Canadian
Canadian Organization for Rare Disorders (CORD)
151 Bloor Street West, Suite 600
Toronto, ON M5S 1S4
Phone: 416.969.7464 / 1.877.302.7273
Email: info@raredisorders.ca
www.raredisorders.ca
Rare Disease Foundation
4500 Oak Street, Room C234
Vancouver, BC V6H 3N1
Phone: 866.348.6677
www.rarediseasefoundation.org
Orphanet
Dr. Micheil Innes
Associate Professor, Department of Medical Genetics,
Faculty of Medicine, University of Calgary
3330 Hospital Drive NW
Calgary, AB T2N 4N1
Phone: 403.220.6344
Email: manjir@ucalgary.ca
www.orpha.net
Rare Diseases
Canadian Institute for Health Research (CIHR) New Emerging Team
www.rare-diseases.ca
International
National Organization for Rare Disorders (NORD) USA
National Headquarters, CT Office
55 Kenosia Avenue
Danbury, CT 06810 USA
Phone: 203.744.0100
www.rarediseases.org
Genetic and Rare Diseases Information Center (GARD) USA
National Institutes of Health (NIH)
PO Box 8126
Gaithersburg, MD 20898-8126 USA
Toll-Free: 1.888.205.2311
www.rarediseases.info.nih.gov
MacMillan Cancer Support UK
Rare Cancer
89 Albert Embankment
London SE1 7UQ
Phone: 020.7840.7840
www.macmillan.org.uk
Blogs
Cancer ABCs: From surviving to striving
https://www.cancerabcs.org/rare-multicancer-blog