2018 Webinar Series

The CCSN webinar series is of interest to patients, survivors, family, friends, caregivers, and any member of the community interested in the best possible care and follow-up for cancer patients and survivors.  The impact of volunteering and taking positive action to effect change are important elements in the transition to post-treatment life.

CAR T-Cell Therapy

Date held: May 31, 2018
Presented by: Dr. Jim Whitlock, Hospital for Sick Children

Webinar Information:

A novel cancer treatment that engineers our own immune cells to kill cancer.
Dr. Jim Whitlock explains Chimeric Antigen Receptor T-cell (CAR-T) therapy, and the emerging challenges and concerns related to its use within the scope of Childhood Acute Lymphoblastic Leukemia.
The webinar was followed by an interactive question and answer session.

Effective Advocacy Strategies

Date held: May 3, 2018
Presented by: Ryan Clarke, Advocacy Solutions

Webinar Information:

CCSN welcomed back Ryan Clarke of Advocacy Solutions for an in-depth webinar on best advocacy practices.
Topics covered include types of advocacy, the essence and cornerstones of effectiveness and how to develop an impactful plan to get your message across.
The webinar was followed by a brief question and answer session.

Radical Remissions: What we can learn from remarkable cancer survivors about how to live

Date held: April 19, 2018
Presented by: Dr. Rob Rutledge, Oncologist

Webinar Information:

Oncologist Dr. Rob Rutledge reviewed the book Radical Remissions: Surviving cancer against all odds by Kelly Turner, PhD, and the nine key attitudes and behaviours found in people who have undergone a spontaneous remission. Though not promising a cure, Dr. Rutledge shows there is much wisdom in adopting this proactive approach to a cancer diagnosis which can profoundly improve one’s health and happiness.

Improving Access to Innovative Cancer Therapies in Canada

Date held: April 5, 2018
Presented by: Robin Markowitz (CEO) and Elizabeth Lye (Scientific Advisor) from Lymphoma Canada

Webinar Information:

Robin Markowitz and Elizabeth Lye from Lymphoma Canada discussed recent pCODR drug funding requests for innovative cancer therapies and how negative funding recommendations are affecting patient access to effective new treatments. To read the white paper discussed in this webinar, visit our website: http://bit.ly/2q8duxM

Bringing Rare Disease Drugs to Canada Opportunities, Challenges, and More Challenges

Date held: March 21, 2018
Presented by: Bill Dempster of 3Sixty Public Affairs

Webinar Information: 

This webinar was an interactive live webcast from the Canadian Organization for Rare Disorders’ Rare Disease Day event in Ottawa.
The session was moderated by 3Sixty Public Affairs’ Bill Dempster, who was joined by several Canadian experts in pharmaceutical access, including a former director of the Ontario Public Drug Programs. This discussion reviewed the current state of public reimbursement for orphan medicines and examined how the emerging discussions about a new national pharmacare program will affect patient access to these medicines.
The session was followed by an interactive question and answer session.

Anal & Colorectal Cancer

Date held: March 8, 2018
Presented by: Helene Hutchings of Anal Cancer: A Bum Rap

Webinar Information: 

CCSN welcomed back Helene Hutchings to discuss anal and colorectal cancer in this educational webinar. Helene discussed the symptoms & risk factors of these cancers, as well as treatment options that are available. She also discussed prevention of anal and colorectal cancers and the benefits of peer-to-peer support groups.

The importance of clinician engagement in the HTA process

Date held: January 23, 2018
Presented by: Bill Dempster with Alexandra Chambers & Dr. Craig Earle

Webinar Information: 

Join Alexandra Chambers & oncologist Dr. Craig Earle with CADTH’s pan-Canadian Oncology Drug Review (pCODR) as they discuss the opportunities for clinicians to participate in the process and be part of the system, and how clinician input can help to inform cancer drug funding recommendations to enhance patient outcomes for Canadians. 3Sixty Public Affairs’ Bill Dempster moderated this interactive webinar that included opportunities for participants to participate in polling and ask questions.


Federal pharmaceutical pricing reform: What do patients think?

Date held: January 18, 2018
Presented by: Bill Dempster with Louise Binder & Martine Elias

Webinar Information: 

Bill Dempster & guests Louise Binder & Martine Elias discussed the updates to the federal pharmaceutical price reform proposal, how patient leaders are responding and what steps they are taking to ensure that patients are being heard by decision makers.