call for abstracts
The Canadian Association of Population Therapeutics is now accepting abstracts for their 2022 conference: “Embracing Change and Uncertainty to Improve the Health of Canadians”. (more…)
Melanoma Canada’s Sun Safety Selfie Contest
There's still time to submit your photo for a chance to win amazing prizes from Aveeno® & Columbia Sportswear! (more…)
CCSN Survey for Prostate Cancer Patients Taking Darolutamide
Are you being treated with Darolutamide for metastatic castration-sensitive prostate cancer? Then we want to hear from you! (more…)
CCSN Survey for Cervical Cancer Patients Taking Keytruda
Are you taking Keytruda for cervical cancer? Then this survey is for you! (more…)
CADTH Call for Participants: Pediatric Glioma Concerns and Considerations
CADTH is seeking people (patients, survivors, caregivers, families or bereaved family members) with lived experiences of pediatric glioma to participate in a 90-minute meeting using Zoom. (more…)
Patient Interview Opportunity – Cervical Cancer Submission
Are you an advanced cervical cancer patient who has received or are receiving pembrolizumab (Keytruda) in combination with chemotherapy, with or without bevacizumab therapy? If so, our friends at HPV Global Action really need your help! (more…)
Participate in an Interview About Your Experience with Lung Cancer
Dense Breasts Canada Survey 2022 – Help Make a Difference in Advocacy for Women
Do you have dense breasts? Dense breasts are common and over 40% of women in Canada have dense breasts. We’re conducting a survey to learn more from Canadian women’s experiences so that we can raise awareness of the risks of dense breasts and advocate as effectively as possible for better screening.(more…)SURVEY: Ontario Drug Policy Research Network (ODPRN) Virtual Town Hall Series
In 2022, the ODPRN will be conducting a series of virtual town halls on various topics related to drug policy research in Ontario. These town halls will be a platform for Ontarians to be able to openly discuss drug policies and programs related to a given topic with relevant research and policy experts. These discussions may then be used to inform and prioritize ODPRN research.(more…)NEW Colorectal Cancer Support Group
Recruiting Now! New support group for caregivers of early-age onset Colorectal Cancer patients (under 50)
First Session: Wednesday Dec. 8, 2021 at 7:00-9:00 pm ET (a regular meeting time is still to be determined). (more…)EXCEL Program: Exercise for Cancer to Enhance Living Well
The EXCEL program is open to all adults affected by cancer who do not have access to exercise oncology programs in their area (which is most as there are very few established exercise oncology programs in Canada). We'd love for more Young Adults to participate in the program. Programs start every 12 weeks in Fall (sept start), Winter (Jan start), Spring (Apr start), and summer (July start, shorter program). For more info, visit this link: https://kinesiology.ucalgary.ca/labs/health-and-wellness/research-projects/excercise-cancer-enhance-living-well-excel EXCEL_Poster_ParticipantAction_202110
Survivor of Childhood Cancer Survey
A group of researchers from the University of Calgary, who study psychological and social outcomes for youth who have been diagnosed with pediatric cancer and their families (Care4Kids: https://www.care4kids.ca/), have recently launched a project focused on better understanding how follow-up care for survivors of childhood cancer can be improved. To learn more read the abstract below. (more…)
RECRUITMENT FOR A RESEARCH STUDY: Managing Your Caregiver Worries
Do you worry about your loved one’s cancer coming back? Do you worry weeks before your loved one’s follow-up appointments? Do your worries about your loved one’s cancer coming back cause you distress or affect your daily life? If so, a brief online group study is being offered to address these worries. (more…)
Symptom Tracking & Management to Improve Cancer Care
e-IMPAQc is inviting primary support persons (caregivers) to individuals diagnosed with cancer to an online focus group or one-on-one interview for a research study and would like to hear from a large and diverse group.
We invite you to share your needs and challenges as the primary support person to a family member or friend diagnosed with cancer by participating in two 90-minute online focus groups and one 120-minute online focus group with the research team of Sylvie Lambert of McGill University. Your feedback and suggestions will help the e-IMPAQc team develop a mobile application to provide cancer caregivers with educational materials and resources specific to your needs. Participants receive $35 pr workshop as a thank you for their contribution. For more information contact the team at e-impaqc_postt@mcgill.ca and visit https://e-impaqc.com/en/Focus group on post-treatment care for breast and colorectal cancer survivors
Have you completed treatment for breast or colorectal cancer?
Researchers at Nova Scotia Health want to hear from people living in Nova Scotia (NS), Ontario (ON) and Alberta (AB) who have been diagnosed with and treated for breast or colorectal cancer about their post-treatment care. The researchers are specifically interested in speaking with people who:- are at least 18 years of age
- live in NS, ON and AB
- have been previously diagnosed with breast or colorectal cancer, and
- completed treatment for breast or colorectal cancer 1 to 5 years ago.
Contact
For more information, or if you want to participate, contact: Samantha Radford Phone: (902) 473-7290 Email: Samantha.Radford@nshealth.caResearch Study: Cognitive Function & Physical Activity in Young Persons Treated for Cancer
Are you an adolescent or young adult (16-39 years) who has completed primary cancer treatment? Researchers from the University of Ottawa want to hear from you to better understand the relationship between physical activity, cognitive function, and mental health in young persons treated for cancer.Participation in this online study involves completing a survey, completing three short neuropsychological tests, and possibly participating in an interview (this will only apply to a small subset of participants). You can read more about the survey initiative in the information flyer.You will be entered into a draw to win a $100 CAD Visa gift card for your time.If you are interested or would like to learn more, please contact Sitara Sharma:Tel: 613-562-5800 x 7300 Email: sitara.sharma@uottawa.ca Call for Stories about Dealing with Side Effects of Prostate Cancer Treatment
Urinary incontinence and erectile dysfunction are two very common side effects of treatments for prostate cancer. They frequently persist for months or years after treatment. These side effects can seriously worsen patients’ quality of life. CCSN is undertaking a project to raise awareness of the need for rehabilitation services for prostate cancer survivors who experience these life-changing side effects, and to help make sure patients know about rehabilitation options that already exist. As part of this project, we are looking for stories from prostate cancer patients and survivors about dealing with incontinence or ED after treatment. These stories will be published in our updated prostate cancer section on our website. If you want to contribute a story, send us an email at info@survivornet.ca.
Call for Stories of Experience with COVID-19 and Cancer
CCSN's surveys on the impact of the COVID-19 pandemic on access to cancer care have given us a lot of information about the numerous ways in which the pandemic has caused difficulties for cancer patients, caregivers, and pre-diagnosis patients. However, we're also interested in learning more specifically about the experience of cancer patients who were ill with COVID – fears and concerns, interactions with the healthcare system, and any other challenges or difficulties. If you are someone who has had cancer and you got COVID, and want to share your story, send us an email at info@survivornet.ca.
The Multiple Myeloma March – Myeloma Canada
Myeloma Canada's Multiple Myeloma March is a national fundraising event to exclusively support myeloma research. Funds raised through the 2022 march will also go toward furthering important research projects and the Canadian Myeloma Research Group (CMRG) in their advancement of Canadian clinical trials in myeloma. Find a city near you for event dates and be a part of Myeloma Canada’s 14th Annual Multiple Myeloma March!
Help improve the quality of online cancer resources – Research Study Interview
Macquarie University and Melanoma Network of Canada are conducting a study to explore features indicating the quality of cancer-related online resources. The purpose of the interviews is to understand what features indicate the quality of cancer-related online resources from the perceptions of users (cancer-affected people). Participants must be 18+ years old and be willing to volunteer 30-45 minutes to answer. To participate please visit the information page.
COVID-19 Pandemic Survey by Lung Cancer Canada
How has the COVID-19 pandemic impacted your lung cancer care? Lung Cancer Canada wants to hear about your experiences! Take our quick 5-minute survey and let your voice be heard!
Survey for Lung Cancer Patients and Caregivers from the Lung Association
The Canadian Lung Association is conducting a survey in order to inform their development of new lung cancer informational resources. Lung cancer patients, caregivers for lung cancer patients, and healthcare workers are encouraged to take this survey and tell the Canadian Lung Association what lung cancer related resources they would find most useful.
Lung Cancer Support Survey
The Lung Health Foundation is committed to delivering a support service to Lung Cancer patients and caregivers that is current, relevant and meaningful. With that goal in mind, they have created a survey to gather input and insights from those with lived experience to increase our understanding of the lung cancer journey, including diagnosis, navigation of care and gaps in support. This survey will take a few minutes to complete.
Survey About the Survivor Identity for Breast Cancer Patients – UBC
The Survivor Identity Index: How Does Cancer Survivor Identity Relate to Emotional Well- Being?
You are invited to take part in a research study, “The Survivor Identity Index: How Does Cancer Survivor Identity Relate to Emotional Well-being”. People who have been diagnosed and treated for cancer vary in their comfort with the concept of "cancer survivorship". We want to learn more about how a person’s comfort with the idea of survivorship relates to their type of cancer, treatment history, and their relationships with the primary members of their healthcare team.
Criteria:You are invited to take part in this research study if you are over 18 years old, have been diagnosed with breast cancer, and can read and understand English.
Survey includes:If you choose to participate, you will be asked to complete an online survey. The survey contains questions about the following: - The extent to which you are comfortable identifying as a cancer survivor - Measures of emotional comfort - Your demographic information - Your breast cancer history - Your relationship with your healthcare providers
The questionnaire is expected to take between 15-20 minutes to complete. By participating in the study, you will have the option to enter a draw for one of three $50 gift cards for Amazon or Tim Hortons.
Right2Survive – Share Your Voice and Your Story
Despite being the number one cancer killer in Canada, outcomes in lung cancer lag behind other cancers. We can do more. Lung cancer patients deserve a chance to become cancer survivors. Share your survivor story and add your name to stand with cancer survivors.
