Participate

Trecondyv® (treosulfan) – alloHSCT Survey by Leukemia & Lymphoma Society of Canada

LLSC is collecting information and opinions from those who have lived experience with MDS or AML and have received or are considering receiving an allogeneic hematopoietic stem cell transplant (alloHSCT). This information will be used in a submission for public reimbursement of pre-transplant conditioning treatment, Trecondyv® (treosulfan). This survey will take approximately 10 minutes to complete. LLSC thanks you in advance for your contribution and your participation. The deadline to complete this survey is by July 26, 2023.

CaRE-AC: Cancer Rehabilitation for People with Metastatic / Advanced Breast or Colorectal Cancers

UBC is looking for people living with advanced breast or colorectal cancer to take part in a cancer rehabilitation study (CaRE-AC). Participants will be randomized into an 8-week supervised exercise & self-management program delivered in person or over a virtual platform (Zoom) or randomized into an 8-week standard best practice care program. Participants will be involved with CaRE-AC for 8 months, including the 8-week randomized program and regular short in-person assessments and online questionnaires at various timepoints over the 8 months. Researchers at UHN and UBC / BC Cancer are studying the effectiveness of an in-person or virtual cancer rehabilitation program focused on maximizing potential for independent function and quality of life for individuals who are living with locally advanced incurable or metastatic cancer. Our eligibility includes: - Diagnosis of locally advanced or metastatic breast or colorectal cancer - 18 years or older - Able to walk without aides - Receiving 1 st or 2 nd line anti-cancer treatments (preferred) or under active surveillance - Good English comprehension - Able and willing to participate in an in-person OR a virtual program (computer/tablet/smartphone with video and internet) To find out more information, contact us and ask about CaRE-AC. Toronto: Amrah.ahamed@uhn.ca or 416 581-8636. Vancouver: exercise.research@ubc.ca or 604-827-1914

Lung Cancer Screening Values (LCSV) study team at McMaster University

We are recruiting 55 and 85-year-olds who can converse in English for a research study. The purpose of this study is to investigate Ontarians’ values, attitudes, and beliefs about lung cancer screening. Participants will be compensated $20 for completing an interview in person (Hamilton, ON), by telephone or video call. If you are interested in participating, please fill out the eligibility survey here: https://dfmgp.mcmaster.ca/surveys/?s=MXFWX8483DJ88RLW We hope to learn what you think about the importance of lung cancer screening, who you think should be screened, and your perspectives on the benefits and harms of lung cancer screening. Your participation can help advance our thinking about lung cancer screening in order to make a potential future lung cancer screening program in Ontario fair, effective, and an efficient use of health care dollars. This research study is part of a doctoral thesis by Manisha Pahwa, a Ph.D. student at McMaster University, and has been reviewed by the Hamilton Integrated Research Ethics Board (project #8310)”

CTO’s decentralized clinical trials survey

CTO launched a survey related to potential participants' thoughts and preferences related to decentralized or hybrid clinical trials. This type of survey has not yet been done in Canada and will provide us with evidence about how Canadians may prefer to participate in clinical trials. The data will help inform us and tell us how we might best work with our community around these preferences. We collaborated with our College of Lived Experience to develop the survey. We plan to share results with the community and to develop tools/resources based on these results. The survey is open to any Canadian over 18 years - it doesn't matter what your background is, if you've participated in a clinical trial or not, if you work in research, etc.

Fear of Cancer Recurrence

This is a doctoral research project done by Jani Lamarche, PHD candidate in clinical psychology at the University of Ottawa. Lamarche is looking to adapt and provide a group intervention aimed at reducing fear of cancer recurrence in family caregivers of cancer survivors. To participate, email jlama023@uottawa.ca Fear of Cancer Recurrence_Recruitment Flyer

Call for patients to join the MOHCCN Patient Working Group

This study is shared on behalf of the Terry Fox Research Institute The Patient Working Group is inviting people with cancer patient experiences to share insights and experiences in support of the Network towards the goal of precision medicine that directly benefit cancer patients. Additional information about this opportunity and participation form can be found here.  If you have any questions, please contact MOH@tfri.ca.  

CCSN Call Out Share Your COVID-19 and Cancer Story

How is the pandemic affecting you now, as a cancer patient, caregiver, or survivor? Our latest survey tells a great deal of how the pandemic continues to impact the lives of people affected by cancer. (more…)

pelvic health survivorship care survey

Stéphanie Bernard, PhD, PT is investigating the needs and preferences of gynecologic cancer survivors towards pelvic health survivorship care.   What is it?

• Eligible participants  will be invited to answer a  25-minute secure online survey on the topic of pelvic health.
• The survey is completely anonymous.

• Individuals >18 years old who have been treated for any gynecologic cancer.
• Living in Canada (speaks English or French).

Interview Opportunity For Adults With Metastatic Urothelial Carcinoma (Bladder) Cancer

Click here for full details CONTACT: dlambkin@marketresearch2go.com

Colorectal Cancer Patient Values Survey

Colorectal Cancer Canada  is conducting a survey with colorectal cancer patients and care givers from across Canada (more…)

Beyond Study: Understanding the Impact of the COVID-19 Pandemic on the Psychosocial Health of Children with Cancer, Survivors, and Parents.

With this project, researchers from Concordia University are looking forward to learning more about the Canadian childhood cancer community’s experiences during the pandemic and how to best support their well-being during the pandemic and beyond. They are looking for:

• Children and teens with cancer (<18 years of age)
• Survivors of childhood cancer (<18 years of age)
• Parents of children with cancer
• Parents of survivors of childhood cancer who are <18 years of age

Survey of the attitudes and preferences of Canadians towards participating in a decentralized clinical trial

Evaluating Psychosocial Needs of Retinoblastoma Patients and Families

Dr. Helen Dimaras (Scientist and Director of Global Eye Health Research, The Hospital for Sick Children, Toronto) is?partnering with researchers, clinicians, and retinoblastoma patients and families to develop a study that will uncover the unmet psychosocial needs of Canadian retinoblastoma patients and families.

CancerCare Manitoba Interview Call Out

Were you diagnosed with cancer between the ages of 15 to 39 years and are now +18 years living in Canada and identify as any of the following: Person of  Color, Indigenous, 2SLGBTQIA+.  CancerCare Manitoba Foundation and Young Adult Cancer Canada wants to learn about your experiences in the health care system to improve  cancer care delivery. (more…)

SEAMLESS Study: A Smartphone App-based Mindfulness Intervention for Cancer Survivors

This study is commissioned by the University of Calgary and Alberta Health Services Click below for more information: SEAMLESS Flyer_Apr2023 SEAMLESS Email Flyer

University Of Liverpool Research Participants Call Out

The University Of Liverpool is seeking participants for research into how young women of color experience hair loss as a result of chemotherapy for breast cancer. Are you a woman of color between the ages of 21 and 45 who experienced hair loss as a result of chemotherapy for breast cancer (more…)

Seeking patients who had low-risk cancer for a research study requiring one telephone call

This study is commissioned with the University Health Network in partnership with the Canadian Cancer Society Background: Due to more screening, many more people are diagnosed with abnormal cells with a very low risk of ever turning into cancer. Many patients undergoing treatment for these abnormal cells believe they have cancer, which causes anxiety and reduces quality of life. Little prior research has explored how to improve communication about “low-risk” cancers so that patients better understand their diagnosis. Study purpose: Identify ideal ways to name and discuss low-risk cancers by asking patients and doctors about the names they prefer for low-risk cancers of the breast, cervix, bladder, thyroid, and prostate, and the reason for those preferences. You can participate if you: ? Are 30 years of age or older ? Were diagnosed in the last 5 years with abnormal cells in any of the following body parts that required only regular monitoring because of a very low chance of ever turning into cancer, or if treated, would not likely recur: o Breast (only ductal carcinoma in situ) o Cervix o Bladder o Thyroid o Prostate ? Live anywhere in Canada ? Can understand and speak English language What you will be asked to do: ? Read and sign an online consent form ? Participate in a single telephone interview of about 20 minutes ? We will ask for your opinion about the words used to name and describe abnormal cells in the breast, cervix, bladder, prostate, or thyroid What we will give you: ? After you participate in the telephone interview, we will send you compensation ? When the study is done, we will send you a summary of the results To express interest or ask questions: The research study is being conducted by Dr. Anna Gagliardi from the University Health Network (UHN) in Toronto with funding from the Canadian Cancer Society. If you are interested in participating or wish to learn more about the study, please contact the study coordinator: Mavis. Lyons@uhn.ca. Please note that information sent by email may be accessible by external parties and therefore not entirely secure. Please do not communicate personal sensitive information via e-mail.

My Symptoms Matter Survey

This survey is commissioned by Colorectal Cancer Canada. We are inviting Canadian adults (18+) who have been diagnosed with colorectal cancer (CRC) within the last 10 years to participate in our Colorectal Cancer Patient Experiences with Family Practitioners in Canada Survey. The purpose of this study is to explore the primary experiences of CRC patients with their family practitioners during their pre-diagnosis, eventual diagnosis, and post diagnosis. It should only take 15-50 minutes.

Patient Values Preferences Survey

This survey is commissioned by Colorectal Cancer Canada. We invite adults (18+) metastatic & non-metastatic Canadian Colorectal Cancer patients and/or caregivers to participate in our Colorectal Cancer Patient Values Survey. The purpose of this study, which is sponsored by Colorectal Cancer Canada and led by Dr. Deborah Marshall from the University of Calgary, is to measure how patients and caregivers value the risks and benefits of colorectal cancer treatment. It should only take 25 minutes of your time.

University of Ottawa Swimming and Breast Cancer Study

SWIM Participant Flyer with tearoff - July 19 2022 - EN

GI Society’s Gaps in Healthcare Survey

MedAccessBC and the GI Society collaborated on a short survey to better understand Canadians' experiences with access to a doctor and prescription medications in various healthcare settings. This survey takes approximately 5-8 minutes to complete and it is open to adults in Canada who take prescription medication.

Rare Genetic Disease Caregiver Study Opportunity

This survey is put on by the Canadian Organization for Rare Disorders Researchers at the University of Manitoba invite you to participate in a study on the experience of caregivers of children with rare genetic diseases. The goal of this study is to understand the experiences, needs, and preferences of parents/caregivers of children with rare genetic diseases while interacting with genetics professionals during the diagnostic journey. We want to learn about where caregivers seek information and support during and after the diagnostic journey and the factors that might influence these preferences. We hope the study results will give us a better understanding of how genetics healthcare providers can provide better support to caregivers.?  We anticipate that the survey will require approximately 15-20 minutes of your time and is available to complete in English, French, and Simplified Chinese. If you would like to complete the survey in more than one sitting, you will have the option of using a ‘return code’ to save your responses and return to the same survey later.?   If you would like to participate in this study, please click on this link or enter https://redcap.link/2epjx053 into your web browser. We kindly ask that you do not post this link on public forums including social media.    If you would like more information about this study, please contact Vivien at truongv2@myumanitoba.ca.    Thank you!  

CCRA’s Patient Involvement in Cancer Research Program (PIP)

This study is commissioned by the Canadian Cancer Research Alliance. Are you a cancer patient, survivor, or caregiver who is interested in learning more about cancer research? CCRA’s Patient Involvement in Cancer Research Program (known as PIP) will be offered this year in a hybrid format. PIP is interwoven into the Canadian Cancer Research Conference (CCRC) and provides participants with an opportunity to learn about leading edge science and network with cancer researchers and trainees. You will be paired with a science partner who will be available to address questions and help you get the most out of the research presented at the conference. Best of all, you will be linked to other participants also interested in cancer research! For more information, please read our brochure. To apply, please click here (deadline for applications is March 1, 2023). If you would like more information, please contact kimberly.badovinac@partnershipagainstcancer.ca.

BC Ministry of Health – Survey on Minor Ailments and Contraception Service

The BC Ministry of Health has published a survey to receive feedback from the public on the Minor Ailments and Contraception Service (MACS).  These are significant change coming for British Columbians and will have an impact on access to care and how patients will soon have an alternative route to access assessment and treatment with medicines through Pharmacists with authority being given to Pharmacists for prescribing in the treatment of minor ailments. This is new for BC and will be coming into effect in the couple of month, based on tentative information.  I encourage you to circulate this survey to your members and stakeholders in BC, it is a short survey. The survey will be open from April 12^th to April 30^th .

Bladder Cancer Patient Feedback

Chronic Myeloid Leukemia Treatment | Needs Assessment

OncologyEducation is evaluating their members’ needs on the topic of Chronic Myeloid Leukemia Treatment and they want to hear from you! Please complete this short survey to help us plan and develop future learning activities. All data will remain secure and confidential. Respond for a chance to win one of four $25 e-Visa Gift Cards.

Rare Disease survey from the Canadian Organization for Rare Disorders

The Canadian Organization for Rare Disorders need input on the impact of RARE DISEASES on you and your family, as well as YOUR PERSPECTIVES on how Canadian health systems can improve access to rare disease medicines. COMPLETE THE SURVEY BY NOVEMBER 14: In ENGLISH here: https://tinyurl.com/CORD2022EnglishSurvey In FRENCH here: https://tinyurl.com/CORD2022FrenchSurvey THE SURVEY IS FOR PATIENTS AND CAREGIVERS: If you are a Canadian or resident in Canada affected by rare diseases (patients and caregivers), please take a few minutes to complete this confidential survey conducted by Ipsos Canada on behalf of the Canadian Organization for Rare Disorders (CORD). This survey will be available for completion until Monday, November 14, 2022.

Mesothelioma Applied Research Foundation Research Funding Opportunity

Thanks to the generous support of our patients, families, caregivers, corporate supporters, and the many friends of the Mesothelioma Applied Research Foundation, they are pleased to announce that the 2022 research funding grant cycle is now open accepting pre-application letters of intent (LOI) until 11:59 PM ET Monday, November 21, 2022. their research grant program offers $100,000 grants for two years ($50,000 per year). Please read the below before applying Additional information to be included in the LOI:

• All applications need to focus on pleural and/or peritoneal mesothelioma and should address at least one of the 2022 Areas of Interest (listed below).
• All projects must be feasible within the timeline and budgetary constraints of the current LOI.
• All other funding, overlapping and/or supplemental funding, for the proposed project should be disclosed as part of the application.
• Junior investigators with an interest in a carrier focus in mesothelioma are strongly encouraged to apply to this RFA. As part of their application, they should identify an established mesothelioma researcher as their mentor and provide a career development and mentorship plan in the context of their application.

• Novel therapies for mesothelioma for both pleural and peritoneal, especially targeted therapies, combination immunotherapy, cellular therapy, and virotherapy.
• Health-related quality of life assessment incorporating the social determinants of health (SDOH) specific to mesothelioma patient care, side effect management, mental health care impact on patient and/or caregiver outcomes, and other related topics.
• Novel strategies for screening and early detection.
• Novel strategies for risk assessment and prognosis stratification.
• Immune mediated complications of immunotherapy in mesothelioma (monitoring, early detection, and management).
• Improving personalization of therapies (gender and racial differences, targeted therapies, and predictive biomarkers).
• Mechanisms of treatment resistance/failure.
• Mesothelioma biology and etiology (disease-defining molecular pathways, cellular biology, and/or tumor microenvironment).

Brain Tumour Foundation Survey

The Brain Tumour Foundation of Canada wants to hear from you! Please share your thoughts with us in this brief survey. It should take no longer than 5-10 minutes to complete. Your responses will help them plan our priorities and guide future advocacy efforts. If you have any questions, please contact Sarah Rogers, Advocacy and Information Specialist at srogers@braintumour.ca

Assessing Patient Awareness and Satisfaction about the Information Received by Health-Care Providers on the Potential Risks of Cancer-Associated Venous Thromboembolism and Anticoagulation

A Global Initiative for World Thrombosis Day 2022. This survey has been created to evaluate patient knowledge and satisfaction with the information given to them regarding the potential risks of cancer- associated venous thromboembolism and anticoagulation.THROMBOSIS

Diagnosed With Colon or Rectal Cancer in the Last 5 Years?

CHEMOTHERAPY INDUCED PERIPHERAL NEUROPATHY

Get Personal: Patients and Caregivers Experiences and Knowledge with Biomarker Testing in Canada 2023

What was your experience with biomarker testing? We are inviting Canadian adults (18+) who have undergone treatment for cancer or who are undergoing treatment to participate in our Patients and Caregivers Experiences and Knowledge with Biomarker Testing in Canada Survey. The purpose of this study is to better understand patient experiences in order to improve quality of and access to biomarker testing in Canada. Note: This survey can be completed by the patient and/or by the caregiver on behalf of the patient. It should only take 15-20 minutes of your time.

cGVHD and belumosudil (Rezurock®) Survey by Leukemia & Lymphoma Society of Canada

LLSC is collecting information and opinions from those who have lived experience with Chronic Graft vs Host Disease following an allogeneic stem cell transplant.

We invite you to complete this survey to help us better understand treatment for this disease, including its benefits and challenges. The indication for the treatment is for the treatment of adult and pediatric patients 12 years and older with chronic graft-versus-host disease (GVHD) after failure of at least two prior lines of systemic therapy.

This survey will take approximately 15-20 minutes to complete.?We thank you in advance for your contribution and your participation in this survey. If you have any questions, please contact Colleen McMillan at colleen.mcmillan@lls.org

The deadline to complete this survey is by Sunday July 30, 2023

Patient & Caregiver Questionnaire on Hepatocellular Carcinoma – Durvalumab+Tremelimumab

The purpose of this survey is to provide several organizations (listed below) with insights and perspectives about living with and managing a liver cancer diagnosis from patients and caregivers in order to complete a patient evidence submission for Durvalumab+Tremelimumab. The indication is for the treatment of patients with unresectable hepatocellular carcinoma. The survey will remain open until November 4, 2022. The pan-Canadian Oncology Drug Review invites patient groups to prepare and send in submissions so that patients and caregivers like you can be heard. Please join us and have your voice included in this important submission process. The patient groups that will be making the submission to the pan-Canadian Oncology Drug Review are: Canadian Cancer Survivor Network Canadian Liver Foundation Colorectal Cancer Resource & Action Network Thank you for your participation!

University of Calgary Exercise for Cancer to Enhance Living Well Health and Wellness Lab

Exercise for Cancer to Enhance Living Well (EXCEL) is a five-year nationwide project to increase the accessibility of exercise programs for rural and remote cancer survivors, (more…)

McGill University LymFit Exercise study.

Researchers at McGill University (Montreal, QC) are leading an exercise intervention study for young adults with lymphoma to get them to engaged in physical activity and increase their overall fitness and quality of life. (more…)

Prostate Cancer Survivors Aged (18+) Needed for Survey

Researchers at the University of Toronto and the University of British Columbia are trying to learn more about how to help prostate cancer survivors move more and sit less. Who can participate: Men Diagnosed with Prostate Cancer 18+ years old Engaging in less than 150 minutes of physical activity a week Not receiving radiation therapy (more…)

Canadian Association of Psychosocial Oncology (CAPO) – Cancer Advocacy Survey

The Canadian Association of Psychosocial Oncology (CAPO)  is creating a repository of Canadian organizations that advocate on behalf of patients and caregivers when it comes to their cancer supportive needs. Please fill this survey so your organization can be to the list of cancer advocacy organizations.  

New Science Advisory Committee on Pest Control Products.

Health Canada has launched its new Science Advisory Committee on Pest Control Products. (more…)

Bladder Cancer Canada Bladder Cancer Patient Insights Survey

Bladder Cancer Canada is looking for bladder cancer patients and caregivers to complete their Patient Insight Survey to ensure they are supporting patients in the best way possible. (more…)

Colorectal Cancer Patient Values Survey

Register Here

CADTH Call for Participants: Pediatric Glioma Concerns and Considerations

CADTH is seeking people (patients, survivors, caregivers, families or bereaved family members) with lived experiences of pediatric glioma to participate in a 90-minute meeting using Zoom. (more…)

Dense Breasts Canada Survey 2022 – Help Make a Difference in Advocacy for Women

NEW Colorectal Cancer Support Group

Recruiting Now! New support group for caregivers of early-age onset Colorectal Cancer patients (under 50)

EXCEL Program: Exercise for Cancer to Enhance Living Well

The EXCEL program is open to all adults affected by cancer who do not have access to exercise oncology programs in their area (which is most as there are very few established exercise oncology programs in Canada). We'd love for more Young Adults to participate in the program. Programs start every 12 weeks in Fall (sept start), Winter (Jan start), Spring (Apr start), and summer (July start, shorter program). For more info, visit this link: https://kinesiology.ucalgary.ca/labs/health-and-wellness/research-projects/excercise-cancer-enhance-living-well-excel   EXCEL_Poster_ParticipantAction_202110 ~

Survivor of Childhood Cancer Survey

A group of researchers from the University of Calgary, who study psychological and social outcomes for youth who have been diagnosed with pediatric cancer and their families (Care4Kids: https://www.care4kids.ca/), have recently launched a project focused on better understanding how follow-up care for survivors of childhood cancer can be improved. To learn more read the abstract below. (more…)

RECRUITMENT FOR A RESEARCH STUDY: Managing Your Caregiver Worries

Do you worry about your loved one’s cancer coming back? Do you worry weeks before your loved one’s follow-up appointments? Do your worries about your loved one’s cancer coming back cause you distress or affect your daily life? If so, a brief online group study is being offered to address these worries. (more…)

Symptom Tracking & Management to Improve Cancer Care

e-IMPAQc is inviting primary support persons (caregivers) to individuals diagnosed with cancer to an online focus group or one-on-one interview for a research study and would like to hear from a large and diverse group.

Call for Stories about Dealing with Side Effects of Prostate Cancer Treatment

Urinary incontinence and erectile dysfunction are two very common side effects of treatments for prostate cancer. They frequently persist for months or years after treatment. These side effects can seriously worsen patients’ quality of life. CCSN is undertaking a project to raise awareness of the need for rehabilitation services for prostate cancer survivors who experience these life-changing side effects, and to help make sure patients know about rehabilitation options that already exist. As part of this project, we are looking for stories from prostate cancer patients and survivors about dealing with incontinence or ED after treatment. These stories will be published in our updated prostate cancer section on our website. If you want to contribute a story, send us an email at info@survivornet.ca.

Call for Stories of Experience with COVID-19 and Cancer

CCSN's surveys on the impact of the COVID-19 pandemic on access to cancer care have given us a lot of information about the numerous ways in which the pandemic has caused difficulties for cancer patients, caregivers, and pre-diagnosis patients. However, we're also interested in learning more specifically about the experience of cancer patients who were ill with COVID – fears and concerns, interactions with the healthcare system, and any other challenges or difficulties. If you are someone who has had cancer and you got COVID, and want to share your story, send us an email at info@survivornet.ca.

Survey for Lung Cancer Patients and Caregivers from the Lung Association

The Canadian Lung Association is conducting a survey in order to inform their development of new lung cancer informational resources. Lung cancer patients, caregivers for lung cancer patients, and healthcare workers are encouraged to take this survey and tell the Canadian Lung Association what lung cancer related resources they would find most useful.

Lung Cancer Support Survey

The Lung Health Foundation is committed to delivering a support service to Lung Cancer patients and caregivers that is current, relevant and meaningful. With that goal in mind, they have created a survey to gather input and insights from those with lived experience to increase our understanding of the lung cancer journey, including diagnosis, navigation of care and gaps in support. This survey will take a few minutes to complete. ~

Right2Survive – Share Your Voice and Your Story

Despite being the number one cancer killer in Canada, outcomes in lung cancer lag behind other cancers. We can do more. Lung cancer patients deserve a chance to become cancer survivors. Share your survivor story and add your name to stand with cancer survivors.