The following is an announcement from CORD The Canadian Organization for Rare Disorders is looking for passionate, creative, committed, qualified people to join our Board of Directors for the 2023-2026 term to help guide our organization to meet the needs of the rare disease community. CORD wishes to invite interested candidates to submit their application to join the Board of Directors for 2023-2026 term. We are particularly
Category: News
Cancer Control is Cancer Screening
The idea of being able to control cancer seems far-fetched. After all, it is the largest killer in the world, a highly complex catch-all for several diseases. Even preventative measures are not guaranteed to work, and containing even small tumours requires the work of a team of oncologists with the support of nurses and laboratories and other healthcare infrastructure. So when I asked our CEO,
What to Know about Hemophilia and Cancer
Cancer on its own is challenging, but the health problems associated with it add layers of difficulty to the journey. Hemophilia is just one of these disorders that cancer patients must contend with that can complicate their care. Simply put, hemophilia is when blood does not properly clot. The largest risk is during surgery or injury, when bleeding fails to stop and can be life-threatening.
Cancer Can’t Wait Lands in Saskatchewan
The Canadian Cancer Survivor Network has brought our All-Party Cancer Caucus to Saskatchewan! We hosted the meeting in the province’s legislative building in Regina on April 3rd. In our meeting, we shared stories, viewed data, and heard arguments on the future of cancer care in Saskatchewan. CCSN staff were on hand, including our Public Policy Coordinator, Connor Mulders, our Community Engagement Manager, Lindsay Timm, as
Our Long-COVID Survey Still Needs Your Input
Alarm bells are sounding around Long-COVID and the impact it has had to our healthcare system and our country as a whole. While study of the condition is limited, we here at the Canadian Cancer Survivor Network want you to help us understand its impact on cancer patients. We have had an outpouring of support already. People from all across the country have been telling
Health Canada Announces Investments to Support Access to Drugs for Rare Diseases
The following is a press release from Health Canada Today, the Government announced a total investment of up to $1.5 billion over three years in support of the first-ever National Strategy for Drugs for Rare Diseases to help increase access to, and affordability of, promising and effective drugs for rare diseases to improve the health of patients across Canada. As part of this overall investment,