2021 Webinar Series

The CCSN webinar series is of interest to patients, survivors, family, friends, caregivers, and any member of the community interested in the best possible care and follow-up for cancer patients and survivors.  The impact of volunteering and taking positive action to effect change are important elements in the transition to post-treatment life.

Tumour Agnostic Treatments and the Future of Specialized Medicine: From a Clinician and Patient Perspective

Twenty years ago, Dr. Poul Sorensen discovered a gene mutation in a rare paediatric cancer, which has led to the development of a new drug that can target a variety of tumour types that originate in different parts of the body . This cancer type, known as TRK fusion cancer, occurs when the over-expression of a TRK fusion protein results in the growth of a tumour. Larotrectinib (Vitravki®) is an example of a tumour agnostic treatment, which targets tumours not according to their location in the body, but by targeting a certain property of the tumour cells, called a biomarker.

In this webinar, we will hear from Dr. Sorensen about his groundbreaking discovery and how it contributed to the development of tumour agnostic treatments. Dr. Zulfiqar, a medical oncologist at the BC Cancer Agency, will further discuss TRK fusion cancers and how he has been able to treat patients. Lastly, we will hear from Ted Taylor, a TRK fusion cancer patient diagnosed with glioblastoma (GBM) multiform being treated with Vitrakvi.

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HPV Prevention for Cancer Survivors | Featuring a Session on Reducing Stress and Anxiety with Mindfulness

This unique webinar will provide cancer patients, survivors, and caregivers with practical information about HPV prevention along with guidance on how to incorporate mindfulness and meditation into one’s lifestyle.

Dr. Durand will review the changing landscape of HPV-related diseases and cancers. We will discuss methods of HPV prevention for current cancer patients and cancer survivors. Attendees will learn about the evidence for HPV vaccination in adults. Practical tips will be provided on how to access HPV vaccination.

Abbey Morris will unpack the profound impact of mindfulness and meditation in reducing stress and anxiety. She will explain why mindfulness is so important, how we can fit it into our own lives in a way that works for us & practice a mindfulness exercise together to explore these strategies further. Throughout this presentation she will discuss ways to make this simple for us to bring into our day to day.

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CCSN’s Ontario Virtual Action Week: COVID-19 and Cancer Care – Wave 2

In April, CCSN virtually met with MPPs throughout Ontario to discuss our COVID-19 and Cancer Care – Wave 2 Survey. During these meetings, we discussed the difficulty cancer patients and pre-diagnosis patients have had with accessing cancer services during the pandemic and the importance of ensuring the cancer patients receive their 1st and 2nd vaccine doses in a timely manner.

In this webinar, CCSN’s Public Policy Analyst Conrad will begin by sharing some of the highlights from our meetings with Ontario MPPs. He will then turn things over to our patient advocates and they will share some of their reflections from our meetings as well as their own experiences with accessing cancer care during the pandemic. Lastly, Conrad will take a closer look at the Ontario data from our survey.

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What’s New in the Treatment of Gliomas (Brain Tumours): a Neuro-Oncologist’s Perspective

This presentation will highlight the promising new therapeutic strategies in the treatment of gliomas, with a focus on trials or therapies that will soon be available for Canadian patients.

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CCSN’s Virtual Action Week: Highlights from our Meetings with Alberta MLAs

During March, CCSN and patient advocates met with Alberta MLAs to discuss our COVID-19 and Care Care Disruption – Wave 2 Survey and the importance of prioritizing cancer patients in the vaccine rollout. In this webinar, we will hear from Tim Monds, a lung cancer patient advocate, share some outcomes from our meetings, discuss the key findings from our survey, and take a closer look at the Alberta data.

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Building Equitable Patient Partnerships with EMPaCT – identifying goals and opportunities

Join Alies Maybee, a patient partner, and Dr. Ambreen Sayani, a patient-oriented researcher as they talk about Equity-Mobilizing Partnerships in Community (EMPaCT) a patient partnership model co-designed to center the voices of diverse community members and build capacity for equitable patient-oriented partnerships. In this webinar, Alies and Ambreen describe how they engaged multiple stakeholders including institutional leadership, funding bodies, knowledge users and most importantly, the patient community to identify common goals and intersecting opportunities and channelled them to create clear health-equity oriented pathways to change.

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Nutrition Surveillance and Counselling for Cancer Survivors

In this webinar, Dr. Rogers discusses:

  1. Nutrition from a cancer control perspective
  2. The importance of continuous longitudinal nutritional assessment from diagnosis through survivorship
  3. The role of nutrition on the well being of cancer survivors and chronic disease prevention
  4. Incorporating nutritional research in survivorship research

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Drug Approval & Reimbursement Processes in Canada

In this webinar: 

1) Attendees will be provided with an overview of the drug approval and reimbursement processes.
2) People will be taken through a review of the updated CADTH patient group/clinician input processes.
3) Everyone will have a better understanding of how the processes are connected and flow into one another.

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Your Vaccine Questions Answered: COVID-19, Cancer & Immunocompromised Populations

In this webinar:

The Canadian Cancer Survivor Network and the Lung Health Foundation have collaborated to organize a webinar to address concerns that cancer patients and other immunocompromised populations may have about the COVID-19 vaccine. Our panel, which consists of an oncologist and infectious disease and vaccine experts, will discuss themes including: vaccine safety, efficacy, prioritization, and next steps.

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Let’s Talk Lymphedema

Date held: March 4, 2021

In this webinar:

Our presenters will talk about the work the LAO does, provide information about the causes and symptoms of lymphedema, and inform lymphedema patients on how to access help and support. They will also include the physiotherapist perspective and discuss what treatments are available.

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EXCEL: EXercise for Cancer to Enhance Living Well

Date held: February 25, 2021

In this webinar:

Attendees will learn about the role of exercise in the cancer care pathway, and the potential benefits from building a habit of moving more. We will also discuss the EXCEL study: EXercise for Cancer to Enhance Living Well, and how it is providing a sustainable exercise and behaviour change program to those living with cancer in rural and remote regions across Canada. Learn what is involved in this exercise research program and how to get involved online now!

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Who Does What in Canada’s Healthcare System

Date held: February 18, 2021

In this webinar:

1) Attendees will be provided with an overview of the structure of our healthcare systems.
2) People will be taken through a review of the Canada Health Act.
3) Everyone will have a better understanding of the intersection between delivery vs. financing in healthcare.

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Impact of COVID-19 Crisis on Cancer Patients and their Ability to Receive Treatment – Wave 2

Date held: February 4, 2021

In this webinar, CCSN and Leger presented the results of the COVID-19 and Cancer Care Disruption in Canada Survey – Wave 2.

In May-June, 2020, the Canadian Cancer Survivor Network (CCSN) commissioned Leger to conduct a national survey to evaluate the impact that COVID-19 has had on cancer patients, survivors, pre-diagnosis patients, and caregivers. The results of our first survey revealed that the pandemic response has triggered another public health crisis – the postponement and cancellation of essential cancer tests, procedures, and treatments.

CCSN commissioned Leger for a second survey in December, 2020 to evaluate the impact that the suspension of cancer services during the first wave is currently having on those who have been affected by cancer.

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How Government Works in Canada

Date held: January 21, 2021

In this webinar, attendees were provided with an overview of the structure of our federal/provincial governments. People were taken through a review of how citizens can engage our decision-makers and everyone was also given an understanding of the importance of advocacy in the context of elections.

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