The tool sheds light on commonly held misconceptions about practices of the innovative pharmaceutical industry.
In this issue: Rare Disease Day, Pharmacare Interim Report, Upcoming Webinars and more!
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The CCSN webinar series is of interest to patients, survivors, family, friends, caregivers, and any member of the community interested in the best possible care and follow-up for cancer patients and survivors.
Anal & Colorectal Cancer Date held: March 21st, 2019 Presented by: Helene Hutchings, Anal Cancer – A Bum Rap Webinar Information: For Colorectal Cancer Awareness Month, CCSN welcomed back Helene Hutchings to discuss anal and colorectal cancer in this educational webinar. Helene discussed the symptoms & risk factors of these cancers, as well as treatment options that are available. She also discussed prevention of analRead More
Dr. Mary De Vera has a research grant to study one of the most common types of cancer in Canada, and personal experience of its effects to motivate her search for answers. Now all she needs is the experience of a few more colorectal cancer survivors, via an online survey. Learn more here.Read More
Watch our most recent webinar! CDIAC to CADTH: How the pan-Canadian Oncology Drug Review (pCODR) is changing to accommodate provincial cancer agency needs
CDIAC to CADTH: How the pan-Canadian Oncology Drug Review (pCODR) is changing to accommodate provincial cancer agency needs Date held: March 14th, 2019 Presented by: Gerry Jeffcott, 3Sicty Public Affairs with guest panelists Louise Binder & Martine Elias Webinar Information: This webinar was hosted by Gerry Jeffcott from 3Sixty Public Affairs. He summarized some important changes that the Canadian Agency for Drugs and Technologies inRead More
- Watch our most recent webinar! Canadian Real-world Evidence for Value of Cancer Drugs (CanREValue)
- CCSN Voices Support of Pharmacare Council Interim Report
- CCSN & Lung Cancer Canada to MPPs: Lung Cancer Patients have a Right2Survive
- New on the CCSN Blog: Get Vaccinated for Measles!
- Mar27Clinical Trials Ontario Conference 2019
Networking. Innovative. Dynamic. Conference attendees share why this conference is a must for anyone involved in Ontario’s clinical trials community. Hear from leaders in the clinical trials community See more speakers listed on the conference website, and stay tuned for more speaker announcements! Dr. Frances Shepherd Dr. Shepherd is internationally recognized for her leadership in oncology and has led more than 100 paradigm-shifting clinical trials that haveView Event
- Sep2321st Annual World Congress of Psycho-Oncology
CAPO is pleased to announce that we will be partnering with the International Psycho-Oncology Society (IPOS) to host the 21st Annual World Congress in Banff, Canada, September 23-26, 2019. Details on the Congress are being posted on http://ipos2019.com/ as made available. Be sure to bookmark the address! If you and/or your organization/employer are interested in sponsoring the Congress, please send an email to email@example.com to request the sponsorship package.View Event
- Oct20Summit for Cancer Immunotherapy
Save the date! BioCanRx, Canada’s Immunotherapy Network, invites you to our 4th Annual Scientific Meeting Join us at Summit4CI in beautiful Victoria, on the coast of Vancouver Island! More than 300 leading scientists, clinicians, trainees, economists and representatives from industry, patient groups, charities and government will explore the latest progress in cancer immunotherapy from scientific, clinical, industry and patient perspectives. The Summit includes a diverse lineupView Event
- PSA tests for Ontario – Send A Letter!
The PSA test is a simple blood test that can detect prostate cancer. But Ontario doesn’t fund it. Take a few moments to show your support for funding the PSA test by contacting your MPP. Here's your opportunity to be heard. Your voice will make a difference. Participate Now
- Sleep Study in Prostate Cancer Patients
This is a survey by the University of Otago in New Zealand to determine how lifestyle (e.g., sleep hygiene, exercise), physical (e.g., weight gain, fatigue) and psychosexual (e.g., anxiety, depression, sexual activity) factors are associated with sleep disturbance in prostate cancer patients and their partners. The study is open to all prostate cancer patients regardless of location or treatment. The survey takes about 45 minutes to complete.Participate Now
- STUDY NOTICE – Seeking participants for a survey on peer support in cancer
Princess Margaret Cancer Centre is conducting a study with Adolescents and Young Adults (AYA) in Canada with cancer to understand their needs and preferences for peer support and interest in using a digital app to connect with peer cancer survivors. If you were diagnosed with cancer between 15 and 39 years of age, please complete the following online 25 minute survey for a chance to win a $100 VISA Gift Card! http://bit.do/Connect4HealthParticipate Now
- Right2Survive – Share Your Voice and Your Story
Despite being the number one cancer killer in Canada, outcomes in lung cancer lag behind other cancers. We can do more. Lung cancer patients deserve a chance to become cancer survivors. Share your survivor story and add your name to stand with cancer survivors.Participate Now
- Liver Cancer Survivors Physical Activity Survey
Researchers from the University of Toronto are conducting an online study on the exercise programming preferences of adult liver cancer survivors. The online survey takes 45-60 minutes to complete. You must be 18 or older to participate. The goal of this research is to understand how we can best design physical activity programs to support liver cancer survivors. Questions? Contact 416-946-3624 or email Dr. Linda Trinh at firstname.lastname@example.orgParticipate Now
- Take the All.Can Cancer Patient Survey!
You CAN help to shape the future of cancer care! Take this short patient survey to help us gather insights on where gaps and waste occur, and how cancer care could be improved.Participate Now
Cancer Journey Stories
Paul Mayotte was much like most men his age, healthy, happy and ready to embrace retirement. He began the yearly check-ups with his doctor when he turned 50 and also began the PSA test (Prostate-Specific Antigen) to establish a baseline for potential prostate problems. When Mayotte turned 60 things began to change with his PSA levels and he was referred to a urologist. After aRead More
Sitting in my doctor’s waiting room for a visit to find out the reasons for a breast lump, I recall that 50 years earlier, my mother had breast cancer. As a guy, the last thing on my mind was breast cancer. I was relieved when on this visit (and a subsequent visit), I was assured that all was well. A month later, with an obviouslyRead More