Help the WHO test and improve the MedSafe app!
The MedSafe app, an initiative of the World Health Organization, seeks to educate patients and the general public through the 5 key moments where your action can reduce the risk of medication-related harm. The app is free and could be very helpful to patients. In order to help, simply download the app from the App Store or Google Play Store, and leave a review once you've used it.
Share your feedback for the development of new clinical trials regulations
Health Canada is seeking feedback on what they should consider in developing new clinical trials regulations as well as implementing the pathway for Advanced Therapeutic Products. They want to hear from patients & consumers, academics, industry, NGOs, and any other interested parties. Send an email to hc.hpfb.engagement-
mobilisation.dgpsa.sc@canada. ca to request the consultation questions by email before August 30th, 2019!
Take part in research to advance the science of cancer survivorship!
If you are a cancer survivor who was diagnosed with lymphoma, breast cancer, colorectal cancer, or head and neck cancer within the last 5 years, you are eligible to participate in this research initiative. Cancer survivors provide a unique perspective, which can help inform this committee of recommendations for cancer rehabilitation.
You can help inform treatment recommendations!
The Save Your Skin Foundation has launched a survey in preparation for an upcoming patient submission on Libtayo/Cemiplimab in the treatment of cutaneous squamous cell carcinoma (SCC). If you are an SCC patient who was treated with Libtayo/Cemiplimab, you are invited to fill out this survey. Your input will be a useful patient perspective to help inform treatment recommendations to the CADTH Common Drug Review (CDR) and to pan-Canadian Oncology Drug Review (pCODR).
Help shape policy to prevent mitochrondrial diseases in Canada
A study being conducted at McGill university is looking for participants not affected by mitochondrial diseases to discuss their perspectives related to policy and decision-making for preventing mitochondrial diseases in Canada. For more details, contact email@example.com
Study regarding quality of follow-up care for cancer survivors
This study is seeking 10-12 cancer survivors, as well as friends/family/caregivers from across Canada to participate in one phone call to discuss 1) your thoughts on and experiences with follow-up care for cancer, 2) what you think are the most important issues being faced by cancer survivors and 3) how do you think these issues might be addressed. If you are interested, please contact Margaret Jorgensen before December 31st, 2019. She can be reached at 902-473-7290 or Margaret.firstname.lastname@example.org
Share your perspective in a national study on colorectal cancer research!
Impacted by colorectal cancer? Patients, caregivers, and health care providers can answer this online survey. We want to know your ideas about NEW research that is needed to improve the lives of those living with and beyond a diagnosis of stage I-III colorectal cancer.
Take part in a study looking at the use of strengthening exercise for older adults in BC hospitals!
2-3 patient partners are invited to join a team of physical therapists in a project supporting the use of exercise to maintain and improve muscle strength for older adults in BC hospitals. If you are 65+ and have been a patient in a BC hospital, this could be a good fit for you. You can choose how long, how often, and to what extent you wish to participate. You can participate from anywhere in BC, and will have scheduled phone and email correspondence. This project is not supported financially and therefore your contributions cannot be compensated monetarily. If you are interested in finding out more, please contact Alison Hoens at email@example.com or 604.812.1271
Getting It Right for Patients: Canada’s 1st National Pharmacare Plan
In the months leading up to the federal election, the Canadian Organization for Rare Disorders and the Consumer Advocare Network will have surveys to engage the public on some of the important “details” they want to see— or not see— in a National Pharmacare Plan. Please take 5 minutes to answer the first survey on Developing a National Formulary (Drug List). You can also stay tuned for our Webinar to be held in the last week of June.
Lend your voice to a study examining health behaviours in cancer survivors!
Would you like to help with academic research that examines health behaviours in cancer survivors? Would you like to enter a draw to win one of ten $30 VISA gift cards? Complete a brief (20 - 25 minute long) anonymous online survey! To be eligible you must: - Have had a cancer diagnosis within the last 10 years - Be 18 years of age or older Click here to start the survey! For more information, contact: Kristina Karvinen, PhD Email: firstname.lastname@example.org
Consultation of Draft Guidance Documents: Identifying and Labelling Medicinal Ingredients, Generic Drug Equivalence: Medicinal Ingredients
Health Canada is proposing amendments to the Food and Drug Regulations that would provide greater clarity to the pharmaceutical industry on criteria for which regulatory pathway to follow when filing generic drug submissions to Health Canada. Follow the link to learn more.
UBC study seeks to interview those who have taken part in a trial of a prescription drug
Many trials are never published, and researchers would like to hear what trial participants think about it. Those interested in participating or finding out more information about the Inside Trials Study can contact co-Investigator Richard Morrow at email@example.com.
PSA tests for Ontario – Send A Letter!
The PSA test is a simple blood test that can detect prostate cancer. But Ontario doesn’t fund it. Take a few moments to show your support for funding the PSA test by contacting your MPP. Here's your opportunity to be heard. Your voice will make a difference.
Sleep Study in Prostate Cancer Patients
This is a survey by the University of Otago in New Zealand to determine how lifestyle (e.g., sleep hygiene, exercise), physical (e.g., weight gain, fatigue) and psychosexual (e.g., anxiety, depression, sexual activity) factors are associated with sleep disturbance in prostate cancer patients and their partners. The study is open to all prostate cancer patients regardless of location or treatment. The survey takes about 45 minutes to complete.
STUDY NOTICE – Seeking participants for a survey on peer support in cancer
Princess Margaret Cancer Centre is conducting a study with Adolescents and Young Adults (AYA) in Canada with cancer to understand their needs and preferences for peer support and interest in using a digital app to connect with peer cancer survivors. If you were diagnosed with cancer between 15 and 39 years of age, please complete the following online 25 minute survey for a chance to win a $100 VISA Gift Card! http://bit.do/Connect4Health
Right2Survive – Share Your Voice and Your Story
Despite being the number one cancer killer in Canada, outcomes in lung cancer lag behind other cancers. We can do more. Lung cancer patients deserve a chance to become cancer survivors. Share your survivor story and add your name to stand with cancer survivors.
Liver Cancer Survivors Physical Activity Survey
Researchers from the University of Toronto are conducting an online study on the exercise programming preferences of adult liver cancer survivors. The online survey takes 45-60 minutes to complete. You must be 18 or older to participate. The goal of this research is to understand how we can best design physical activity programs to support liver cancer survivors. Questions? Contact 416-946-3624 or email Dr. Linda Trinh at firstname.lastname@example.org
Take the All.Can Cancer Patient Survey!
You CAN help to shape the future of cancer care! Take this short patient survey to help us gather insights on where gaps and waste occur, and how cancer care could be improved.
Share Your Thoughts: Help KCA Uncover Unmet Needs In Kidney Cancer/RCC
The Kidney Cancer Association (KCA) would like to learn more about your experience after undergoing surgery for kidney cancer/renal cell carcinoma (RCC) in order to uncover unmet needs in education, resources and treatment.
Building A Voice for Primary Liver Cancer Patients & Caregivers in Canada
Has liver cancer affected you or someone you know? The Canadian Cancer Survivor Network is looking for patients, caregivers, families, clinicians and others affected by hepatocellular carcinoma (HCC), the most common form of primary liver cancer.
ON & QC Volunteers Needed for Study on Self-Care After Cancer
A McGill University-Princess Margaret Cancer Centre research team is offering free self-care tools (relaxation/mindfulness CDs/MP3s & cognitive behavioral therapy skills-enhancing workbooks) as well as telephone coaching to eligible persons aged 18 and over in a study funded by the Canadian Cancer Society.
Sleep Well Study with The Ottawa Hospital
A study on the effectiveness of an online treatment for insomnia. The Ottawa Hospital is looking for participants with insomnia who have completed cancer treatments.
The MATCH Study: Now Recruiting!
A ground-breaking new study measuring the effects of Mindfulness Meditation and Tai Chi/Qigong on quality of life for cancer survivors.
PROSTAID Calgary’s 2018 Symposium
Cancer is one of the world’s most pressing health care challenges. PROSTAID Calgary’s Cancer Advocacy Symposium will create an interactive and collaborative forum between Alberta politicians and policymakers, and Alberta’s cancer community. This call for volunteers is an opportunity to come together in a collaborative setting to discuss the most pressing issues facing Alberta’s healthcare system.