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Larotrectinib for TRK Gene Fusion-positive Cancer: Patient & Caregiver Survey Now Available

January 17, 2019

The Canadian Cancer Survivor Network, in participation with six fellow Canadian patient groups have developed a new patient & caregiver survey. The purpose of the survey is to provide the Canadian Cancer Survivor Network (CCSN) with insights and perspectives from patients and caregivers who are managing TRK gene fusion–positive cancers. This is in order to complete a patient evidence submission for a new targeted medication

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Glyphosate Objectors’ Concerns Heightened by Health Canada Response

January 16, 2019

Glyphosate Objectors’ Concerns Are Heightened Following Replies from Health Canada (being released January 14, 2019 online)   Responses Dismiss Key Science and Lack Transparency Canadians at Risk, With no Independent Review of Roundup Herbicide For Immediate Release Ottawa, January 14, 2018 – Today, Health Canada is releasing online, responses to eight objections to re-registration of glyphosate (the active ingredient in Roundup herbicide). Government responses leave

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HHS discloses issue with a specific type of radiation therapy at the Juravinski Cancer Centre

January 10, 2019

In late November 2018, Hamilton Health Sciences discovered an issue with the equipment used to deliver brachytherapy (BT) to patients with cervical cancer. The only patients who may have been affected by this issue are those who received this specific kind of therapy – BT – for cervical cancer in 2017 and 2018. Physicians, nurses and other members of our team have met with the

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Upcoming Events

  • Jan24
    CCSN FREE WEBINAR: How Timely is Canada’s Medication Review and Approval Process?

    Date: Thursday, January 24th 2019 Time: 1:00pm – 2:00pm ET Register now! This webinar will be hosted by Gerry Jeffcott from 3Sixty Public Affairs. He will be joined by two pharmaceutical policy researchers who have conducted analyses of Canada’s access performance over time and in comparison with other countries. The session will begin with an overview of each of the elements of the Canadian review

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  • Feb04
    CCSN Annual Open House in Recognition of World Cancer Day

    Save the Date! Canadian Cancer Survivor Network is hosting our annual Open House for recognition and awareness of World Cancer Day! Drop by the CCSN offices Monday, February 4th 2019 3:00pm to 5:00pm 1750 Courtwood Crescent, Suite 210 Ottawa, ON Escape the winter doldrums and drop in for some refreshments, hot Bridgehead coffee, warm chat, networking and some brief information on what CCSN is up to from

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  • Feb28
    Free Session! Cannabis: Does it have a place in palliative care?

    Thursday, February 28, 2019, 10 to 11 a.m. PST In person: UBC Okanagan, Reichwald Health Sciences Centre RHS 260 LT, Kelowna BC Live webcast: details will be emailed closer to session date. Co-sponsored by: The Institute for Healthy Living and Chronic Disease Prevention, the North Okanagan Hospice Society and the Canadian Association of Psychosocial Oncology (CAPO) PRESENTER: Dr. Lynda Balneaves, Associate Professor, College of Nursing, Faculty of Health Sciences, University of Manitoba ABSTRACT:  FREE

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Participate

  • CCSN Prostate Cancer Patient, Survivor & Caregiver Survey

    All patients, survivors and caregivers who have faced or are facing prostate cancer are eligible to take this survey. The purpose of this survey is to help the prostate cancer community and the Canadian Cancer Survivor Network better understand the journey that prostate cancer patients, survivors and caregivers experience during their transition from diagnosis, through to treatment, follow-up, and survivorship.Participate Now

  • Consultation: Strict regulation of edible cannabis, extracts and topicals

    Health Canada is seeking feedback on draft regulations to minimize the public health and public safety risks posed by edible cannabis, cannabis extracts & cannabis topicals. Deadline to participate is February 20th, 2019.Participate Now

  • STUDY NOTICE – Seeking participants for a survey on peer support in cancer

    Princess Margaret Cancer Centre is conducting a study with Adolescents and Young Adults (AYA) in Canada with cancer to understand their needs and preferences for peer support and interest in using a digital app to connect with peer cancer survivors. If you were diagnosed with cancer between 15 and 39 years of age, please complete the following online 25 minute survey for a chance to win a $100 VISA Gift Card! http://bit.do/Connect4HealthParticipate Now

  • Right2Survive – Share Your Voice and Your Story

    Despite being the number one cancer killer in Canada, outcomes in lung cancer lag behind other cancers. We can do more. Lung cancer patients deserve a chance to become cancer survivors. Share your survivor story and add your name to stand with cancer survivors.Participate Now

  • Liver Cancer Survivors Physical Activity Survey

    Researchers from the University of Toronto are conducting an online study on the exercise programming preferences of adult liver cancer survivors. The online survey takes 45-60 minutes to complete. You must be 18 or older to participate. The goal of this research is to understand how we can best design physical activity programs to support liver cancer survivors. Questions? Contact 416-946-3624 or email Dr. Linda Trinh at linda.trinh@utoronto.eduParticipate Now

  • Take the All.Can Cancer Patient Survey!

    You CAN help to shape the future of cancer care! Take this short patient survey to help us gather insights on where gaps and waste occur, and how cancer care could be improved.Participate Now

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Cancer Journey Stories

The Face of Prostate Cancer: Paul’s Story

Paul Mayotte was much like most men his age, healthy, happy and ready to embrace retirement. He began the yearly check-ups with his doctor when he turned 50 and also began the PSA test (Prostate-Specific Antigen) to establish a baseline for potential prostate problems. When Mayotte turned 60 things began to change with his PSA levels and he was referred to a urologist. After a

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Memo for Pink Charities: Men Get This Disease Too – Rod Ritchie

Sitting in my doctor’s waiting room for a visit to find out the reasons for a breast lump, I recall that 50 years earlier, my mother had breast cancer. As a guy, the last thing on my mind was breast cancer. I was relieved when on this visit (and a subsequent visit), I was assured that all was well. A month later, with an obviously

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