The CCSN webinar series is of interest to patients, survivors, family, friends, caregivers, and any member of the community interested in the best possible care and follow-up for cancer patients and survivors. The impact of volunteering and taking positive action to effect change are important elements in the transition to post-treatment life.
Young Adult Cancer Canada & the 8 Things You Need to Know About Cancer in the Prime of Your Life
Cancer is different for young adults. Join Young Adult Cancer Canada’s presentation on our 8 key findings from our YACPrime Study on the intensified impacts of a cancer diagnosis for those in their young adult years, as presented by YACC staff member, social worker, and colorectal cancer survivor, Dani Taylor (she/her).
About this presenter:
Dani is the Manager of Programs and Partnerships at Young Adult Cancer Canada. Dani is an oncology social worker and young adult, colorectal cancer survivor. She has completed her Masters in Social Work with the Factor-Inwentash Faculty of Social Work at University of Toronto, as well as her Bachelor of Social Work and BA in English Literature with York University. Her experiences with the health care system and support of Young Adult Cancer Canada (YACC) led her to explore a career in psychosocial oncology, finding particular interest in illness narratives and systemic violence. Dani has previously worked for Gilda’s Club Greater Toronto (where she continues to facilitate their 20s & 30s Support Group), Sunnybrook Health Sciences Centre (palliative care), and the Princess Margaret Cancer Centre (allogeneic transplant, palliative care, breast cancer survivorship, and phase one clinical trials).
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About this Webinar:
Participation in lung cancer screening is lower in populations with the highest burden of lung cancer risk (through the social patterning of smoking behaviour) and lowest levels of healthcare utilization (through care which is structurally inaccessible). This leads to a widening of health inequities. In this webinar, participants will learn about inequities across the lung cancer care continuum. They will also learn to understand the need to take an equity-oriented approach to lung cancer screening, and consider future directions for improving access to lung cancer screening in all eligible population groups.
About this presenter
Dr. Ambreen Sayani, MD, PhD, is a clinically trained social scientist specialized in health equity, patient engagement and cancer care. She holds a six-year career development award from the Canadian Institutes of Health Research to lead Patient-Oriented research in Canada. Dr. Sayani is a Health Equity Expert Advisor for the Canadian Partnership Against Cancer, a member of the Medical Advisory Committee for the Canadian Cancer Survivor Network, co-founder of Equity Mobilizing Partnerships in Community, Research Affiliate at the MAP-Centre for Urban Health Solutions, St. Michael’s Hospital and is an Adjunct Professor in the School of Health Policy and Management at York University, Toronto, Canada. Her research is focused on the interface between social and health equity, and its implications for cancer risk, treatment and survival. Dr. Sayani, partners with patients to co-create knowledge through research in order to influence policy and improve cancer-related health outcomes for all population groups.
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About this Webinar:
Life after a cancer diagnosis can be challenging both physically and emotionally. How we work with the difficult thoughts and emotions can influence not only our physical health but how we live our lives. In this seminar, Oncologist Rob Rutledge normalizes the roller-coaster of emotions and distorted thoughts, and offers practical ways to untangle ourselves from the thoughts that don’t serve us – allowing us to choose a values-driven life of greater meaning and purpose.
About the Presenter:
Dr. Rob Rutledge is a Radiation Oncologist in Halifax, Nova Scotia, specializing in breast, prostate and pediatric cancers, and is an Associate Professor in the Faculty of Medicine at Dalhousie University. His passion is empowering people affected by cancer, and has delivered hundreds of public talks and webinars, along with over 60 retreats and day-long seminars to thousands of cancer survivors. Rob has received a Cancer Care Nova Scotia Award for Excellence in Patient Care, and Doctors Nova Scotia presented him with a Health Promotion Award in recognition of his contribution to physician health and health promotion in cancer patients. Rob co-leads CancerPEP a comprehensive six-month daily patient empowerment program starting in November. Visit CancerPEP.org to learn more.
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About this webinar: The risk of blood clots is increased when someone has cancer. When a blood clot occurs in a patient with cancer, it’s called cancer-associated thrombosis (CAT). Recognizing the symptoms of blood clots is important because they can happen at any time. In this webinar, we will review the signs and symptoms of blood clots and steps to take should you or someone you know encounter them. Participants will also be provided with an opportunity to ask questions to the experts.
About this Presenter:
Dr. Tzu-Fei Wang is a hematologist and an associate professor in the Division of Hematology, Department of Medicine at the University of Ottawa and the Ottawa Hospital and an associate scientist at the Ottawa Hospital Research Institute. Her main areas of clinical and research interest include clinical research for the optimal prevention and treatment strategies for patients with cancer-associated thrombosis, drug-drug interactions with anticoagulants, and obesity related thromboembolism. She has received research funding from Canadian Institutes of Health Research and The Ottawa Hospital Academic Medical Organization. She is a co-chair of the Hemostasis and Malignancy Subcommittee of the International Society on Thrombosis and Haemostasis.
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About this webinar: Following the cancellation of most of the federal government’s proposed changes to the Patented Medicine Prices Review Board’s regulations, questions remain about how the Board will proceed in the future. The webinar will review the original changes and the one that remains. The topic will be discussed through the lens of a global pharmaceutical executive’s decision-making about whether to launch a new rare disorder drug in Canada in the next 12-18 months. Finally, we will chat about the uncertainty that continues and its potential impact on patients.
About This Presenter
Nigel Rawson is a pharmacoepidemiologist and pharmaceutical policy researcher based in Saskatoon, Saskatchewan. He is also a Macdonald-Laurier Institute Senior Fellow, a Fraser Institute Senior Fellow and a Canadian Health Policy Institute Affiliate Scholar. Dr. Rawson has performed epidemiologic studies of prescription drug safety and pharmaceutical policy issues for over 40 years and published more than 140 peer-reviewed articles and book chapters as well as a monograph on drug safety. He has held academic positions in the United Kingdom and Canada. He has been a senior researcher in one of the largest US health insurer’s independent research centres, collaborating with the US Food and Drug Administration on drug safety studies, and GlaxoSmithKline’s only epidemiologist in Canada. Between 2012 and 2020, Dr. Rawson was President of Eastlake Research Group, the mission of which was to create data-driven responses to pharmaceutical policy issues. He continues this work as an independent researcher.
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About this webinar: Family and friends of people with a cancer diagnosis often feel powerless in the heart-felt attempts to be supportive. Oncologist Rob Rutledge offers the background and practical advice about how to support people affected by cancer. Rob gives an insiders perspective on how to get the best care from the medical system, as well as ways to empower body, mind and spirit – and the critical role loved ones can play in facilitating healing
About the presenter: Dr. Rob Rutledge is a Radiation Oncologist in Halifax, Nova Scotia, specializing in breast, prostate and pediatric cancers, and is an Associate Professor in the Faculty of Medicine at Dalhousie University. His passion is empowering people affected by cancer, and has delivered hundreds of public talks and webinars, along with over 60 retreats and day long seminars to thousands of cancer survivors. Rob has received a Cancer Care Nova Scotia Award for Excellence in Patient Care, and Doctors Nova Scotia presented him with a Health Promotion Award in recognition of his contribution to physician health and health promotion in cancer patients. Rob co-leads CancerPEP a comprehensive six-month daily patient empowerment program starting in November. Visit CancerPEP.org to learn more.
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Why Cancer Still Sucks, and So Does Access to Treatment in Canada.
Date: July 23, 2022
Presented by: Dr. David Stewart.
About this webinar:
In this webinar, presented by Dr. David J. Stewart, MD, we discussed Why Cancer Still Sucks and So Does Access to Treatment in Canada.
About the presenter:
Dr. Stewart trained in medical oncology in the Department of Developmental Therapeutics at MD
Anderson Cancer Centre in Houston, Texas, 1976-1978. He was on staff at MD Anderson from 1978 to 1980, then in Ottawa from 1980 to 2003, and back at MD Anderson in the Department of Thoracic/Head and Neck Medical Oncology from 2003 to 2011. He returned to Ottawa in 2011 and served as Head of the Division of Medical Oncology in Ottawa from 2011 to 2019.
His areas of research have included (among others) resistance mechanisms to anticancer agents and resistance modulation; pharmacology and pharmacogenetics of platinums and other anticancer agents; new drug development and predictive biomarkers in lung cancer; the negative impact of dysfunctional regulation and clinical trial designs on the rate of clinical research progress; and the huge costs of this clinical research dysfunction in terms of increased healthcare costs and in terms of lives prematurely lost.
He has published more than 340 peer-reviewed publications. He has also published several Op Eds in the lay press dealing predominantly with patient access to care, including an opinion piece published in the Ottawa Citizen 2022/06/21 (https://ottawacitizen.com/opinion/ste… canadas-response-to-it.) In April 2022 he also published A Short Primer on Why Cancer Still Sucks, intended for patients and the general public. It is available through Amazon books or his website, https://whycancerstillsucks.com/.
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Cancer Can’t Wait! CCSN’s Fourth Leger survey on COVID-19 and cancer care
Date: June 23, 2022
Presented by: Marjut Huotari
About this webinar:
In this webinar, presented by Marjut Huotari, Vice President of Healthcare Insights at Leger, you will learn about cancer patient and caregiver concerns as society opens. How do cancer patients feel? What risks are they willing to take?
Presented by:
Marjut Huotari has a Bachelor and a Master of Business Administration from the Schulich
School of Business, York University. She is a marketing professional with over 20 years of
experience working with the pharmaceutical industry, including 14 years working in the
pharmaceutical industry on the client side. With Leger, Marjut manages both qualitative and
quantitative market research, conducting research with a variety of healthcare practitioners and
patients. With her team, she aims to help her clients to understand the issues and help develop
solutions.
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The Importance of Cancer Rehabilitation
Date: June 9, 2022
Presented by: Dr Jennifer Jones
About this webinar:
The importance of Cancer Rehabilitation
The diagnosis and treatment of cancer can result in chronic side effects which interfere with a person’s ability to work, engage socially, and do daily activities. Awareness and understanding of cancer rehabilitation have increased greatly over the past decade. However, access to rehabilitation services remains limited across Canada. There is an urgent call to action to invest in systems and services that can promote the recovery and well-being of cancer survivors. This includes the early identification of physical side effects and the development of effective cancer rehabilitation treatments that can be supported and maintained by our health care system.
About This Presenter:
Jennifer M. Jones, PhD
Dr. Jennifer Jones is the Butterfield Drew Chair in Cancer Survivorship Research and the Director of the Cancer Rehabilitation and Survivorship Program at the Princess Margaret Cancer Centre. In addition, she is a Senior Scientist at the Princess Margaret Research Institute and an Associate Professor in the Department of Psychiatry (primary) and the Dalla Lana School of Public Health (cross-appointment) at University of Toronto.
Dr. Jones’ most recent scholarly and professional activities have clustered around Translational research to inform clinical survivorship care. This clinical research platform specifically focuses on examining new approaches to predict, prevent and manage long-term adverse effects of cancer and its treatment and evaluating innovative models of follow-up care and support for the growing number of cancer survivors.
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Surviving Several Cancers through Support, Stubbornness and even a Smile
Date: May 26, 2022
Presented by: Teresa Tiano
About this webinar:
This webinar deals with a personal and multi-layered cancer journey and how the diagnosis of stomach cancer led to the founding of Canada’s only non-profit organization that supports patients, survivors and caregivers. My Gut Feeling – Stomach Cancer Foundation has been supporting patients facing this complex cancer for over 6 years. Its mission to provide peer-to-peer support through education, awareness and advocacy has helped thousands of patients and their families throughout Canada and internationally.
About the presenter: Teresa Tiano is the Chair and Co-Founder of My Gut Feeling – Stomach Cancer Foundation of Canada, which is the volunteer-led, non-profit organization, founded in 2016, that is dedicated to the support of stomach cancer patients, survivors and caregivers through education, awareness and advocacy. Teresa has over 30 years of experience in the non-profit sector and has been advocating for patients since 1991 when her father was diagnosed with colon cancer. Teresa is also a 10/12 year stomach cancer survivor, 5-time cancer survivor and a Lynch Sydrome Survivor. Her advocacy work for patients includes being part of research teams, speaking engagements to raise awareness about stomach cancer, the world’s 6th most common cancer and the world’s 4th leading cause of cancer deaths. She currently sits on the the Patient Advocacy Committee of the Canadian Gastric Cancer Association (CGCA), is a Patient Advocate on the Ontario Hereditary Cancer Research Network, on the Patient Advocacy Team for STORMing Cancer, and a Patient Partner on the Indirect Impacts of Hereditary Cancer Syndrome Study. Teresa is also a member of both the American Society of Clinical Oncology (ASCO), the European Society of Medical Oncology (ESMO), and most recently the International Society of Female Professionals.
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How to Create (and Break) Habits to Maximize Your Health and Happiness
Date: May 19, 2022
Presented by: Dr. Rob Rutledge
In this webinar:
In this webinar Dr.Rob Rutledge shares how to build healthy habits (and let go of unhealthy ones) People affected by cancer can improve the physical and mental health by integrating healthy habits into their lives. Dr. Rutledge reviews the science of habit formation, and provides practical ways to change your habits – and your life.
About the presenter:
Dr. Rob Rutledge is a Radiation Oncologist in Halifax, Nova Scotia, specializing in breast, prostate and pediatric cancers. He is also an Associate Professor in the Faculty of Medicine at Dalhousie University. In 1999, Rob co-created the ‘Skills for Healing’ Cancer Weekend Retreats. These weekend support groups teach a powerful and integrated approach to the cancer diagnosis and ways to heal at levels of body, mind and spirit. To date, more than 2000 people have attended 60+ retreats in over 30 cities across Canada and abroad. Rob is the CEO and Chair of the Healing and Cancer Foundation, a Registered Charity that freely offers educational videos, documentaries, and webcasting seminars. He is co-author of the book The Healing Circle, which captures the teachings and inspirational stories from the weekend retreats. Rob has received a Cancer Care Nova Scotia Award for Excellence in Patient Care, and Doctors Nova Scotia presented him with a Health Promotion Award in recognition of his contribution to physician health and health promotion in cancer patients.
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Engaging Patients and Caregivers with Clinical Trials
Date: May 12, 2022
Presented by: Dawn Richards, PhD
In this webinar:
In this webinar we learn about tools and resources that CTO has co-developed with patients as partners to related to engaging patients and caregivers with clinical trials. If you’re interested in exploring potential participation in a clinical trial, CTO has credible information for you to learn more about clinical trials and to look for a potential clinical trial. If you’re interested in collaborating as a member of a clinical trial team, CTO has built resources for you to help prepare you to contribute on a research team. This presentation will walk you through a number of resources, no matter how you may wish to be engaged with clinical trials.
About the presenter:
Dawn Richards, PhD, is the founder of Five02 Labs Inc., and Director of Patient and Public Engagement at Clinical Trials Ontario. With a PhD (Analytical Chemistry) from the University of Alberta, and experience in a variety of roles during the past 20 years, it is her diagnosis with rheumatoid arthritis fifteen years ago that started her journey to combine her passion for science with making the most of her diagnosis. In her role at CTO, Dawn is charged with executing on CTO’s strategic pillar of patient and public engagement.
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Mindful Eating for a Healthier Lifestyle
Date: April 14, 2022
Presented by: Shannon Smith
About this webinar:
Trying to stay in the moment and slowing down can be supportive in many aspects of our lives, including fostering a positive relationship with food. Join us to explore the benefits of mindful eating, the process of being present while preparing and enjoying our food. We will look at practical tips to include mindful eating practices in our lives such as noticing hunger and fullness cues and noticing sensory aspects of mealtimes. During this workshop we will practice a mindful eating exercise together, please come prepared with one of the following foods: a raisin, a square of chocolate, a nut, or a warm cup of tea.
About the presenter:
Shannon Smith, BSc. RD, graduated with honours from UBC’s Food Nutrition and Health program and completed her dietetic internship with Vancouver Coastal Health in 2012. She is registered with the BC College of Dietitians and is a member of Dietitians of Canada. Shannon began her career as a dietitian in the natural grocery setting where she gained a deep understanding of food — from farms to processing, packaging, and labelling. From the grocery setting to medical clinics, she loves translating the science of nutrition to real-world food and cooking. Shannon is delighted to join the InspireHealth team where she looks forward to sharing her passion for balanced nutrition. She is especially excited to lead cooking classes that highlight the joy of exploring fresh, simple ingredients.
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Anal & Colorectal Cancer: An Information Webinar
Date: March 31, 2022
Presented by: Helene Hutchings
In this webinar:
CCSN welcomes back Helene Hutchings to discuss anal and colorectal cancer in this educational webinar. Helene will be discussing the symptoms & risk factors of these cancers, as well as treatment options that are available. She will also discuss prevention of anal and colorectal cancers and the benefits of peer-to-peer support groups.
There will be a Q&A session following the webinar.
About the presenter:
Helene Hutchings is the Founder/CEO of Anal Cancer-A Bum Rap as well as a member of IANS (International Anal Neoplasia Society). Helene’s advocacy work extends beyond Canada as she is an international advocate for Anal Cancer Awareness, Pelvic Radiation Disease Awareness, particularly as it relates to sexual function. More locally, she is continually advocating for AIN (Anal Intraepithelial Neoplasia) screening in Ottawa, Canada, the city where she lives. Helene is also a cancer survivor, having been discharged from the care of her Colorectal Surgeon in October 2013 and Radiation Oncologist in Sept 2014.
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CCSN’s Cancer Can’t Wait: Self-Advocacy in the Time of COVID-19
Facilitated by: David Klug, CCSN’s Public Affairs Consultant
In this webinar:
2 years after the start of the COVID-19 pandemic, half of cancer patients across Canada still report their cancer care appointments are cancelled, postponed, or rescheduled.
Throughout the pandemic, CCSN has been meeting virtually with elected officials from across the country – provincial and federal – to discuss our COVID-19 and Cancer Care Disruption Survey. Our survey confirmed that measures in place to deal with the COVID-19 pandemic have continued to negatively impact cancer patients and pre-diagnosis patients’ ability to access cancer care services. In our meetings, we explored some of the key findings of our survey, shared stories from cancer patients, and discussed the need to ensure that access to cancer care remain a priority during and beyond this wave of COVID-19 and any subsequent pandemics.
In this last webinar, of our 3 part series, our focus will turn from survey results and sharing highlights from meetings with elected officials to telling the stories of the advocates. It’s important to know the facts and figures; it’s equally, if not more, important to hear the stories of those who have actively fought back, and been the primary advocate for themselves. We will have 4 advocates join us to tell their stories: Dianne Colton, Shannon Gall, Angus Pratt & Jennifer Roy. Afterwards, David Klug, will facilitate a Q&A session with our panel of advocates.
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