Canadian Cancer Survivor Network – The Canadian Cancer Survivor Network was created by a group of Canadians concerned about cancer.

Past Webinars

CCSN Webinar – Canada’s New Drug Pricing Rules: What are the Implications for Cancer Patients?

Join CCSN, Wayne Critchley, and Ryan Clarke as they discuss the impact Canada's new drug pricing rules will have on cancer patients!

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Upcoming Events

Aug22
Register now for Cycle Camelot 2020 – Fundraiser for the Georgian Bay Cancer Support Centre!
Cycle Camelot has united cycling enthusiasts and supporters of the Georgian Bay Cancer Support Centre for the past 9 years, raising over $375,000 to help support local people living with cancer, their families and caregivers. As the GBCSC’s primary fundraising event, the ride has grown to be a valued, popular, and highly anticipated event among cycling enthusiasts in Southern Ontario and beyond. Taking place in
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Sep13
Ovarian Cancer Canada Walk of Hope: The Virtual Edition
The Ovarian Cancer Canada Walk of Hope: The Virtual Edition is a fundraising event that helps support women ovarian cancer. All proceeds will be going towards raising awareness, and research and development. Register as an individual or as a team, set your fundraising goal and make an impact in your community today! The virtual event will be taking place on September 13th, we hope to
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Sep20
Melanoma Network of Canada – Strides for Melanoma
MNC’s Strides Walk has united Canadians from coast to coast to help fight melanoma and skin cancer. When you register and raise funds for Strides Walk for Melanoma, you have a direct impact on the lives of melanoma and skin cancer patients. You’ll also help raise awareness and support MNC’s prevention work, with the goal of reducing melanoma and skin cancer diagnoses in the future.
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Participate

Pharmacare Now
The coalition of national and provincial organizations led by the canadian labour congress and the Canadian Health Coalition is calling on the new government to immediately implement universal, public pharmacare. The coalition represents health care providers, non-profit organizations, unions, workers, seniors, patients and academics from across the country.
The coalition is urging all parties to work together in the interest of the population of Canada to ensure that a comprehensive pharmacare plan gets adopted within this government’s mandate. This essential new program should be based on the Pharmacare Consensus Principles, which have been endorsed by more than 80 organizations and which were reflected in the recommendations of the Advisory Council on the Implementation of National Pharmacare. This program should be public, universal, comprehensive, accessible and portable. Canada needs pharmacare now! To learn more visit: https://www.healthcoalition.ca/pharmacare/Participate Now
Help the WHO test and improve the MedSafe app!
The MedSafe app, an initiative of the World Health Organization, seeks to educate patients and the general public through the 5 key moments where your action can reduce the risk of medication-related harm. The app is free and could be very helpful to patients. In order to help, simply download the app from the App Store or Google Play Store, and leave a review once you've used it.
Take part in research to advance the science of cancer survivorship!
A national research team is being formed in response to a call for proposals in Cancer Survivorship from the Canadian Cancer Society and the Canadian Institutes of Health Research (CIHR). If you are a cancer survivor who was diagnosed with lymphoma, breast cancer, colorectal cancer, or head and neck cancer within the last 5 years, you are eligible to participate in this research initiative. Cancer survivors provide a unique perspective, which can help inform this committee of recommendations for cancer rehabilitation.Participate Now
You can help inform treatment recommendations!
The Save Your Skin Foundation has launched a survey in preparation for an upcoming patient submission on Libtayo/Cemiplimab in the treatment of cutaneous squamous cell carcinoma (SCC). If you are an SCC patient who was treated with Libtayo/Cemiplimab, you are invited to fill out this survey. Your input will be a useful patient perspective to help inform treatment recommendations to the CADTH Common Drug Review (CDR) and to pan-Canadian Oncology Drug Review (pCODR).Participate Now
Help shape policy to prevent mitochrondrial diseases in Canada
A study being conducted at McGill university is looking for participants not affected by mitochondrial diseases to discuss their perspectives related to policy and decision-making for preventing mitochondrial diseases in Canada. For more details, contact forough.noohi@mail.mcgill.ca
Study regarding quality of follow-up care for cancer survivors
This study is seeking 10-12 cancer survivors, as well as friends/family/caregivers from across Canada to participate in one phone call to discuss 1) your thoughts on and experiences with follow-up care for cancer, 2) what you think are the most important issues being faced by cancer survivors and 3) how do you think these issues might be addressed. If you are interested, please contact Margaret Jorgensen before December 31st, 2019. She can be reached at 902-473-7290 or Margaret.jorgensen@ccns.nshealth.ca

Cancer Journey Stories

Demystifying Prostate Cancer and The New Normal – Harvey Slobod

Since his early 50’s, Harvey Slobod always ensured he didn’t miss a yearly health checkup, which included a digital exam. It proved a little bit uncomfortable, however, it was necessary to check the health of the prostate. After his August 2017 exam in his 72nd year, his GP suggested follow-up with a Urologist, as something didn’t feel right. The Urologist confirmed his fears when he

The Face of Prostate Cancer: Paul’s Story

Paul Mayotte was much like most men his age, healthy, happy and ready to embrace retirement. He began the yearly check-ups with his doctor when he turned 50 and also began the PSA test (Prostate-Specific Antigen) to establish a baseline for potential prostate problems. When Mayotte turned 60 things began to change with his PSA levels and he was referred to a urologist. After a

Memo for Pink Charities: Men Get This Disease Too – Rod Ritchie

Sitting in my doctor’s waiting room for a visit to find out the reasons for a breast lump, I recall that 50 years earlier, my mother had breast cancer. As a guy, the last thing on my mind was breast cancer. I was relieved when on this visit (and a subsequent visit), I was assured that all was well. A month later, with an obviously

Cancer as good news: the ultimate oxymoron – Andy Bertrand

This is a tale of a lengthy medical journey full of surprises. **Disclaimer: images of a tumour are shown below. It was May 11, 2016, the day before my birthday. I was explaining to my family doctor about this pain radiating along my lower abdominal area. Since I already had an existing umbilical hernia, I reasoned that that was the cause. My doctor claimed that

Second Wind: Thriving After Lung Cancer – Dann Wonser

I have got to be the luckiest guy alive – because I am still alive. It started when I broke my ribs. That “lucky break” led to an X-Ray, which is how the spot on my lungs was discovered. If I had not gotten tested until I had symptoms, it might well have been too late for me. It was already Stage III, and back

With Hope, The Odds Don’t Matter – Heather Von St. James

My whole future was planned out. My first baby was due soon, I planned on taking a short maternity leave and heading back to work as my job as a stylist and part owner in a busy salon. I booked my clients around my daughter’s birth and barring any unforeseen circumstances, it would all work out according to plan. That is the funny thing about

From the Blog

Canada’s Supreme Court upholds law to prohibit genetic discrimination

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BREAKING: COVID-19 Cancer Care Disruption Triggers Another Public Health Crisis in Canada New survey results released today by CCSN show that more than half (54%) of Canadian cancer patients, caregivers and those awaiting confirmation of a cancer diagnosis report having had appointments, tests and treatment postponed and cancelled, causing heightened fears and anxiety – even as some pandemic restrictions lift. Follow us on social media as we unpack key findings from the survey. http://www.newswire.ca/en/releases/archive/July2020/14/c1084.html

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COVID-19 & CANCER

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