International Lung Cancer Organizations

ALK Positive

ALK Positive is a patient-driven group, providing information, support, empathy, & research funding to change the future of ALK-positive lung cancer.

Facebook: ALK Positive Outreach
Twitter: @ALKLungCancer
Instagram: @alklungcancer

American Lung Association (USA)

The American Lung Association is leading the way in helping all Americans breathe easier. Thanks to their donors, volunteers, program and event participants, and staff, they are America’s trusted source for lung health education, lung disease research, support, programs, services, and advocacy.

American Lung Association
55 W. Wacker Drive, Suite 1150
Chicago, IL, 60601

Phone: 1.800.LUNGUSA
Twitter: @LungAssociation
Facebook: American Lung Association
Instagram: @lungassociation
YouTube: American Lung Association

A Breath of Hope Lung Foundation (USA)

To be a leading contributor to the cure of lung cancer by focusing on disease awareness, early detection and lung cancer treatments, A Breath of Hope Lung Foundation fights lung cancer by funding innovative research and raising awareness through education and patient support.

A Breath of Hope Lung Foundation
PO Box 387
Wayzata, MN 55391
Office Phone Number: 952-456-2463
Contact Executive Director, Nancy Torrison, at:

Twitter: @ABOHLF_MN
Facebook: A Breath of Hope Lung Foundation

British Lung Foundation (UK)

The British Lung Foundation is the only UK charity looking after the nation’s lungs. With your support, they’ll make sure that one day everyone breathes clean air with healthy lungs.

British Lung Foundation
73-75 Goswell Road
London EC1V 7ER

Phone: 03000.030.555
Twitter: @lunguk
Facebook: British Lung Foundation

CHEST Foundation (USA)

The mission of the CHEST Foundation is to champion lung health by supporting clinical research grants, community service, and patient education.

2595 Patriot Blvd
Glenview, IL 60026

Phone: 224.521.9527
Facebook: American College of Chest Physicians
Twitter: @accpchest
Pinterest: American College of Chest Physicians

Danish Lung Association (Denmark)

Website available in Danish only.

EGFR Resisters

A community of people living with and/or personally affected by EGFR+ lung cancer who are working to transform this disease into a manageable, chronic condition.

Facebook: EGFR Resisters
Twitter: @EGFRResisters

The European Lung Foundation (ELF – UK)

ELF was founded by the European Respiratory Society (ERS) in 2000 with the aim of bringing together patients, the public and respiratory professionals to positively influence respiratory medicine.

European Lung Foundation
442 Glossop Road
Sheffield, S10 2PX, UK

Phone: +

Twitter: @EuropeanLung
Facebook: European Lung Foundation
YouTube: European Lung Foundation

Exon 20 Group (USA)

The Exon 20 Group is dedicated to supporting patients with EGFR, HER2 or other Exon 20 mutations as well as expediting exon 20-targeted drugs into—and through—clinical trials, to benefit patients and the global oncology community. To that end, the Exon 20 Group will work to accelerate the discovery and the rapid approval of promising exon 20-targeted agents—along with immunotherapeutic agents—and rapidly cycle those agents into multiple combination clinical trials. Ultimately, the group also seeks to help establish best practices for the use of tissue and liquid biopsy in exon 20 patients.

ICAN, International Cancer Advocacy Network
Attention: Exon 20 Group
27 West Morten Avenue
Phoenix, AZ 85021-7246

Phone: 602.618.0183

Global Lung Cancer Coalition

The Global Lung Cancer Coalition (GLCC) is the international voice of lung cancer patients. It is composed of non-government patient organizations from 28 countries. The GLCC is committed to improving disease outcomes for lung cancer patients by placing lung cancer on the global healthcare agenda, changing public perceptions and decreasing the stigma of lung cancer, empowering lung cancer patients to take an active role in their care, and effecting change in legislative or regulatory policies to optimize treatment and care.

Phone: 0044.333.323.7200
Twitter: @globalungcancer
Facebook: Global Lung Cancer Coalition

GO2 Foundation for Lung Cancer

Two of the most effective and influential nonprofit organizations serving the lung cancer community, the Bonnie J. Addario Lung Cancer Foundation (ALCF) and the Lung Cancer Alliance (LCA) have proudly joined forces as GO2 Foundation for Lung Cancer. Founded by patients and survivors, they are transforming what it means to live with lung cancer and increase the survival rate of the world’s number one cancer killer.

GO2 Foundation for Lung Cancer
San Francisco Bay Area
1100 Industrial Road, Suite 1
San Carlos, CA 94070
Phone: 650.598.2857

GO2 Foundation for Lung Cancer
Washington DC
1700 K Street, NW, Suite 660
Washington, DC 20006
Phone: 202.463.2080

Phone: 800.298.2436
Twitter: GO2Foundation

International Association for the Study of Lung Cancer (IASLC)

The IASLC Foundation exists to help fund the next great advances in lung cancer research and treatment. They are helping lung cancer patients live longer, better, and healthier lives.

13100 East Colfax Ave., Unit 10
Aurora, Colorado, 80011

Phone: 1.855.GO.IASLC
Twitter: @IASLC
Facebook: International Association for the Study of Lung Cancer
Instagram: @iaslc.lung
YouTube: IASLC

Japanese Lung Cancer Society

The Japanese Lung Cancer Society was first established in 1960 with their main mission to help promote diverse research on lung cancer and its related fields, as well as helping to diffuse knowledge and understanding of the disease among society.


Lung Foundation Australia

The objective of the Kylie Johnston Lung Cancer Network is to empower lung cancer patients, their families and caregivers with reliable and up-to-date information and support.

Level 2, 11 Finchley Street
Milton Qld 4064

Phone: 07.3251.3600
Twitter: @LungFoundation
Facebook: Lung Cancer Network Australia
YouTube: Lung Foundation Australia

La Asociación Española Contra el Cáncer (Spain)

Website available in Spanish only.

Longkanker Informatiecentrum (Netherlands)

Website available in Dutch only. (USA)

275 Seventh Avenue, 22nd Floor
New York, NY 10001

Phone: 800?813?HOPE (4673)

The Lung Cancer Action Network (USA)

The Lung Cancer Action Network (LungCAN) is a collaborative group of lung cancer advocacy organizations that have come together to raise public awareness about the realities of lung cancer. Their intention is to increase funding for detecting, treating, and curing the disease.

Twitter: @LungCAN
Facebook: Lung Cancer Action Network

Lung Cancer Europe

The Lung Cancer Europe is the voice of lung cancer patients, their families and survivors at a European level and it aims to raise awareness for lung cancer. LuCE provides a European platform for already existing lung cancer patient advocacy groups and supports the establishment of national lung cancer patient groups in different European countries where such groups so not yet exist.

c/o ETOP
3008 Bern

Facebook: Lung Cancer Europe
Twitter: @LungCancerEu

Lungekreftforeningen (Norway)

Website available in Norwegian only.

LUNGevity Foundation (USA)

LUNGevity is the USA’s leading lung cancer-focused nonprofit. They are changing outcomes for people with lung cancer through research, education, and support.

Chicago Office
228 S. Wabash Avenue, Suite 700
Chicago, IL 60604
Phone: 312.407.6100

Bethesda Office
6917 Arlington Road, Suite 352
Bethesda, MD 20814
Phone: 240.454.3100

Twitter: @LUNGevity
Facebook: LUNGevity Foundation
YouTube: LUNGevity Foundation
Pinterest: LUNGevity Foundation
Instagram: @lungevity

Lung Cancer Foundation of America (USA)

LCFA’s mission is the dramatic improvement in survivorship of lung cancer patients through the funding of transformative science, with the ultimate goal of curing the disease. To accomplish this, LCFA will work to raise both the funds and the national profile of lung cancer in order to substantially increase support of innovative and groundbreaking research efforts.

15 S. Franklin Street
New Ulm, MN 56073

Phone: 507.354.1361
Facebook: LCFA
Twitter: @lcfamerica
YouTube: LCFAmerica

Lung Cancer Initiative of North Carolina (USA)

Lung Cancer Initiative of North Carolina specializes in connecting patients, survivors and loved ones with the medical and research community. Their mission is to save lives and provide support to those affected by lung cancer through research, awareness, education and access programs across North Carolina.

4000 Blue Ridge Road, Suite 170
Raleigh, NC 27612

Phone: 919-784-0410
Facebook: Lung Cancer Initiative of NC
Twitter: @LCInitiativeNC
Instagram: @nclungcancer

Lung Cancer Research Foundation (USA)

LCRF’s mission is to improve lung cancer outcomes by funding research for the prevention, diagnosis, treatment and cure of lung cancer. In addition to research, LCRF focuses on lung cancer awareness and educational programs.

New York Office
155 East 55th Street, Suite 6H
New York, NY 10022
Phone: 212.588.1580

Madison, WI Office
1 Point Place, Suite 202
Madison, WI 53719
Phone: 608.833.7905

Twitter: @lcrf_org
Facebook: Lung Cancer Research Foundation
Instagram: @lungcancerresearchfoundation

NA VDIH (Slovenia)

Website available in Slovenian only.

Pulmonale (Portugal)

Website available in Portuguese only.

Respirando con valor (Mexico)

Website available in Spanish only.

The ROS1ders

The ROS1ders are a group of patients and caregivers dealing with ROS1+ cancer. We strive to better outcomes for all ROS1+ cancers by:
–Supporting patients and caregivers,
–Increasing awareness and education,
–Accelerating research, and
–Improving access to effective diagnosis and treatment.

Twitter: The Ros1ders

Roy Castle Lung Cancer Foundation (UK)

The Roy Castle Lung Cancer Foundation gives help and hope to people affected by lung cancer. It does so by funding research, implementing preventative measures (including helping people quit smoking), campaigning for better outcomes for lung cancer patients, raising awareness for early diagnosis, running lung cancer support groups and offering telephone and online support.

Old Hall Street
L3 9LQ Liverpool
United Kingdom

Phone: 0333.323.7200

Twitter: @Roy_Castle_Lung
Facebook: Roy Castle Lung Cancer Foundation
YouTube: Roy Castle

UK Lung Cancer Coalition (UK)

The United Kingdom Lung Cancer Coalition (UKLCC) is a partnership of charities, clinicians, senior National Health Service professionals and healthcare companies with a commitment to lung cancer survival.

Red Hot Irons Ltd
Maria House, 1683b
High St, Knowle
Solihull, B93 0LL

Phone: 01675.477605
Twitter: @UKlungcancer
Facebook: UKLCC

Upstage Lung Cancer (USA)

This group’s aim is to use musical and theatrical entertainment to raise funds to accomplish their mission. The group is comprised of lung cancer survivors, friends and family, physicians, and members of the arts community.

Phone: 617.835.9722
Facebook: Upstage Lung Cancer
Twitter: @UpstageLungCanc
Instagram: @upstagelungcancer

Women Against Lung Cancer in Europe

WALCE’s primary aim is to make women aware about the significant increase of lung cancer in female gender and to provide and disseminate information about the disease in terms of prevention, diagnosis and treatment focusing the attention on the leading role of women as caregivers. It is involved in advocacy, education and support initiatives for people affected from lung cancer and for their families.

Phone: +39.011.9026980

Twitter: @WalceOnlus2006
Facebook: Walce Onlus
YouTube: Walce Onlus