Webinar – What chronic disease advocacy can offer cancer survivors: recording and slides now available!

September 10, 2015
Click HERE to view the slides!

 

Click HERE to watch the recording!
 
What chronic disease advocacy can offer cancer survivors!
This webinar was titled What chronic disease advocacy can offer cancer survivors, and took place on Thursday, September 10 from 1:00pm EDT – 2:00pm EDT. During this webinar we were joined by moderators Gerry Jeffcott and Rachael Manion of 3Sixty Public Affairs, along with Gail Attara of the Gastrointestinal Society, Shelagh Ross of the Canadian Congenital Heart Alliance and Linda Wilhelm of the Canadian Arthritis Patient Alliance.

Webinar Information
This webinar addressed chronic disease advocacy. As prevention and treatment of cancer improves and survival rates increase, many survivors have to manage their condition as a chronic disease.  This new reality affects how they access health services and creates new issues and challenges for patients.
Insights were provided by a panel of representatives from other chronic disease patient advocacy organizations who will discuss how they interact with health systems, successfully advocate, and help each other through the ongoing journey of dealing with a chronic illness. More information on these panelists can be found below.
 
Panelist Information
Linda Wilhelm is the President of the Canadian Arthritis Patient Alliance (CAPA), which supports patients to advocate for themselves and the arthritis patient community by building links between them and other organizations, researchers and governments. She also participates in Health Canada expert advisory panels, is on the Best Medicines Coalition’s board of directors and is also a member of CIHR’s Drug Safety and Effectiveness Network’s steering committee.
 
Gail Attara is the President and CEO of the Gastrointestinal Society, which she co-founded. The GI Society provides information and advocates regarding a wide array of gastrointestinal and liver diseases and disorders. She is also the President of the Best Medicines Coalition and Co-Founder of Advocacy Boot Camp.
 
Shelagh Ross helped to found the Canadian Congenital Heart Alliance (CCHA) and has been actively involved in various capacities, including President and Executive Director. The CCHA is a grass-roots volunteer-based organization for patients with congenital heart disease (CHD) that focuses on raising awareness of CHD, providing peer support and mentoring, and advancing CHD-related research.
 
Moderator information

  • Gerry Jeffcott is a senior associate at 3Sixty Public Affairs who has almost 25 years of health and pharmaceutical policy experience.  He is a recognized expert in the Canadian reimbursement review and approval process for new medications and a sought after commentator on relevant policy questions.
  • Rachael Manion is a senior associate with 3Sixty Public Affairs who has a deep understanding of health services across Canada. She has a broad range of policy development experience and understands the importance of policy based on a solid and well- researched foundation. Rachael has a law degree and has been called to the bar in Ontario and British Columbia