2024 Webinar Series

About this Webinar: John Adams takes a dive behind the headlines, news stories and media releases to better understand any real threats to Canadian patients getting the prescription drugs they need.
About this Presenter: John is a seasoned management consultant, patient advocate and senior fellow of the Macdonald Laurier Institute, an Ottawa-based think tank, where he focuses on health issues.
John is a member of two advisory committees of Health Canada: the implementation advisory group for the Strategy for Drugs for Rare Disorders and the multi-stakeholder steering committee on Drug Shortages.
He has volunteered since 2017 as board chair of the Best Medicines Coalition, an alliance of 30 patient organizations in Canada. He is a former board chair of the Canadian Organization of Rare Disorders. He worked as a newspaper reporter, chief of staff to an Ontario Cabinet Minister, and was elected to Toronto City Council three times.
A founding trustee and board chair of the new Global Association for PKU (Phenylketonuria). He is also President of the Canadian PKU and Allied Disorders non-profit which he co-founded in 2008. He has an adult son with PKU, a rare genetic brain-threatening disorder, who benefited greatly from newborn screening, early intervention, lifelong therapy and an innovative, miracle drug. That son is a university graduate and urban firefighter.
John is the father of four adult children, grandfather to one and was primary caregiver to his wife who died of amyotrophic lateral sclerosis and frontotemporal dementia. He lives in Toronto and enjoys winters and more in a second home overlooking the largest lake in Mexico.
About the Webinar: Learn about pancreatic cancer symptoms, diagnosis, treatment options, statistics, supports and barriers. The presentation will also include some helpful tools that can improve quality of life for those with pancreatic cancer, including the Craig’s Cause’s PERT (Pancreatic Enzyme Replacement Therapy) calculator and available patient support programs.
About the Presenter: Erin Ranger is the Patient Support Manager and Healthcare Manager with Craig’s Cause. Stefanie Condon-Oldrieve was unable to attend this webinar.

About this Webinar: The time between regulatory approval for new drugs and when drugs became publicly available to patients averaged 736 days (25 months) in 2022. This is double the average time reported in comparable Organisation for Economic Development (OECD) countries.  This webinar will highlight variations in drug listing time for new drugs across time, provinces, and type of drugs (oncology vs. non-oncology). It will also present the specific phases involved in moving a drug from approval stage to listing, and the time spent in each. This Conference Board of Canada analysis uses IQVIA’s Market Access Metrics Database (2012 to 2023), which tracks all new products and their indications through the Canadian access journey.

Read the study: Access and Time to Patient: Prescription Drugs in Canada—January 2024 – The Conference Board of Canada

About the Presenters: Chad Leaver, Director, Health

Chad Leaver is the Director of the Health Knowledge area and leads Value Based Health Care (VBHC) Canada. With roots in behavioural epidemiology and health services policy and research, Chad oversees multi-stakeholder, custom, and priority research initiatives. Prior to joining the Conference Board of Canada, Chad held multiple senior roles in applied research at Seneca College, Canada Health Infoway/ Inforoute Santé du Canada; and the Institute for Clinical Evaluative Sciences (IC/ES). Chad holds an MSc in Community Health and Epidemiology from Dalhousie University and an MBA from Queen’s and Cornell Universities.

Sophiya Garasia, Senior Health Economist, Economic Research

Sophiya Garasia is an interdisciplinary researcher with training in health economics, health policy, health equity, and population health. At the Conference Board of Canada, Sophiya is involved in all stages of the research process from study design to data management, statistical analysis, and report writing. Prior to joining the Board, Sophiya completed her embedded postdoctoral fellowship with the University of Toronto and the Central West Ontario Health Team. Sophiya holds a PhD in Health Policy with a specialization in health economics from McMaster University and a Master of Public Health degree from University of Guelph.

View the Video: Here
View the Slides: Here

About the Webinar: Health technology assessment (HTA), the approval process for drugs and healthcare technology, the processes and organizations that support them, such as Canadian Agency for Drugs and Technologies in Health (CADTH), have evolved over the years in response to changing healthcare system priorities and the need to establish their legitimacy. Don Husereau will provide an overview of current processes in Canada, and highlight their perceived (and real) shortcomings and what can be done to overcome these. He will highlight that some perceived weaknesses (such as review times) are not as bad as they appear while perceived strengths (such as stakeholder involvement) need considerable improvement. He will also discuss other opportunities for HTA to innovate and whether there are current plans to address these.

About the Presenter: DON HUSEREAU is an Adjunct Professor of Medicine at The University of Ottawa. He does freelance health care research, and works with private and public sector life sciences organizations to help them understand the value of health technology and its implications for health and innovation policy.

View the Video: HERE

View the Slides: HERE

 

About this Webinar: Dr. Rob Rutledge returns for his first webinar of 2024 to discuss the basics behind emotional intelligence. Learn how to develop greater emotional awareness, and learn how to settle fear and frustration. Dr. Rutledge will also share tips on how to live in a more peaceful and connected way as you navigate through your cancer journey.

About the Presenters: Dr. Rob Rutledge is a Radiation Oncologist in Halifax, Nova Scotia, specializing in breast, prostate and pediatric cancers, and is an Associate Professor in the Faculty of Medicine at Dalhousie University. His passion is empowering people affected by cancer, and has delivered hundreds of public talks and webinars, along with over 60 retreats and day-long seminars to thousands of cancer survivors. Rob has received a Cancer Care Nova Scotia Award for Excellence in Patient Care, and Doctors Nova Scotia presented him with a Health Promotion Award in recognition of his contribution to physician health and health promotion in cancer patients. Rob co-leads CancerPEP a comprehensive six-month daily patient empowerment program starting in November. Visit CancerPEP.org to learn more.

Dr. Gabriela Ilie is the Endowed Chair in Cancer Quality of Life Research, and Associate Professor in the Faculty of Medicine at Dalhousie University. Having taught 86 courses to over 25,000 students at the University of Toronto she is an expert in the Psychology of Emotions. She is the lead of the Research Lab pioneering Patient Empowerment Programs, a comprehensive home-based six-month daily health-promotion program

View the video: HERE.

View the slides: HERE.

About the Webinar: Alcohol is classified as a Group one carcinogen and is estimated to be one of the top thre causes of cancer deaths worldwide. Yet, over 40 per cent of people in Canada remain unaware that alcohol consumption increases the risk of developing at least nine cancers. In this presentation, we’ll look at what is and isn’t known about the relationship between alcohol and cancer. We’ll explore what the Canadian Cancer Society is doing to raise awareness of alcohol as a modifiable cancer risk factor, its commitment to funding world-leading research on this subject, and its advocacy for stronger policies that reduce, and increase awareness about the risk of cancer related to, alcohol consumption. Attendees will be invited to seek more information and/or take action on this important topic. We hope you’ll join us in learning more about cancer risk and alcohol — the most commonly used psychoactive substance in Canada.

About the Presenter: Ciana Van Dusen is the Advocacy Manager of Prevention and Early Detection at the Canadian Cancer Society (CCS). She serendipitously stumbled into advocacy 10 years ago and is passionate about inspiring meaningful change to improve the wellbeing of those living across Canada and beyond. Prior to joining CCS, Ciana conducted public, government, and stakeholder relations, communications, and engagement in sectors including health, international cooperation, and agriculture and agrifoods. Ciana holds a Master of Business Administration from the University of Ottawa and a Bachelor of Arts in Communications from Wilfrid Laurier University.

View the Video: HERE

View the Slides: HERE

About the Webinar: Michelle Colero, Executive Director of Bladder Cancer Canada, will cover the essentials of bladder cancer facts and symptoms while also outlining the support and educational resources provided by Bladder Cancer Canada for those dealing with a diagnosis. Additionally, she’ll share ways individuals can contribute to raising awareness and supporting our community.

About the Presenter: Michelle Colero was not able to attend, and so the talk was delivered by Theresa Blondin. She has been the National Volunteer & Program Manager at Bladder Cancer Canada since 2021. Theresa brings over 20 years of involvement in the not-for-profit sector, both as a committed staff member and avid volunteer. Since 2016, Theresa has worked as a Volunteer Engagement Professional, empowering volunteers through their meaningful contributions to support those affected by cancer.

For more information about Bladder Cancer Canada, visit their website: https://bladdercancercanada.org/en/

View the Video: HERE.

View the Slides: HERE.

About this webinar: This talk will introduce what cancer rehabilitation is, where it fits into the cancer trajectory, and who can benefit from it. In addition, the current landscape of cancer rehabilitation in Canada will be discussed and the need for advocacy to increase access to this essential component of cancer care.

About this presenter: Dr. Jennifer Jones is the Director of the Cancer Rehabilitation and Survivorship Program at the Princess Margaret Cancer Centre. In addition, she is a Senior Scientist in Princess Margaret Research Institute and an Associate Professor in the Department of Psychiatry (primary) and the Dalla Lana School of Public Health (cross-appointment), at University of Toronto.

Dr. Jones’ most recent scholarly and professional activities have clustered around translational research to inform clinical survivorship care. This research platform specifically focuses on examining new approaches to predict, prevent and manage long-term adverse effects of cancer and its treatment and evaluating innovative models of follow-up care and support.

View the Video: HERE.

View the Slides: HERE.