Participation Opportunities

Looking for opportunities to become involved in cancer organizations? Want to volunteer? Write an article on your cancer journey for a newsletter or website? Participate in community-based surveys or research? Then here’s where to look for opportunities to become involved.

Cancer organizations are invited to send volunteer opportunities to info@survivornet.ca to be included in this section.

 

In 2020:

Pathways Reader Survey

The Canadian Lymphedema Framework (CLF) is inviting their readers to participate in a short survey to improve their magazine Pathways. The results from the survey will allow the CLF to improve the magazine by integrating suggestions and content that readers want to see. Every reader who fills out this survey is automatically entered for a chance to win a $100 Indigo gift card! This survey takes 5-10 minutes and will close on November 15, 2020.

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Patient Perspectives on the Costs of a New Cancer Therapy

Have you been treated for blood cancer, are 18+ and a resident of Canada? If so, researchers at the Ottawa Hospital Research Institute (OHRI) would love your input about a new cancer therapy, Chimeric Antigen Receptor (CAR) T-cell therapy, that has been approved in Canada for treatment of advanced leukemia. A research study will be conducted to share perspectives from patients and family members of patients across Canada on the costs and benefits that the health care system needs to be aware of when evaluating this new blood cancer treatment. Participation includes a 2-3 hour virtual group discussion, in English, along with an online feedback form. Group sessions will begin October 20 and October 27. If you have questions or are interested in participating, please contact macwilson@ohri.ca

 

Call for Abstracts on COVID-19 Topics – CADTH Virtual Symposium

CADTH is pleased to announce that they are accepting abstracts for the 2020 Virtual CADTH Symposium to be held online on November 9 and 10. The theme is Decision-Making in an Age of Uncertainty and only abstracts related to Covid-19 will be acceptedPresentations from all interested parties are welcome including health-care professionals, patient groups, and researchers. You may submit an abstract until Wednesday, October 7, 2020.

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Self-Employed Cancer Survivors Study

If you are a self employed cancer survivor, Cancer and Work wants to hear your story on remaining or returning to work following cancer and cancer treatments. Sharing your experience will help inform both the study and the organization on the best ways to guide others who are self-employed.  Participation includes a 30 to 45-minute interview over the telephone or video-conferencing at your convenience. The interviews will be held from September to December 2020.  Please contact Dr. Christine Maheu at christine.maheu@mcgill.ca for more info or to participate in a short interview for this research study.

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Designated Family Care Partner PPE & IPAC Training Program

Protect yourself and your loved one by learning how to properly use Personal Protective Equipment (PPE) and increase your understanding of Infection Prevention and Control protocols (IP&C). This is a free online course – offered in partnership by the Canadian Red Cross, Government of Canada, Dementia Network Calgary, Caregivers Alberta, the Health Coalition of Alberta and Alzheimer Society of Calgary – where participants will learn many useful skills including how to prevent infection and disease transmission, types of PPE, and proper disposal. The Alzheimer Society of Calgary is also offering an optional course on communication with patients with Dementia while wearing a mask. The course has recently been expanded to include 800 participants and provides certification for three years to share with the continuing care facilities where family members may be living. The course must be completed by September 30, 2020.

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HQCA Survey on Continuing Care:

The Health Quality Council of Alberta is conducting a survey to collect information about experiences, as a resident living in a Seniors Lodge or a family member, during the pandemic. The focus is on understanding what residents and family members think about restrictions, care, services, and communication with Seniors Lodges.  The survey takes 15-20 minutes to complete and responses are completely confidential.

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Survey for Patients with Relapsed/Refractory DLBCL Lymphoma

Patients or Caregivers of Patients with Relapsed/Refractory DLBCL Lymphoma: We Need Your Help! Lymphoma Canada is preparing a submission for the pan-Canadian Oncology Drug Review (pCODR) for an upcoming drug review on: “Polatuzumab Vedotin (POLIVY) + Bendamustine + Rituximab for relapsed or refractory Diffuse Large B-Cell Lymphoma (DLBCL)”. The survey will be open until midnight Pacific Time on Wednesday, October 5, and should only take between 15-20 minutes of your time.

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Pharmacare Now

The coalition of national and provincial organizations led by the canadian labour congress and the Canadian Health Coalition is calling on the new government to immediately implement universal, public pharmacare. The coalition represents health care providers, non-profit organizations, unions, workers, seniors, patients and academics from across the country.

The coalition is urging all parties to work together in the interest of the population of Canada to ensure that a comprehensive pharmacare plan gets adopted within this government’s mandate. This essential new program should be based on the Pharmacare Consensus Principles, which have been endorsed by more than 80 organizations and which were reflected in the recommendations of the Advisory Council on the Implementation of National Pharmacare. This program should be public, universal, comprehensive, accessible and portable.

Canada needs pharmacare now!

To learn more visit: https://www.healthcoalition.ca/pharmacare/

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Help the WHO test and improve the MedSafe app!

The MedSafe app, an initiative of the World Health Organization, seeks to educate patients and the general public through the 5 key moments where your action can reduce the risk of medication-related harm. The app is free and could be very helpful to patients. In order to help, simply download the app from the App Store or Google Play Store, and leave a review once you’ve used it.

 

Take part in research to advance the science of cancer survivorship!

A national research team is being formed in response to a call for proposals in Cancer Survivorship from the Canadian Cancer Society and the Canadian Institutes of Health Research (CIHR). If you are a cancer survivor who was diagnosed with lymphoma, breast cancer, colorectal cancer, or head and neck cancer within the last 5 years, you are eligible to participate in this research initiative. Cancer survivors provide a unique perspective, which can help inform this committee of recommendations for cancer rehabilitation.

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Volunteer for CCSN’s A Seat at the Table Program