In this issue: World Cancer Day Open House report, patient input surveys, drug approval in Canada and more!
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The CCSN webinar series is of interest to patients, survivors, family, friends, caregivers, and any member of the community interested in the best possible care and follow-up for cancer patients and survivors.
Clinical Trials Ontario (CTO) is an independent not-for-profit organization established with support from the Government of Ontario. Our mandate is to work together with the clinical trials community, the public, and other partners to improve Ontario’s clinical trials environment. Since 2012 we have been carrying out our mandate with one of our three strategic pillars being patient and public engagement. We believe engaging patients andRead More
How Timely is Canada’s Medication Review and Approval Process? Date held: January 24th, 2019 Presented by: Gerry Jeffcott, 3Sixty Public Affairs with Nigel Rawson & Sarah Lussier Webinar Information: This presentation was hosted by Gerry Jeffcott from 3Sixty Public Affairs, who was joined by two pharmaceutical policy researchers who have conducted analyses of Canada’s access performance over time and in comparison with other countries. TheRead More
- Health Minister Unveils the Revised Canada Food Guide
- Larotrectinib for TRK Gene Fusion-positive Cancer: Patient & Caregiver Survey Now Available
- Glyphosate Objectors’ Concerns Heightened by Health Canada Response
- HHS discloses issue with a specific type of radiation therapy at the Juravinski Cancer Centre
- Feb28Free Session! Cannabis: Does it have a place in palliative care?
Thursday, February 28, 2019, 10 to 11 a.m. PST In person: UBC Okanagan, Reichwald Health Sciences Centre RHS 260 LT, Kelowna BC Live webcast: details will be emailed closer to session date. Co-sponsored by: The Institute for Healthy Living and Chronic Disease Prevention, the North Okanagan Hospice Society and the Canadian Association of Psychosocial Oncology (CAPO) PRESENTER: Dr. Lynda Balneaves, Associate Professor, College of Nursing, Faculty of Health Sciences, University of Manitoba ABSTRACT: FREEView Event
- Feb28CORD Rare Disease Day 2019 in Ontario: Breakfast Reception at Queen’s Park
The Canadian Organization for Rare Disorders is hosting Breakfast Reception at Queen’s Park in celebration of International Rare Disease Day. An opportunity for patients, families and advocates to meet with Members of Provincial Parliament and other supporters. February 28th, 2019 8:00 a.m. to 9:30 a.m. Legislative Assembly of Ontario (Queen’s Park) 111 Wellesley Street West Legislative Dining Room Toronto, Ontario Please RSVP by February 25View Event
- Mar252019 International Symposium on Malignant Mesothelioma
Registration for the 2019 International Symposium on Malignant Mesothelioma: Monday, March 25 – Wednesday, March 27, 2019, is now open! Please use the earlybird code EARLY25 to claim your discount available through January 15, 2019. Click here to register. This signature three-day conference brings together patients, caregivers, family members, those who have lost loved ones to mesothelioma, clinicians, researchers, and others interested in eradicating mesothelioma, to discuss treatment, its advances,View Event
- Nominations open for CADTH Patient and Community Advisory Committee
CADTH is currently seeking individuals with diverse experiences with the Canadian health care system for our Patient and Community Advisory Committee. This newly established committee will provide CADTH with advice on issues relevant to CADTH’s mandate, from the perspectives of those using the Canadian health care system. We encourage all those interested to complete a statement of interest by Sunday, February 24 2019.Participate Now
- Sleep Study in Prostate Cancer Patients
This is a survey by the University of Otago in New Zealand to determine how lifestyle (e.g., sleep hygiene, exercise), physical (e.g., weight gain, fatigue) and psychosexual (e.g., anxiety, depression, sexual activity) factors are associated with sleep disturbance in prostate cancer patients and their partners. The study is open to all prostate cancer patients regardless of location or treatment. The survey takes about 45 minutes to complete.Participate Now
- CCSN Prostate Cancer Patient, Survivor & Caregiver Survey
All patients, survivors and caregivers who have faced or are facing prostate cancer are eligible to take this survey. The purpose of this survey is to help the prostate cancer community and the Canadian Cancer Survivor Network better understand the journey that prostate cancer patients, survivors and caregivers experience during their transition from diagnosis, through to treatment, follow-up, and survivorship.Participate Now
- Consultation: Strict regulation of edible cannabis, extracts and topicals
Health Canada is seeking feedback on draft regulations to minimize the public health and public safety risks posed by edible cannabis, cannabis extracts & cannabis topicals. Deadline to participate is February 20th, 2019.Participate Now
- STUDY NOTICE – Seeking participants for a survey on peer support in cancer
Princess Margaret Cancer Centre is conducting a study with Adolescents and Young Adults (AYA) in Canada with cancer to understand their needs and preferences for peer support and interest in using a digital app to connect with peer cancer survivors. If you were diagnosed with cancer between 15 and 39 years of age, please complete the following online 25 minute survey for a chance to win a $100 VISA Gift Card! http://bit.do/Connect4HealthParticipate Now
- Right2Survive – Share Your Voice and Your Story
Despite being the number one cancer killer in Canada, outcomes in lung cancer lag behind other cancers. We can do more. Lung cancer patients deserve a chance to become cancer survivors. Share your survivor story and add your name to stand with cancer survivors.Participate Now
Cancer Journey Stories
Paul Mayotte was much like most men his age, healthy, happy and ready to embrace retirement. He began the yearly check-ups with his doctor when he turned 50 and also began the PSA test (Prostate-Specific Antigen) to establish a baseline for potential prostate problems. When Mayotte turned 60 things began to change with his PSA levels and he was referred to a urologist. After aRead More
Sitting in my doctor’s waiting room for a visit to find out the reasons for a breast lump, I recall that 50 years earlier, my mother had breast cancer. As a guy, the last thing on my mind was breast cancer. I was relieved when on this visit (and a subsequent visit), I was assured that all was well. A month later, with an obviouslyRead More