Top News
Health Canada Announces Investments to Support Access to Drugs for Rare Diseases
The following is a press release from Health Canada Today, the Government announced a total investment of up to $1.5 billion over three years in...
Read More NewsWe are becoming concerned about Long COVID
While the drumbeat news about COVID-19 can be overwhelming, a new aspect of the pandemic is coming to light that is giving us here at the Canadian...
Read More ACT, Cancer Can't Wait, CCSN News, COVID-19Ontario Expanding Cancer Coverage for Firefighters
The following is a press release from the Government of Ontario. TORONTO — The Ontario government is working for workers by expanding cancer...
Read MoreColorectal cancer doesn’t wait, neither should you
The following is a message from Colorectal Cancer Canada March marks the beginning of Colorectal Cancer Awareness Month. Under the slogan...
Read More NewsThe Toll Cancer Takes on Your Ticker
Heart disease is often front and center this February for Heart Month, but when it comes to the most important muscle in your body, cancer survivors...
Read More NewsCORD and CCSN: A shared purpose for quick and equitable access to treatment
The Canadian Organization for Rare Disorders (CORD) and the Canadian Cancer Survivor Network (CCSN) have a shared goal when it comes to getting people...
Read More NewsImpacts of childhood cancers last long after they end
Recently in looking over the messages to the Canadian Cancer Survivor Network, we found a note written by someone asking about survivors of childhood...
Read More NewsMore Headlines
- Clinical Trials Ontario: Call for Members for the College of Lived Experience
- Canadians with cancer are asking “Where is cancer?” in the proposed health care plan announced yesterday
- Cancer Can’t Wait: Disruption to Cancer Care Still Ongoing Nearly Three Years into Pandemic
- Breathe Hope Research Group Launches Lung Cancer and Anxiety Survey
Upcoming Events
- Mar28Lymphoma Canada Upcoming Webinars
2022 ASH Update for Lymphoma & CLL Patients & Molecular & Genetic Testing for Lymphoma & CLL Patients
View Event - Mar28Rare Disease Day Conference
This event is put on by the Canadian Organization for Rare Disorders The cocktail reception is on March 28th, more details to come. CORD is offering bursaries to students, patients and patient group representatives. The scholarship is meant for those students, patients and caregivers whose own groups would not be able to cover the cost to attend in person or cover virtual registration. Travel Scholarship
View Event - Mar29European Lung Cancer Congress
Register now for the European Lung Cancer Congress, taking place in Copenhagen, Denmark, on 29 March-1 April 2023 to benefit from the most advantageous fees. This year`s congress features our LIVE Plus format for delegates, allowing in-person participants to view sessions on-demand!
View Event - Apr14Best of GU & GI Cancers Hybrid Conference 2023
This event is put on by Oncology Education. Join conference chairs; Dr. Scott Berry and Prof. Srikala Sridhar in person or virtually at the Best of GU & GI Cancers Conference on Friday, April 14, 2023. This exclusive international conference will present a summary of the most significant treatment advances in Genitourinary and Gastrointestinal malignancies presented at major international meetings in 2022 and 2023. The
View Event - Apr14IASLC 2023 World Conference on Lung Cancer
This event is put on by IASLC. The Program Committee invites you to participate in the IASLC 2023 World Conference on Lung Cancer (#WCLC23) by submitting your scientific abstract(s). Authors are asked to submit abstracts under one of the following categories: • Early Stage NSCLC • Pulmonology & Staging • Metastatic NSCLC – Local Therapy • Tumor Biology – Preclinical Biology • Patient Advocacy •
View Event
Participate
- My Symptoms Matter Survey
This survey is commissioned by Colorectal Cancer Canada. We are inviting Canadian adults (18+) who have been diagnosed with colorectal cancer (CRC) within the last 10 years to participate in our Colorectal Cancer Patient Experiences with Family Practitioners in Canada Survey. The purpose of this study is to explore the primary experiences of CRC patients with their family practitioners during their pre-diagnosis, eventual diagnosis, and post diagnosis. It should only take 15-50 minutes.Participate Now
- Evaluating Psychosocial Needs of Retinoblastoma Patients and Families
Dr. Helen Dimaras (Scientist and Director of Global Eye Health Research, The Hospital for Sick Children, Toronto) is?partnering with researchers, clinicians, and retinoblastoma patients and families to develop a study that will uncover the unmet psychosocial needs of Canadian retinoblastoma patients and families.Participate Now
- pelvic health survivorship care survey
Stéphanie Bernard, PhD, PT is investigating the needs and preferences of gynecologic cancer survivors towards pelvic health survivorship care. What is it?
- Eligible participants will be invited to answer a 25-minute secure online survey on the topic of pelvic health.
- The survey is completely anonymous.
- Individuals >18 years old who have been treated for any gynecologic cancer.
- Living in Canada (speaks English or French).
- Call for patients to join the MOHCCN Patient Working Group
This study is shared on behalf of the Terry Fox Research Institute The Patient Working Group is inviting people with cancer patient experiences to share insights and experiences in support of the Network towards the goal of precision medicine that directly benefit cancer patients. Additional information about this opportunity and participation form can be found here. If you have any questions, please contact MOH@tfri.ca. Participate Now
- Fear of Cancer Recurrence
This is a doctoral research project done by Jani Lamarche, PHD candidate in clinical psychology at the University of Ottawa. Lamarche is looking to adapt and provide a group intervention aimed at reducing fear of cancer recurrence in family caregivers of cancer survivors. To participate, email jlama023@uottawa.ca Fear of Cancer Recurrence_Recruitment Flyer
Cancer Journey Stories
Surviving Metastatic Prostate Cancer – Derek Lawrence
I first learned that I had prostate cancer from my urologist in 1995, and he told me that I actually had a very aggressive cancer. I had been to my family doctor in 1992 and 1993 for my annual checkup, which was fine; no mention was ever made to me about having a PSA blood test, but I was given a digital rectal exam. Somehow
Read MoreOut-Of-Country Cancer Treatment – Thomas Vicars
Thomas Vicars was 60-years-old when he was diagnosed with prostate cancer. His prostate-specific antigen (PSA), which had been monitored throughout his 50s, had been rising for several years. After it went up to a little over 16, a biopsy confirmed prostate cancer. Thomas began looking into treatment options and wanted to go with brachytherapy, but was turned down due to his diabetes. This left surgery
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