Symptom Tracking & Management to Improve Cancer Care
e-IMPAQc is inviting primary support persons (caregivers) to individuals diagnosed with cancer to an online focus group or one-on-one interview for a research study and would like to hear from a large and diverse group.
We invite you to share your needs and challenges as the primary support person to a family member or friend diagnosed with cancer by participating in two 90-minute online focus groups and one 120-minute online focus group with the research team of Sylvie Lambert of McGill University. Your feedback and suggestions will help the e-IMPAQc team develop a mobile application to provide cancer caregivers with educational materials and resources specific to your needs. Participants receive $35 pr workshop as a thank you for their contribution. For more information contact the team at e-impaqc_postt@mcgill.ca and visit https://e-impaqc.com/en/Call for Sessions – World Cancer Congress 2022
(more…)Focus group on post-treatment care for breast and colorectal cancer survivors
Have you completed treatment for breast or colorectal cancer?
Researchers at Nova Scotia Health want to hear from people living in Nova Scotia (NS), Ontario (ON) and Alberta (AB) who have been diagnosed with and treated for breast or colorectal cancer about their post-treatment care. The researchers are specifically interested in speaking with people who:- are at least 18 years of age
- live in NS, ON and AB
- have been previously diagnosed with breast or colorectal cancer, and
- completed treatment for breast or colorectal cancer 1 to 5 years ago.
Contact
For more information, or if you want to participate, contact: Samantha Radford Phone: (902) 473-7290 Email: Samantha.Radford@nshealth.caResearch Study: Cognitive Function & Physical Activity in Young Persons Treated for Cancer
Are you an adolescent or young adult (16-39 years) who has completed primary cancer treatment? Researchers from the University of Ottawa want to hear from you to better understand the relationship between physical activity, cognitive function, and mental health in young persons treated for cancer.Participation in this online study involves completing a survey, completing three short neuropsychological tests, and possibly participating in an interview (this will only apply to a small subset of participants). You can read more about the survey initiative in the information flyer.You will be entered into a draw to win a $100 CAD Visa gift card for your time.If you are interested or would like to learn more, please contact Sitara Sharma:Tel: 613-562-5800 x 7300 Email: sitara.sharma@uottawa.ca Call for Stories about Dealing with Side Effects of Prostate Cancer Treatment
Urinary incontinence and erectile dysfunction are two very common side effects of treatments for prostate cancer. They frequently persist for months or years after treatment. These side effects can seriously worsen patients’ quality of life. CCSN is undertaking a project to raise awareness of the need for rehabilitation services for prostate cancer survivors who experience these life-changing side effects, and to help make sure patients know about rehabilitation options that already exist. As part of this project, we are looking for stories from prostate cancer patients and survivors about dealing with incontinence or ED after treatment. These stories will be published in our updated prostate cancer section on our website. If you want to contribute a story, send us an email at info@survivornet.ca.
Call for Stories of Experience with COVID-19 and Cancer
CCSN's surveys on the impact of the COVID-19 pandemic on access to cancer care have given us a lot of information about the numerous ways in which the pandemic has caused difficulties for cancer patients, caregivers, and pre-diagnosis patients. However, we're also interested in learning more specifically about the experience of cancer patients who were ill with COVID – fears and concerns, interactions with the healthcare system, and any other challenges or difficulties. If you are someone who has had cancer and you got COVID, and want to share your story, send us an email at info@survivornet.ca.
The Multiple Myeloma March – Myeloma Canada
Myeloma Canada's Multiple Myeloma March is a national fundraising event to exclusively support myeloma research. Funds raised through the 2021 march will also go toward furthering important research projects and the Canadian Myeloma Research Group (CMRG) in their advancement of Canadian clinical trials in myeloma. Find a city near you for event dates and be a part of Myeloma Canada’s 13th Annual Multiple Myeloma March!
Become a Prevent Cancer Now Volunteer
Prevent Cancer Now is a Canadian national voice for healthy choices, founded on strong, pragmatic science, to stop cancer before it starts. People are encouraged to join their Volunteer Working Board! Volunteers will learn from experts in science, health and medicine, policy, law and governance, communications, advocacy, fundraising, and more!
Help improve the quality of online cancer resources – Research Study Interview
Macquarie University and Melanoma Network of Canada are conducting a study to explore features indicating the quality of cancer-related online resources. The purpose of the interviews is to understand what features indicate the quality of cancer-related online resources from the perceptions of users (cancer-affected people). Participants must be 18+ years old and be willing to volunteer 30-45 minutes to answer. To participate please visit the information page.
COVID-19 Pandemic Survey by Lung Cancer Canada
How has the COVID-19 pandemic impacted your lung cancer care? Lung Cancer Canada wants to hear about your experiences! Take our quick 5-minute survey and let your voice be heard!
Hoofing It Around the Globe for Neuroendocrine Cancer Research
HOOFING IT Around The Globe, a fundraiser run by the Canadian Neuroendocrine Tumour Society (CNETS), is taking place from July 1st to September 15th, 2021. The goal is to raise $100,000, of which every penny will go to neuroendocrine cancer research. Participants create their own fundraising activities, either on their own or as part of a team, and travel as many kilometres as they can by whatever mode they choose – for example walking, cycling, swimming, etc. See the CNETS website for more information.
Survey for Lung Cancer Patients and Caregivers from the Lung Association
The Canadian Lung Association is conducting a survey in order to inform their development of new lung cancer informational resources. Lung cancer patients, caregivers for lung cancer patients, and healthcare workers are encouraged to take this survey and tell the Canadian Lung Association what lung cancer related resources they would find most useful.
Call for Abstracts for National Lymphedema Conference
The call for abstracts is open for the 2021 National Lymphedema Conference! The Canadian Lymphedema Framework (CLF) is accepting abstracts for either an oral or poster presentation at the conference, which will take place virtually on December 3-4, 2021. The CLF welcomes abstracts from all stages of the research process, including study protocols, feasibility and pilot studies, and clinical case series. However, submissions are not limited to research-based abstracts. If you have a special interest in a topic that is important or have a special case study, the CLF encourages you to submit an abstract to share knowledge with your colleagues.
Key Dates
April 15 - Call for English abstracts officially opens April 30 - Communication and Call for French abstracts officially opens September 1 - Deadline for abstract submissions October 5 - Notification of accepted abstractsEngagement on the Disability Inclusion Action Plan
The Government of Canada is engaging Canadians on how to improve the lives of Canadians with disabilities. Your feedback will support the development of the Disability Inclusion Action Plan, which will focus on:
- reducing poverty among persons with disabilities in Canada;
- getting more persons with disabilities into good quality jobs;
- helping meet the Accessible Canada Act goal of a barrier-free Canada by 2040;
- making it easier for persons with disabilities to access federal programs and services; and
- fostering a culture of inclusion.
Lung Cancer Support Survey
The Lung Health Foundation is committed to delivering a support service to Lung Cancer patients and caregivers that is current, relevant and meaningful. With that goal in mind, they have created a survey to gather input and insights from those with lived experience to increase our understanding of the lung cancer journey, including diagnosis, navigation of care and gaps in support. This survey will take a few minutes to complete.
Survey About the Survivor Identity for Breast Cancer Patients – UBC
The Survivor Identity Index: How Does Cancer Survivor Identity Relate to Emotional Well- Being?
You are invited to take part in a research study, “The Survivor Identity Index: How Does Cancer Survivor Identity Relate to Emotional Well-being”. People who have been diagnosed and treated for cancer vary in their comfort with the concept of "cancer survivorship". We want to learn more about how a person’s comfort with the idea of survivorship relates to their type of cancer, treatment history, and their relationships with the primary members of their healthcare team.
Criteria:You are invited to take part in this research study if you are over 18 years old, have been diagnosed with breast cancer, and can read and understand English.
Survey includes:If you choose to participate, you will be asked to complete an online survey. The survey contains questions about the following: - The extent to which you are comfortable identifying as a cancer survivor - Measures of emotional comfort - Your demographic information - Your breast cancer history - Your relationship with your healthcare providers
The questionnaire is expected to take between 15-20 minutes to complete. By participating in the study, you will have the option to enter a draw for one of three $50 gift cards for Amazon or Tim Hortons.
Right2Survive – Share Your Voice and Your Story
Despite being the number one cancer killer in Canada, outcomes in lung cancer lag behind other cancers. We can do more. Lung cancer patients deserve a chance to become cancer survivors. Share your survivor story and add your name to stand with cancer survivors.