Neuroendocrine Cancer Blogs

Beth’s Adventures with Carcinoid Cancer – An overview of my journey dealing with a rare cancer

Beth is from New York City who was diagnosed with a rare form of gastrointestinal cancer called carcinoid in August 2010 at age of 51. She would like to use this blog as a way to talk about her issues and treatments, to inform others, to solicit opinions on good docs, helpful treatments and any other thoughts as she goes through her carcinoid journey.

Brian’s Carcinoid Battle

Brian could tell that something wasn’t quite right back in 2000-2001. He visited the doctor and had blood tests, but all results were normal. By 2004 he was starting to have some really horrible stomach cramping. After several more months, a few more debilitating bouts of stomach pain, and more trips to the doctor, he was referred to an endocrinologist. He was diagnosed with Carcinoid Cancer in July 2005. – A Place to Research, Learn and to be Encouraged

Ed has Stage 4 Carcinoid Cancer that he has been told they are incurable and because they have metastasized to his lymph nodes and bones. He plans to journal his efforts as a way of documenting what works and doesn’t work for him and his intent is to share the results with you. He hopes you will find this blog useful and inspiring.


Channeling Jackie-O

Marlena Johnston, after 10years of off and on abdominal pain, she begins to experience extreme pain and pressure in her lower right abdomen. After months of searching, she was diagnosed rare cancer, Gastrointestinal Carcinoid Tumor in April 2010.

Cy Ball – Music – A blog about Music & Cancer

Cy is a retired computer software developer. He is an enthusiastic fly fisherman and music producer. He was diagnosed with neuroendocrine tumor (NET) in 2011. In April 2014, Bladder cancer was confirmed. He intends his blog to center around music, with some talk of carcinoid tumor.

Derailing My Diagnosis

Stephanie Madsen turned 25 in January 2012. 19 days later, on the 25th, she received news that forever changed her life. She was diagnosed with Large Cell Neuroendocrine Cancer of the Cervix, a very rare cancer. Stephanie’s particular writing style and positive spirit has organically raised a faithful audience.

It Could Be Worse…. My Life with Carcinoid Cancer

This blog will chronicle Sharon’s experiences dealing with Stage lV, rare, Neuroendocrine Cancer (also called Carcinoid) from her diagnosis in June 2012.

Pureed Pzazz

Why pureed foods? As a result of living with pancreatic neuroendocrine cancer since 1998, LaVonne develops intestinal tract blockages if food is not pureed, pulverized, or easily dissolved in her gastric juices. She primary purpose for this blog is to share recipes for pureed foods that are healthy and delicious. She hopes this blog will inspire others to discover that food and life can still be full of Pzazz even when faced with challenges.

Ronny Allan – Living with Neuroendocrine Cancer

Ronny was diagnosed with Metastatic Neuroendocrine Cancer (Carcinoid) in July 2010 after presenting with weight loss and facial flushing (Carcinoid Syndrome). He uses the blog to spread awareness of this unusual, less common and complex disease including any related issues.