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Canadian Cancer Survivor Network/Learn/Issues Affecting Cancer Survivors/Survivorship Issues/Health Data Should Follow Patients

Health Data Should Follow Patients

Health data should follow the patient – Winnipeg Free Press

Learn

  • Cancer Types
  • Issues Affecting Cancer Patients
    • Asbestos and mesothelioma
      • The ABCs of asbestos
        • What is asbestos
        • The uses of asbestos
        • The pre-industrial history of asbestos
      • Mesothelioma
      • Federal regulations banning asbestos in Canada
      • How you can be exposed to asbestos
      • Mesothelioma organizations
        • Canadian asbestos and mesothelioma organizations
        • International asbestos and mesothelioma organizations
    • Blood clots and cancer
    • Bone metastases
    • Caregivers
      • How I Learned to Be A Cancer Caregiver
    • Chemo-induced nausea and vomiting (CINV)
      • Chemo-induced nausea and vomiting (CINV) resources
      • A patient charter for CINV management (UK)
      • What is chemo-induced nausea and vomiting?
      • Provincial resources for managing CINV
    • Clinical Trials
      • Biomarkers
    • Drug approval in Canada
      • Québec
      • Health Canada Health Products and Food Branch
      • pan-Canadian Oncology Drug Review (pCODR)
    • Drug pricing policy in Canada
      • Drug Pricing in Canada: mobilizing patients to action – Recap
      • PDF’s from 2016 Summit
    • Drug safety in Canada
    • Financial cost of cancer
      • Key Informant Interview: A View From the Front Lines
      • Work and Cancer
      • The Financial Hardship of Cancer in Canada: A Literature Review
      • Financial hardship of cancer in Canada: a call for action
      • Financial help
        • Newfoundland & Labrador
        • British Columbia
        • Alberta
        • Yukon
        • Saskatchewan
        • Quebec
        • Prince Edward Island
        • Ontario
        • Nunavut
        • Nova Scotia
        • Northwest Territories
        • New Brunswick
        • Manitoba
    • Genetic testing
      • Alberta
      • British Columbia
      • Manitoba
      • Maritime Provinces
      • Newfoundland and Labrador
      • Northwest Territories
      • Nunavut
      • Ontario
      • Quebec
      • Saskatchewan
      • Yukon
    • Febrile Neutropenia
    • HPV and cancer
      • Canadian organizations mark the first annual international HPV awareness day: Give love, not HPV
      • HPV vaccine expanded to include ‘at-risk’ boys
      • Key points for policy-makers and health professionals
      • WHO Information on Human papillomavirus (HPV) and cervical cancer
      • Human Papillomavirus and Related Cancers in Canada, Fact Sheet 2010
      • Reframing the debate
      • WHO/ICO Information Centre on Human Papilloma Virus (HPV) and Cervical Cancer
    • Insurance and cancer
    • LGBTQ+ issues
    • Lymphedema
      • Lymphedema Groups in Canada
      • International Lymphedema Groups
    • Medical Cannabis
      • Information on Medical Cannabis
        • Part One: Why Cannabis Works
        • Part Two: Medical Conditions & Products
        • Part Three: Accessing Medical Cannabis
        • Part Four: Medical Cannabis Myths & Facts
        • PDQ Cancer Information Summaries
          • History
          • Laboratory, animal and preclinical Studies
          • Human and clinical studies
          • Adverse effects
          • Summary of the evidence
          • About this PDQ summary
        • Medical Cannabis Infographics
        • Medicinal cannabis: Used throughout the ages for medicinal, therapeutic and religious purposes
        • Cannabinoids: The chemical components of cannabis
        • Potential therapeutic uses of medical cannabis
        • Medical cannabis strains
        • Cannabis contamination
        • Want to learn more about the science of medical cannabis?
        • Webinars & Slideshows
        • Glossary of terms
      • Medical Cannabis “How To”
        • How To: Tell the Difference Between Medical Cannabis & Medical Marijuana
        • How To: Use Medical Cannabis
        • How To: Talk to your Doctor about Medical Cannabis
        • How To: Travel with Medical Cannabis
      • Medical Cannabis in the Media
        • High Standards: A Blueprint for the Marijuana Market in Canada
        • Canada introduces legal access
        • Medical Cannabis podcasts
        • Further Readings
      • Patient Stories
      • Health Canada Reports Increasing Use Of Cannabis And Cannabis Vaporization
      • Canadian Cancer Survivor Network Submission : Task Force on Marijuana Legalization and Regulation
      • A Framework for the Legalization and Regulation of Cannabis in Canada
    • Tumour Agnostic Treatments and Companion Diagnostics
      • Companion Diagnostics in Canada
      • Tumour-Agnostic Treatments
    • Mental Wellness
    • New treatments
      • ALECENSARO® (alectinib) approved by Health Canada for first-line treatment of ALK-positive lung cancer
      • AstraZeneca, Merck score win with Lynparza approval for pancreatic cancer
      • First and Only Immuno-Oncology Treatment, Imfinzi® (durvalumab), for Stage III, Unresectable Non-Small Cell Lung Cancer Now Approved in Canada
      • Health Canada Approves ERLEADA™* (apalutamide tablets), the First Treatment for Men with Non-Metastatic Castration-Resistant Prostate Cancer
      • Health Canada Approves GAZYVA® for Previously Untreated Advanced Follicular Lymphoma
      • Health Canada approves Ipsen’s Somatuline® Autogel® for the treatment of carcinoid syndrome in adult patients with neuroendocrine tumours (NETs)
      • Health Canada approves KISQALI™ for the treatment of HR-positive and HER2-negative metastatic breast cancer in postmenopausal women in combination with letrozole as an initial endocrine-based therapy
      • Health Canada approves PERJETA® (pertuzumab) for the treatment of HER2-positive early breast cancer after surgery
      • Health Canada Approves Tagrisso® (osimertinib) as First-line Treatment for EGFR-Mutated Non-Small Cell Lung Cancer
      • Health Canada approves TECENTRIQ® (atezolizumab) for the treatment of patients with metastatic non-small cell lung cancer
      • Health Canada Approves XTANDI® (enzalutamide) – the First and Only Oral Treatment for Men with Non-Metastatic and Metastatic Castration-Resistant Prostate Cancer
      • Lynparza® (olaparib) Receives New Indication for BRCA-Mutated Metastatic Breast Cancer
      • Lynparza® (olaparib) tablets receive approval as maintenance therapy treatment for ovarian cancer regardless of BRCA status
      • Novartis receives Health Canada approval for the combination therapy of Tafinlar® (dabrafenib) plus Mekinist® (trametinib) for adjuvant treatment of patients with BRAF V600 mutation melanoma(i)
      • Only Immuno-Oncology Combination Therapy Approved by Health Canada as First-Line Treatment for Advanced or Metastatic Renal Cell Carcinoma
      • Health Canada Approves RITUXAN® Subcutaneous Formulation for Canadians with Chronic Lymphocytic Leukemia
      • Health Canada Approves New Indication for ZYTIGA®* (abiraterone acetate), Broadening its Use for Treatment of Newly Diagnosed Metastatic Prostate Cancer
      • Taiho Pharma Canada, Inc. announces Health Canada approval of LONSURF® (trifluridine and tipiracil tablets) for metastatic colorectal cancer
      • Tagrisso® (osimertinib) receives full Health Canada approval for targeted treatment of non-small cell lung cancer
      • Quebec and New Brunswick Become First Provinces to Provide Public Funding of IBRANCE™ for the First-Line Treatment of Metastatic Breast Cancer
    • Palliative Care
      • Palliative care services and resources
    • Prevention
      • Alcohol use
      • Vitamin D
      • Tobacco
      • Radiation
      • Prophylactic surgery and cancer prevention
      • Environmental pollution
      • Occupational carcinogens
      • Infections
      • Physical inactivity, dietary factors, obesity and being overweight
    • Research resources
    • Wait times in Canada
      • Wait Times – Fraser Institute Report December 2017
      • Wait Times Alliance Report Card 2014: Time to Close the Gap
      • Canadian Institute for Health Information
      • Wait Times in Canada— A Summary, 2012
      • Wait Times Alliance
      • Wait Times – Fraser Institute Report December 2016
      • Provincial and Territorial wait times
  • Issues Affecting Cancer Survivors
    • Survivorship Issues
      • Health Data Should Follow Patients
      • Anorexia
      • Brain Fog
      • Cardiovascular Changes
      • Deconditioning
      • Diabetes
      • Disfigurement and Amputation
      • Fatigue
      • Function and Mobility
      • Hair Loss (Alopecia)
      • Impotence
      • Urinary Incontinence
      • Infertility
      • Lymphedema
      • Mood disorders
      • Bone Loss
      • Ostomy
      • Pain
      • Post-Traumatic Stress Disorder (PTSD)
      • Secondary Malignancies and Recurrence
      • Swallowing and Speech
      • Work Productivity
    • Personal Experiences When Dealing With Cancer
      • Caregivers
      • Childhood cancer survivorship
      • Coping with fear
      • Nutrition
      • Post-cancer emotional growth
      • Pregnancy after cancer
      • Relationships and cancer
      • Sexual relations
      • Spirituality
      • Talking with your partner
      • Work and financial aspects of survivorship
    • Cancer Rehabilitation
      • Canadian Context
      • Gaps in Rehabilitation
      • Statistics Across Canada
        • Alberta
        • British Columbia
        • Manitoba
        • Nova Scotia
        • Nunavut
        • Ontario
        • Quebec
        • Saskatchewan
    • Living Healthy
    • Canadian Organizations
    • USA Organizations
  • Cancer Centres
    • Prince Edward Island
    • Yukon
    • Quebec
    • Ontario
    • Nunavut
    • Nova Scotia
    • Northwest Territories
    • Newfoundland and Labrador
    • Saskatchewan
    • New Brunswick
    • Manitoba
    • British Columbia
    • Alberta
  • Medicare
    • Newfoundland and Labrador
    • Alberta
    • Northwest Territories
    • Government of Canada
    • Nova Scotia
    • Nunavut
    • Ontario
    • Prince Edward Island
    • Quebec
    • New Brunswick
    • Saskatchewan
    • Yukon
    • Manitoba
    • British Columbia
  • Cancer Months
Canadian Cancer Survivor Network
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or email us at
info@survivornet.ca

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