Patient Group Engagement in Public Policy: the Convergence of Experience, Influence and Opportunity

CCSN President & CEO Jackie Manthorne was one of several speakers at the Ontario Lung Association Breathing Policy Forum on Patient Engagement in Public Policy held in Toronto on Sept. 18, 2019. During this forum on patient group engagement within the drug submission process and patient group engagement within national Pharmacare, Manthorne presented information about CCSN and the dozens of patient group submissions that CCSN

Register now for the fourth annual summit A Dose of Reality: Patients Redefining the Future of Health Care in Canada

Join the Save Your Skin Foundation, Schizophrenia Society of Ontario, Canadian Psoriasis Network and other patient groups for the fourth annual Summit titled: A Dose of Reality: Patients Redefining the Future of Health Care in Canada on Tuesday, November 12, 2019 at 8:00 AM and Wednesday, November 13, 2019 at 3:45 PM, at the Japanese Canadian Cultural Centre, located at 6 Garamond Court in Toronto.

Launch of #TellMe Manitoba Initiative

A new campaign called “Tell Me My Breast Density” has begun, and its goal is to inform politicians in the upcoming elections that breast density notification is a key part of healthcare. Dense breasts are one of the biggest risk factors for breast cancer, and yet in many provinces there are no programs in place to notify women of their breast density. Mammograms miss 50%

Revised ODSP Guidelines Could Pose a Threat to Cancer Patients

In November 2018, the Ontario government announced its intention to change the definition of disability in the Ontario Disability Support Program (ODSP) to “align more closely with federal government guidelines.” If it goes through, this change will threaten the health and well-being of the most vulnerable populations. To qualify for ODSP now, a person must have a physical or mental impairment that is continuous or

Co-Founder of Myeloma Canada Passes Away

We are saddened to report on the passing of Aldo Del Col, M.S.M., Co-founder of Myeloma Canada on August 6th, 2019, due to complications related to multiple myeloma. He leaves behind a valuable legacy of passion and determination. Aldo was diagnosed with myeloma in 2012, and it quickly became his mission to empower patients to “take a seat at the table” and get involved in

Highlights from ISMP Canada Safety Bulletin

The Institute for Safe Medication Practices Canada has released another issue of their safety bulletin. Here are some of the highlights: Mandatory reporting of serious adverse drug reactions and medical device incidents The Protecting Canadians from Unsafe Drugs Act, or Vanessa’s Law, which will go into effect in December of 2019, is intended to increase drug and medical device safety in Canada by strengthening Health