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What Men Told Us: CCSN’s prostate cancer survey report

September 23, 2020

Media Release September 23, 2020 What Men Told Us CCSN’s prostate cancer survey report In August 2018, CCSN employed a thoughtful and comprehensive...

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Cancer still waiting…

September 4, 2020

If you think that COVID-19 disruption of cancer care is nearly over, think again! CCSN’s recent Leger survey of 1,243 Canadians revealed that the...

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Anxieties of cancer patients and caregivers about phone and virtual appointments during the pandemic

September 4, 2020

Before COVID-19, seeing a doctor or specialist generally meant seeing them in person. Now, it typically means talking to them on the phone, or perhaps...

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  • Pathways Reader Survey

    The Canadian Lymphedema Framework (CLF) is inviting their readers to participate in a short survey to improve their magazine Pathways. The results from the survey will allow the CLF to improve the magazine by integrating suggestions and content that readers want to see. Every reader who fills out this survey is automatically entered for a chance to win a $100 Indigo gift card! This survey takes 5-10 minutes and will close on November 15, 2020.

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  • Patient Perspectives on the Costs of a New Cancer Therapy

    Have you been treated for blood cancer, are 18+ and a resident of Canada? If so, researchers at the Ottawa Hospital Research Institute (OHRI) would love your input about a new cancer therapy, Chimeric Antigen Receptor (CAR) T-cell therapy, that has been approved in Canada for treatment of advanced leukemia. A research study will be conducted to share perspectives from patients and family members of patients across Canada on the costs and benefits that the health care system needs to be aware of when evaluating this new blood cancer treatment. Participation includes a 2-3 hour virtual group discussion, in English, along with an online feedback form. Group sessions will begin October 20 and October 27. If you have questions or are interested in participating, please contact macwilson@ohri.ca. (more…)

  • Call for Abstracts on COVID-19 Topics – CADTH Virtual Symposium

    CADTH is pleased to announce that they are accepting abstracts for the 2020 Virtual CADTH Symposium to be held online on November 9 and 10. The theme is Decision-Making in an Age of Uncertainty and only abstracts related to Covid-19 will be accepted. Presentations from all interested parties are welcome including health-care professionals, patient groups, and researchers. You may submit an abstract until Wednesday, October 7, 2020.

    CADTH Symposium 2020

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  • Self-Employed Cancer Survivors Study

    If you are a self employed cancer survivor, Cancer and Work wants to hear your story on remaining or returning to work following cancer and cancer treatments. Sharing your experience will help inform both the study and the organization on the best ways to guide others who are self-employed.  Participation includes a 30 to 45-minute interview over the telephone or video-conferencing at your convenience. The interviews will be held from September to December 2020.  Please contact Dr. Christine Maheu at christine.maheu@mcgill.ca for more info or to participate in a short interview for this research study. Participate Now

  • Designated Family Care Partner PPE & IPAC Training Program

    Protect yourself and your loved one by learning how to properly use Personal Protective Equipment (PPE) and increase your understanding of Infection Prevention and Control protocols (IP&C). This is a free online course - offered in partnership by the Canadian Red Cross, Government of Canada, Dementia Network Calgary, Caregivers Alberta, the Health Coalition of Alberta and Alzheimer Society of Calgary - where participants will learn many useful skills including how to prevent infection and disease transmission, types of PPE, and proper disposal. The Alzheimer Society of Calgary is also offering an optional course on communication with patients with Dementia while wearing a mask. The course has recently been expanded to include 800 participants and provides certification for three years to share with the continuing care facilities where family members may be living. The course must be completed by September 30, 2020.Participate Now

  • HQCA Survey on Continuing Care:

    The Health Quality Council of Alberta is conducting a survey to collect information about experiences, as a resident living in a Seniors Lodge or a family member, during the pandemic. The focus is on understanding what residents and family members think about restrictions, care, services, and communication with Seniors Lodges.  The survey takes 15-20 minutes to complete and responses are completely confidential.  HQCA LogoParticipate Now

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Cancer Journey Stories

Demystifying Prostate Cancer and The New Normal – Harvey Slobod

Since his early 50’s, Harvey Slobod always ensured he didn’t miss a yearly health checkup, which included a digital exam. It proved a little bit uncomfortable, however, it was necessary to check the health of the prostate. After his August 2017 exam in his 72nd year, his GP suggested follow-up with a Urologist, as something didn’t feel right. The Urologist confirmed his fears when he

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The Face of Prostate Cancer: Paul’s Story

Paul Mayotte was much like most men his age, healthy, happy and ready to embrace retirement. He began the yearly check-ups with his doctor when he turned 50 and also began the PSA test (Prostate-Specific Antigen) to establish a baseline for potential prostate problems. When Mayotte turned 60 things began to change with his PSA levels and he was referred to a urologist. After a

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Memo for Pink Charities: Men Get This Disease Too – Rod Ritchie

Sitting in my doctor’s waiting room for a visit to find out the reasons for a breast lump, I recall that 50 years earlier, my mother had breast cancer. As a guy, the last thing on my mind was breast cancer. I was relieved when on this visit (and a subsequent visit), I was assured that all was well. A month later, with an obviously

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Cancer as good news: the ultimate oxymoron – Andy Bertrand

This is a tale of a lengthy medical journey full of surprises. **Disclaimer: images of a tumour are shown below. It was May 11, 2016, the day before my birthday. I was explaining to my family doctor about this pain radiating along my lower abdominal area. Since I already had an existing umbilical hernia, I reasoned that that was the cause. My doctor claimed that

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Second Wind: Thriving After Lung Cancer – Dann Wonser

I have got to be the luckiest guy alive – because I am still alive. It started when I broke my ribs. That “lucky break” led to an X-Ray, which is how the spot on my lungs was discovered. If I had not gotten tested until I had symptoms, it might well have been too late for me. It was already Stage III, and back

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With Hope, The Odds Don’t Matter – Heather Von St. James

My whole future was planned out. My first baby was due soon, I planned on taking a short maternity leave and heading back to work as my job as a stylist and part owner in a busy salon. I booked my clients around my daughter’s birth and barring any unforeseen circumstances, it would all work out according to plan. That is the funny thing about

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CCSN WEBINAR - Prostate Cancer Survey Results, Thurs. Oct. 1st Register here: https://bit.ly/2Hu0k9L Join CCSN and our presenter, Filomena Servidio, as we review the results of CCSN’s National Prostate Cancer Survey based on the recently released Prostate Cancer Survey Report. The webinar promises to be insightful as it will identify and highlight the overarching themes that resonated consistently throughout the survey results from survey respondents. The results will be presented according to the patient, survivor, and caregiver perspective who all provided meaningful and thoughtful input. Join us as we learn more about the prostate cancer journey, and the need to better inform and support prostate cancer patients and their caregivers in Canada.

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