A Moon Shot for Rare Disorders, Leave No One Behind

Objectives of Conference

  • Create a shared understanding of the patient journey and what “good” looks like
  • Mobilize all stakeholders around common vision for Rare Disease Canada
  • Create a guiding framework to map current resources, define gaps, identify opportunities and challenges, and prioritize needs
  • Articulate next steps; gain commitment to action; define success factors, and outcome measures

To view the conference outline, please click here.