CLL Patient Advocacy Group

CLL Patient Advocacy Group (CLLPAG) is a national advocacy group seeded in 2002 at an education meeting organized by Ontario CLL patients. It was formalized in 2007 at it’s first Board meeting. It continues as a volunteer driven organization of CLL patients and persons with an interest in CLL.

Our Mission Statement

Advocate and provide education to improve access to health care that will extend the lives of Canadians affected by Chronic Lymphocytic Leukemia (CLL) and Small Lymphocytic Lymphoma (SLL)

Guiding Principles

  • Healthcare for CLL/SLL must be equally accessible to all in Canada.
  • Informed patients make better decisions. Knowledge is essential for CLL/SLL patients to make the best health care choices.
  • Comprehensive diagnosis and individualized health care are the keys to effective management of this as yet incurable blood cancer.
  • Targeted therapies lead to more effective individualized health care and improve patient outcomes in terms of quality and extension of life.
  • Translational research is essential for the development new CLL/SLL treatments. Clinical trials based on this research in CLL/SLL, significantly improve patient outcomes.
  • CLLPAG does not promote individual pharmaceutical companies.
  • CLLPAG operates with transparency; we undertake to be open, honest and accountable in our relationships with everyone we work with and with each other.

Objectives

  1. Provide a patient voice in the drug approval process.
  2. Support patient education through conferences and patient tools.
  3. Disseminate information to patients and caregivers.
  4. Promote research in the field of CLL/SLL.
  5. Partner with other organizations to meet our objectives.

Website