{"id":27255,"date":"2023-02-28T14:24:17","date_gmt":"2023-02-28T19:24:17","guid":{"rendered":"https:\/\/survivornet.ca\/?post_type=news&p=27255"},"modified":"2023-02-28T14:39:47","modified_gmt":"2023-02-28T19:39:47","slug":"cord-et-rcsc-un-objectif-commun-pour-un-acces-rapide-et-equitable-aux-soins","status":"publish","type":"news","link":"https:\/\/survivornet.ca\/fr\/apprenez\/nouvelles\/cord-et-rcsc-un-objectif-commun-pour-un-acces-rapide-et-equitable-aux-soins\/","title":{"rendered":"CORD et RCSC : un objectif commun pour un acc\u00e8s rapide et \u00e9quitable aux soins"},"content":{"rendered":"

Canadian Organization for Rare Disorders<\/a> (CORD) et le R\u00e9seau Canadien des Survivants du Cancer (RCSC) ont un objectif commun lorsqu’il s’agit des soins prodigu\u00e9s aux Canada.<\/p>\n

La Journ\u00e9e Internationale des Maladies Rares souligne une cause commune \u00e0 nos deux organisations. Comme son nom l’indique, CORD d\u00e9fend les personnes atteintes d’une maladie rare qui, selon eux, touche un canadien sur 12. Mais, m\u00eame si les maladies rares affectent autant de personnes, chacune est diff\u00e9rente et l’expertise dans leur traitement peut \u00eatre limit\u00e9e.<\/p>\n

On sait aussi que les cancers rares sont particuli\u00e8rement difficiles \u00e0 combattre. Certains experts affirment que pr\u00e8s d’un cancer sur cinq diagnostiqu\u00e9 est rare et qu’un tiers de ces cancers sont consid\u00e9r\u00e9s comme particuli\u00e8rement rares. C’est en tout 200 types de cancer diff\u00e9rents, et ils repr\u00e9sentent 22 % de tous les cancers.<\/p>\n

Malgr\u00e9 ce nombre, il existe des traitements disponibles, mais ils ne parviennent malheureusement pas rapidement aux canadiens. Selon CORD, 60 % des traitements pour les maladies rares sont approuv\u00e9s au Canada. De plus, une fois approuv\u00e9s aux \u00c9tats-Unis ou en Europe, il faudra environ six ans pour que ces traitements puissent \u00eatre disponibles aux patients.<\/p>\n

Nos deux organisations ont travaill\u00e9 pour s’assurer que tout changement apport\u00e9 \u00e0 des institutions comme le Conseil d’examen du prix des m\u00e9dicaments brevet\u00e9s (CEPMB) cr\u00e9e un acc\u00e8s abordable \u00e0 ces m\u00e9dicaments. Les pr\u00e9occupations de CORD sont que l’objectif de r\u00e9duire le plus possible les prix des m\u00e9dicaments nuit \u00e0 leur disponibilit\u00e9 au Canada.<\/p>\n

La pr\u00e9valence de la recherche sur les cancers les plus courants, tels que le poumon, le sein, le c\u00f4lon ou la prostate, cr\u00e9e un retard dans la recherche sur les cancers rares. Souvent, les informations sur ces cancers rares sont difficiles \u00e0 obtenir, et les patients, les soignants et les survivants peuvent se sentir isol\u00e9s dans leur parcours. Il est toujours bon de parler de sa maladie avec des professionnels et des membres de sa famille, ainsi que de connecter avec d’autres personnes atteintes de la m\u00eame maladie par le biais d’un groupe de soutien ou d’un forum en ligne par exemple.<\/p>\n

Les maladies rares et les cancers peuvent \u00eatre uniques et individuels, mais ensemble, ils sont tout sauf rares. Avec plus de recherche et un meilleur acc\u00e8s aux traitements, notre compr\u00e9hension de ces maladies nous permettra d’avoir de meilleurs r\u00e9sultats et de comprendre pourquoi ils surviennent.<\/p>\n","protected":false},"excerpt":{"rendered":"

Canadian Organization for Rare Disorders (CORD) et le R\u00e9seau Canadien des Survivants du Cancer (RCSC) ont un objectif commun lorsqu’il s’agit des soins prodigu\u00e9s aux Canada. La Journ\u00e9e Internationale des Maladies Rares<\/p>\n","protected":false},"author":2,"featured_media":27264,"comment_status":"open","ping_status":"closed","template":"","tags":[],"news-category":[],"class_list":["post-27255","news","type-news","status-publish","has-post-thumbnail","hentry"],"acf":[],"yoast_head":"\nCORD et RCSC : un objectif commun pour un acc\u00e8s rapide et \u00e9quitable aux soins - Canadian Cancer Survivor Network<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/survivornet.ca\/fr\/apprenez\/nouvelles\/cord-et-rcsc-un-objectif-commun-pour-un-acces-rapide-et-equitable-aux-soins\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"CORD et RCSC : un objectif commun pour un acc\u00e8s rapide et \u00e9quitable aux soins - Canadian Cancer Survivor Network\" \/>\n<meta property=\"og:description\" content=\"Canadian Organization for Rare Disorders (CORD) et le R\u00e9seau Canadien des Survivants du Cancer (RCSC) ont un objectif commun lorsqu’il s’agit des soins prodigu\u00e9s aux Canada. 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