International Lymphedema Groups

American Lymphedema Framework Project (ALFP) (USA)

The ALFP is an American national initiative with the purpose of developing and evaluating current and future appropriate health care services for lymphedema patients and increasing the quality of lymphedema care both in the United States and internationally.

Contact: Jane Armer, PhD, RN, Director
Email: alfp@missouri.edu

BreastCancer.org (USA)

BreastCancer.org provides a collection of online Fact Sheets which include information on signs and symptoms, risk reduction and treatments of breast cancer related lymphedema. Also included is information on how to go about day-to-day life with lymphedema.

7 East Lancaster Avenue, 3rd Floor
Ardmore, PA 19003

Cancer Treatment Centers of America (USA)

The Cancer Treatment Centers of America website provides information regarding the cause and management/treatment of lymphedema, specifically related to breast cancer.

Toll-free: 1-800-615-3055

 

International Lymphedema Framework (ILF)

The International Lymphedema Foundation’s mission is to increase awareness, knowledge and understanding of lymphedema and to promote management initiatives and better access to treatment of this condition. The website includes a number of resources providing information on lymphedema and how to manage it.

St Luke’s Crypt, Sydney Street
London SW3 6NH, UK
Tel: +44-020-7351-1411
Email: contact@lympho.org

International Society of Lymphology (ISL)

The ISL is a members-based organization that aims to share information about lymphological research and establish relations between researchers and clinicians. Membership includes access and contribution privileges to the Lymphology Journal.

P.O. Box 245200
1501 N. Campbell Avenue, Room 4406
Tucson, AZ 85724-5200 USA
Tel: 520-626-6118
Email: grace@medcenter.arizona.edu

 

Lymphedema Blog

The Lymphedema Blog is an online collection of articles written by Joachim Zuther, founder of the Department of Lymphology at the School for Physical Therapy in Ulm, Germany, and news releases on lymphedema, organized by date and category.

Lymphedema People

Lymphedema People is a collection of online forums and articles written by people affected by lymphedema.

Email: lymphedemapeople@aol.com

Lymphoedema Support Network (LSN) (UK)

The Lymphedema Support Network aims to support people with lymphedema living in the U.K. by educating them on the condition itself, through fact sheets and DVDs, and by promoting self-help management it.

St. Luke’s Crypt
Sydney Street
London SW3 6NH, UK
Tel: +44-020-7351-0990 (Administration)
Tel: +44-020-7351-4480 (information and support)
Fax: +44-020-7349-9809
Email: adminlsn@lymphoedema.freeserve.co.uk

Lymphnotes

Lymphnotes is an online forum that provides basic information on lymphedema and the different methods of treatment. It also provides links by state to registered therapists and clinics that treat lymphedema.

Lymphology Association of North America (LANA) (USA)

The Lymphology Association of North America (LANA) is a non-profit corporation comprised of healthcare professionals and it aims to promote management standards for people with lymphedema. The website is designed for healthcare professionals, such as therapists, and includes information on certification courses, seminars and events.

P.O. Box 466
Wilmette, IL 60091
Tel: 773-756-8971
Email: lana@clt-lana.org

National Lymphedema Network (NLN) (USA)

The Nation Lymphedema Network is a non-profit organization that aims to raise awareness and provide education and information pertaining to lymphedema to patients, families of patients and healthcare professionals. Its website comprises a list of FAQs, fact sheets on risk reduction of lymphedema and insurance issues (among others), and a treatment search function based on zip code.

116 New Montgomery Street, Suite 235
San Francisco, CA 94105
Tel: 415-908-3681
Toll-free: 1-800-541-3259
Fax: 415-908-3813
Email: nln@lymphnet.org

North American Vodder Association of Lymphatic Therapy (NAVALT)

NAVALT is a non-profit organization that comprises members trained in the Vodder School Manual Lymph Drainage technique. It is dedicated to promoting the acceptance of the Vodder method through education and research.

Step Up, Speak Out (USA)

Step Up, Speak Out is a not-for-profit organization dedicated to the advocacy of lymphedema and providing accurate and reliable information to breast cancer related lymphedema. Online there are several general fact sheets about lymphedema, as well as more specific information in the areas of treatment and medical insurance.

24 East Avenue
New Canaan, CT 06840
Tel: 203-972-0345
Email: info@stepup-speakout.org