Over a dozen breast cancer patients and survivors have already joined CCSN’s Breast Cancer Advisory Council! This committee meets by teleconference and connects regularly by email to improve diagnosis, treatment and survivorship. Breast cancer patients, survivors and family members are invited to join.
Terms of reference
The Canadian Cancer Survivor Network is a national network of patients, families, survivors, friends, community partners, funders and sponsors who have come together to take action to promote the very best standards of care, whether it be early diagnosis, timely treatment and follow-up care, support for cancer patients, or issues related to survivorship or quality of end of life care. This year and next we are prioritizing breast, prostate and lung cancers as well as metastatic cancer.
While the number of cases continues to increase for most cancers, earlier diagnosis and better treatment have resulted in a decrease in mortality. Thankfully, many more people are surviving cancer, which has led to increased need for new programs and activities to serve survivors and to ensure that they are fully re-integrated into society once treatment ends and full recovery begins.
CCSN works to connect patients, survivors and other stakeholder groups with decision makers and the wider community to engage in discussion and to act on evidence-based best practices to alleviate the medical, emotional, financial and social costs of cancer and encourage research on ways to overcome barriers to optimal cancer care for survivors in Canada.
CCSN informs and trains patients and survivors to enable them to self-advocate, speak to media and decision makers about survivorship issues, and sit at every table where decisions about cancer care and research are being made.
The Terms of Reference of the Breast Cancer Advisory Council are as follows:
The Breast Cancer Advisory Council of the Canadian Cancer Survivor Network provides expert advice to the Board and CEO. It is made up of breast cancer patients, survivors, caregivers, family members and healthcare professionals interested in working hand in hand with patients.
The main responsibilities of the Breast Cancer Advisory Council are to:
- Provide insight about their breast cancer experiences.
- Provide advice about the breast cancer section of CCSN’s website.
- Help CCSN to recruit breast cancer patients, survivors and caregivers for studies, surveys and research as well as personally participating in them.
- Speak at conferences and to media on important breast cancer issues.
- Suggest topics and speakers for CCSN educational meetings, webinars or conferences.
- Accompany CCSN Board and staff on visits to politicians and other decision makers.
- Suggest ways in which CCSN can better respond to the needs of breast cancer patients, survivors, caregivers and families.
Teleconference meetings will be held as required; all costs related to your participation in the Advisory Council will be covered by CCSN.
For more information, contact CCSN President & CEO Jackie Manthorne at firstname.lastname@example.org