Click here to view the questions and responses as they come in for the 2019 Alberta and Prince Edward Island elections this April.
The tool sheds light on commonly held misconceptions about practices of the innovative pharmaceutical industry.
In this issue: Rare Disease Day, Pharmacare Interim Report, Upcoming Webinars and more!
Click here to learn how to get involved!
The CCSN webinar series is of interest to patients, survivors, family, friends, caregivers, and any member of the community interested in the best possible care and follow-up for cancer patients and survivors.
Understanding the Major Workplace Causes of Cancer in Canada Date held: April 25, 2019 Presented by: Dr. Paul Demers, Director of the Occupational Cancer Research Centre and Professor with the University of Toronto Webinar Information: Every year in Canada thousands of people are diagnosed with cancer caused by their work and millions of people continue to be exposed to workplace carcinogens. In this webinar, Dr.Read More CCSN News, News
Rare Cancers: The Time to Act is Now Date held: April 11th, 2019 Presented by: Durhane Wong-Rieger, President & CEO of Canadian Organization for Rare Disorders and Lisa Machado, Founder and Chair of the CML Network Webinar Information: Diagnostic breakthroughs like genome sequencing make earlier stage diagnosis possible and breakthroughs in personalized treatment, including cell and gene therapies, provide new hope, including potential cures. CCSNRead More
The second measles case reported in Ottawa, ON affects a 36-year old women with a rare form of cancer called peritoneal mesothelioma, which affects the abdomen. The woman contracted measles while on vacation, despite having up-to-date vaccinations for the disease. Her cancer made her immuno-compromised which raised her risk. The importance of having up-to-date vaccinations cannot be over-stated. Even those who are vaccinated may beRead More
- Breast implants associated with rare type of lymphoma
- Watch our most recent webinar! What is patient engagement at CADTH, and how can you get involved?
- Watch our most recent webinar! Cancer and Heart Disease – Where the two intersect
- Watch our most recent webinar! Anal & Colorectal Cancer
- Apr25AbbVie Community Educational Sessions (ACES) – How Facebook rallied our community (Free Seminar)
Abbvie Community Educational Sessions (ACES) would like to invite you to this second seminar of their 2019 series on April 25th, 2019. The seminar will be offered in English only: “How Facebook rallied our community” by Amy Mathias, Online Community Engagement Associate – Brain Tumour Foundation of Canada. Objectives: The rationale of why we moved from an online discussion to a Closed Facebook Support Group; How weView Event
- Sep2321st Annual World Congress of Psycho-Oncology
CAPO is pleased to announce that we will be partnering with the International Psycho-Oncology Society (IPOS) to host the 21st Annual World Congress in Banff, Canada, September 23-26, 2019. Details on the Congress are being posted on http://ipos2019.com/ as made available. Be sure to bookmark the address! If you and/or your organization/employer are interested in sponsoring the Congress, please send an email to firstname.lastname@example.org to request the sponsorship package.View Event
- Oct20Summit for Cancer Immunotherapy
Save the date! BioCanRx, Canada’s Immunotherapy Network, invites you to our 4th Annual Scientific Meeting Join us at Summit4CI in beautiful Victoria, on the coast of Vancouver Island! More than 300 leading scientists, clinicians, trainees, economists and representatives from industry, patient groups, charities and government will explore the latest progress in cancer immunotherapy from scientific, clinical, industry and patient perspectives. The Summit includes a diverse lineupView Event
- Consultation of Draft Guidance Documents: Identifying and Labelling Medicinal Ingredients, Generic Drug Equivalence: Medicinal Ingredients
Health Canada is proposing amendments to the Food and Drug Regulations that would provide greater clarity to the pharmaceutical industry on criteria for which regulatory pathway to follow when filing generic drug submissions to Health Canada. Follow the link to learn more.Participate Now
- UBC study seeks to interview those who have taken part in a trial of a prescription drug
Many trials are never published, and researchers would like to hear what trial participants think about it. Those interested in participating or finding out more information about the Inside Trials Study can contact co-Investigator Richard Morrow at email@example.com.Participate Now
- PSA tests for Ontario – Send A Letter!
The PSA test is a simple blood test that can detect prostate cancer. But Ontario doesn’t fund it. Take a few moments to show your support for funding the PSA test by contacting your MPP. Here's your opportunity to be heard. Your voice will make a difference. Participate Now
- Sleep Study in Prostate Cancer Patients
This is a survey by the University of Otago in New Zealand to determine how lifestyle (e.g., sleep hygiene, exercise), physical (e.g., weight gain, fatigue) and psychosexual (e.g., anxiety, depression, sexual activity) factors are associated with sleep disturbance in prostate cancer patients and their partners. The study is open to all prostate cancer patients regardless of location or treatment. The survey takes about 45 minutes to complete.Participate Now
- STUDY NOTICE – Seeking participants for a survey on peer support in cancer
Princess Margaret Cancer Centre is conducting a study with Adolescents and Young Adults (AYA) in Canada with cancer to understand their needs and preferences for peer support and interest in using a digital app to connect with peer cancer survivors. If you were diagnosed with cancer between 15 and 39 years of age, please complete the following online 25 minute survey for a chance to win a $100 VISA Gift Card! http://bit.do/Connect4HealthParticipate Now
- Right2Survive – Share Your Voice and Your Story
Despite being the number one cancer killer in Canada, outcomes in lung cancer lag behind other cancers. We can do more. Lung cancer patients deserve a chance to become cancer survivors. Share your survivor story and add your name to stand with cancer survivors.Participate Now
Cancer Journey Stories
Paul Mayotte was much like most men his age, healthy, happy and ready to embrace retirement. He began the yearly check-ups with his doctor when he turned 50 and also began the PSA test (Prostate-Specific Antigen) to establish a baseline for potential prostate problems. When Mayotte turned 60 things began to change with his PSA levels and he was referred to a urologist. After aRead More
Sitting in my doctor’s waiting room for a visit to find out the reasons for a breast lump, I recall that 50 years earlier, my mother had breast cancer. As a guy, the last thing on my mind was breast cancer. I was relieved when on this visit (and a subsequent visit), I was assured that all was well. A month later, with an obviouslyRead More