2018 Webinar Series

The CCSN webinar series is of interest to patients, survivors, family, friends, caregivers, and any member of the community interested in the best possible care and follow-up for cancer patients and survivors.  The impact of volunteering and taking positive action to effect change are important elements in the transition to post-treatment life.


Advocating in Person

Date held: October 18th, 2018
Presented by: Ryan Clarke, Advocacy Solutions

Webinar Information:

In his presentation, advocacy guru Ryan Clarke (Advocacy Solutions) walked through the steps to prepare for in-person meetings as an advocate for your cause. Topics include how to land the meeting, preparing a strategy and agenda, how to present your message and following up afterwards.

The webinar was followed by an interactive question & answer session.

To view a copy of the slides, please click here.


Breast Cancer: Screening, Prevention & The Importance of Breast Density

Date held: October 16th, 2018
Presented by: Dr. Paula Gordon

Webinar Information:

Dr. Gordon discusses how to decrease the risk of getting breast cancer, factors that influence risk and methods to find it as early as possible. This webinar was co-hosted by our partners at Dense Breasts Canada, and there is a particular focus on the importance of knowing your breast density.

About our presenter:
Dr. Paula Gordon is Clinical Professor at the University of British Columbia, and works full-time as breast radiologist, reading screening and diagnostic mammograms and performing image-guided breast biopsies. She is passionate about finding breast cancer early to decrease deaths from breast cancer and allow less aggressive treatment.

The webinar was followed by an interactive question & answer session.


Liver Cancer 101 Causes, Treatments, Innovations & Access

Date held: October 4th, 2018
Presented by: Dr. Mamatha Bhat, Dr. Amol Mujoomdar & Dr. Gregory Powell

Webinar Information:

CCSN was joined by Dr. Mamatha Bhat (Hepatologist at University Health Network in Toronto), Dr. Amol Mujoomder (Interventional Radiologist at London Health Sciences Centre) and Dr. Gregory Powell (HCC patient & founder of Shock Trauma Air Rescue Services Foundation) for a webinar surrounding Hepatocellular Carcinoma (HCC), the most common form of primary liver cancer.

Our presenters defined what HCC is, discussed the current landscape for treatments and prognosis as well as new/innovative treatments, and insights from a liver cancer patient. The webinar also addressed concerns regarding lack of access and funding for life-saving treatments for liver cancer.

This webinar was moderated by CCSN, and included an interactive question and answer session.

To view a copy of the slides, please click here.


Cancer Rehab: A Reality in Canada?

Date held: September 20th, 2018
Presented by: Dr. Jennifer Jones with Stephanie Phan & CCSN staff

Webinar Information:

Statistics show that as of 2017, more than one million Canadians have survived cancer for more than 10 years. Yet, the physical rehabilitation needs of cancer survivors in Canada have received little attention and few services. Dr. Jennifer M. Jones, PhD, is a senior Scientist and Director of the Cancer Rehabilitation & Survivorship Program at the Princess Margaret Cancer Centre in Toronto. Along with her colleague Stephanie Phan, Clinical Lead for the program, they provided an overview of her program, one of the best in the world and the only one of its kind in Canada.

Canadian Cancer Survivor Network staff Allison MacAlister and Jaymee Maaghop joined in the conversation to discuss the current national landscape, and what CCSN is doing to raise awareness for cancer rehabilitation in Canada.

The webinar was followed by an interactive question and answer session.

To view a copy of the slides, please click here.


Why Patient Engagement is Imperative: Implications for research, healthcare, and ourselves

Date held: September 6th, 2018
Presented by: Maxime Lê with Claudia Hampel

Webinar Information:

Maxime Lê is a graduate of health sciences from the University of Ottawa that has worn many hats for many roles. Chief among them is being a patient advisor for The Ottawa Hospital. Having frequently been a patient and having a passion for health and healthcare, he decided to get involved at The Ottawa Hospital to help improve care, research and advocate for patients. Maxime, while sharing his hands-on experience and insights, answered the questions that healthcare providers, researchers, or prospective patient advisors may have, such as: ”What does it mean to be a patient advisor?”, ”Why is it important?”, and ”What impact does it have?”.

The webinar was followed by an interactive question and answer session.

To view a copy of the slides, please click here.


Ned: Innovative Technology for Prostate Cancer Patients

Date held: July 5, 2018
Presented by: Dr. Andrew Feifer

Webinar Information:

We welcomed Dr. Andrew Feifer for a presentation about Ned, an app designed specifically for prostate cancer patients, as well as a discussion about the incorporation of data driven smart technology in the survivorship of cancer patients.

The webinar was followed by an interactive question & answer session.

Ned was conceptualized and co-founded by our webinar presenter: Dr. Andrew Feifer, a Urologic Surgical Oncologist at Trillium Health Centre in Toronto. Dr. Feifer evisioned a tool that would empower prostate cancer survivors by putting their health into their own hands and giving them more options to manage their own care.

To view a copy of the slides, please click here.


Staying Mindfully Connected and Experiencing Intimacy after a Cancer Diagnosis

Date held: June 28, 2018
Presented by: Dr. Gabriela Ilie, Dalhousie University

Webinar Information:

This webinar discusses key elements of how to stay connected, experiencing positive emotions and close relationships after a cancer diagnosis including side effects from treatment resulting in erectile dysfunction, reviewing evidence from neuroscience on data related to meditation and intimacy, and learning practical ways to live an authentic life connected with those you love.
Please note that due to the sensitivity of the question period, we removed the Q&A panel from this recording.

To view a copy of the slides, please click here.


CAR T-Cell Therapy

Date held: May 31, 2018
Presented by: Dr. Jim Whitlock, Hospital for Sick Children

Webinar Information:

A novel cancer treatment that engineers our own immune cells to kill cancer.
Dr. Jim Whitlock explains Chimeric Antigen Receptor T-cell (CAR-T) therapy, and the emerging challenges and concerns related to its use within the scope of Childhood Acute Lymphoblastic Leukemia.
The webinar was followed by an interactive question and answer session.

The slide deck for this webinar is not available.


Effective Advocacy Strategies

Date held: May 3, 2018
Presented by: Ryan Clarke, Advocacy Solutions

Webinar Information:

CCSN welcomed back Ryan Clarke of Advocacy Solutions for an in-depth webinar on best advocacy practices.
Topics covered include types of advocacy, the essence and cornerstones of effectiveness and how to develop an impactful plan to get your message across.
The webinar was followed by a brief question and answer session.

To view a copy of the slides, please click here.


Radical Remissions: What we can learn from remarkable cancer survivors about how to live

Date held: April 19, 2018
Presented by: Dr. Rob Rutledge, Oncologist

Webinar Information:

Oncologist Dr. Rob Rutledge reviewed the book Radical Remissions: Surviving cancer against all odds by Kelly Turner, PhD, and the nine key attitudes and behaviours found in people who have undergone a spontaneous remission. Though not promising a cure, Dr. Rutledge shows there is much wisdom in adopting this proactive approach to a cancer diagnosis which can profoundly improve one’s health and happiness.

To view a copy of the slides, please click here.


Improving Access to Innovative Cancer Therapies in Canada

Date held: April 5, 2018
Presented by: Robin Markowitz (CEO) and Elizabeth Lye (Scientific Advisor) from Lymphoma Canada

Webinar Information:

Robin Markowitz and Elizabeth Lye from Lymphoma Canada discussed recent pCODR drug funding requests for innovative cancer therapies and how negative funding recommendations are affecting patient access to effective new treatments. To read the white paper discussed in this webinar, visit our website: http://bit.ly/2q8duxM

To view a copy of the slides, please click here.


Bringing Rare Disease Drugs to Canada Opportunities, Challenges, and More Challenges

Date held: March 21, 2018
Presented by: Bill Dempster of 3Sixty Public Affairs

Webinar Information: 

This webinar was an interactive live webcast from the Canadian Organization for Rare Disorders’ Rare Disease Day event in Ottawa.
The session was moderated by 3Sixty Public Affairs’ Bill Dempster, who was joined by several Canadian experts in pharmaceutical access, including a former director of the Ontario Public Drug Programs. This discussion reviewed the current state of public reimbursement for orphan medicines and examined how the emerging discussions about a new national pharmacare program will affect patient access to these medicines.
The session was followed by an interactive question and answer session.

To view a copy of the slides, please click here.


Anal & Colorectal Cancer

Date held: March 8, 2018
Presented by: Helene Hutchings of Anal Cancer: A Bum Rap

Webinar Information: 

CCSN welcomed back Helene Hutchings to discuss anal and colorectal cancer in this educational webinar. Helene discussed the symptoms & risk factors of these cancers, as well as treatment options that are available. She also discussed prevention of anal and colorectal cancers and the benefits of peer-to-peer support groups.

To view a copy of the slides, please click here.


The importance of clinician engagement in the HTA process

Date held: January 23, 2018
Presented by: Bill Dempster with Alexandra Chambers & Dr. Craig Earle

Webinar Information: 

Join Alexandra Chambers & oncologist Dr. Craig Earle with CADTH’s pan-Canadian Oncology Drug Review (pCODR) as they discuss the opportunities for clinicians to participate in the process and be part of the system, and how clinician input can help to inform cancer drug funding recommendations to enhance patient outcomes for Canadians. 3Sixty Public Affairs’ Bill Dempster moderated this interactive webinar that included opportunities for participants to participate in polling and ask questions.

To view a copy of the slides, please click here.

 


Federal pharmaceutical pricing reform: What do patients think?

Date held: January 18, 2018
Presented by: Bill Dempster with Louise Binder & Martine Elias

Webinar Information: 

Bill Dempster & guests Louise Binder & Martine Elias discussed the updates to the federal pharmaceutical price reform proposal, how patient leaders are responding and what steps they are taking to ensure that patients are being heard by decision makers.

To view a copy of the slides, please click here.