Rare Cancer Organizations and Blogs

Canadian

Canadian Organization for Rare Disorders (CORD)

151 Bloor Street West, Suite 600
Toronto, ON M5S 1S4

Phone: 416.969.7464 / 1.877.302.7273
Email: info@raredisorders.ca
www.raredisorders.ca

 

Rare Disease Foundation

4500 Oak Street, Room C234
Vancouver, BC V6H 3N1

Phone: 866.348.6677
www.rarediseasefoundation.org

 

Orphanet

Dr. Micheil Innes
Associate Professor, Department of Medical Genetics,
Faculty of Medicine, University of Calgary
3330 Hospital Drive NW
Calgary, AB T2N 4N1

Phone: 403.220.6344
Email: manjir@ucalgary.ca
www.orpha.net

 

Rare Diseases

Canadian Institute for Health Research (CIHR) New Emerging Team
www.rare-diseases.ca

 

International

National Organization for Rare Disorders (NORD) USA

National Headquarters, CT Office
55 Kenosia Avenue
Danbury, CT 06810 USA

Phone: 203.744.0100
www.rarediseases.org

 

Genetic and Rare Diseases Information Center (GARD) USA

National Institutes of Health (NIH)
PO Box 8126
Gaithersburg, MD 20898-8126 USA

Toll-Free: 1.888.205.2311
www.rarediseases.info.nih.gov

 

MacMillan Cancer Support UK

Rare Cancer
89 Albert Embankment
London SE1 7UQ

Phone: 020.7840.7840
www.macmillan.org.uk

 

Blogs

Cancer ABCs: From surviving to striving
https://www.cancerabcs.org/rare-multicancer-blog