International Lymphoma Organizations

Lymphoma is an umbrella term used for over 50 related cancers. There are two general categories of lymphoma: Hodgkin and non-Hodgkin lymphoma (NHL). It is estimated that in 2012, 65,950 people were diagnosed with Hodgkin lymphoma worldwide and 25,469 people died from it. The same year, 385,741 people were diagnosed with non-Hodgkin lymphoma worldwide and 199,630 people died from it (Globocan, 2012).

The difference between Hodgkin lymphoma and NHL is the presence of Reed-Sternberg cells. A Reed-Sternberg cell is a cell derived from a B-lymphocyte and is only present in Hodgkin lymphoma. If Reed-Sternberg cells are present when the tumour is examined under a microscope, the diagnosis is Hodgkin lymphoma. If there are no Reed-Sternberg cells in a lymphatic tumour, the diagnosis is most likely to be NHL. NHL is more common than Hodgkin lymphoma, outnumbering it by a ratio of over six to one. Of all diagnosed lymphoma cases, 85% of them are NHL. Distinguishing between Hodgkin lymphoma and NHL is important to show different patterns of spread and that they require different treatments (information from the Lymphoma Foundation Canada).

For additional information on Hodgkin lymphoma, please go to the Canadian Cancer Society Cancer Encyclopedia.

For additional information on non-Hodgkin lymphoma, go to the Canadian Cancer Society Cancer Encyclopedia.

Leukemia and Lymphoma Society (LLS-USA)

The Leukemia and Lymphoma Society is dedicated to funding blood cancer research and providing education and patient services. The Society’s priorities are to fund research to advance diagnosis and treatment, implement better patient services, and promote public policy changes.

1311 Mamaroneck Avenue, Suite 310
White Plains, NY 10605
United States of America
Tel: 914-949-5213
Fax: 914-949-6691

Twitter: @LLSusa
Facebook: Leukemia and Lymphoma Society

Lymphoma Association (UK)

We are the only specialist UK charity providing emotional support and accurate medical information completely free of charge to anyone affected by lymphatic cancer – whether patient, family member, friend or carer.

Our postal address is:
Lymphoma Association
PO Box 386
Aylesbury
HP20 2GA

Freephone: 0808 808 5555
Email: information@lymphomas.org.uk
Twitter: @LymphomaAssoc
Facebook: Lymphoma Association
YouTube: Lymphoma Association

Lymphoma Research Foundation (USA)

The Lymphoma Research Foundation funds research, provides support for patients, disseminates booklets, facts sheets, information on clinical trials, patient education conferences and webcasts; and encourages patients and survivors to engage in advocacy.

National Headquarters
115 Broadway, Suite 1301
New York, NY 10006
United States of America
Tel: 212-349-2910
Fax: 212-349-2886
Email: LRF@lymphoma.org
LRF Helpline: 800-500-9976
Helpline email: Helpline@lymphoma.org

Twitter: @lymphoma
Facebook: Lymphoma Research Foundation

Non-Hodgkin’s Lymphoma Cyberfamily

The Non-Hodgkin’s Lymphoma Cyberfamily is a worldwide organization of patients and caregivers who have NHL in common. They have two web pages: the first serves as an NHL education page, while the second is an email-based message board where up-to date information is shared.

Patients Against Lymphoma (PAL-USA)

Patients Against Lymphoma is an independent evidence-based support, information and advocacy group. PAL focuses on providing information, but remains independent from the health industry to give an un-biased overview of clinical trials, treatments and options for those who are suffering from lymphoma.

774 Buckwampum Road
Reigelsville, PA 18077
United States of America
Tel: 610-346-8419
Fax: 801-409-5736
Email: KarlS@Lymphomation.org

Twitter: @Lymphomation