2016 Webinars On Demand

The CCSN webinar series is of interest to patients, survivors, family, friends, caregivers, and any member of the community interested in the best possible care and follow-up for cancer patients and survivors.  The impact of volunteering and taking positive action to effect change are important elements in the transition to post-treatment life.

Colorectal & Anal Cancer

Date held: January 14, 2016
Presented by: Helene Hutchings, Anal Cancer – ABumRap
Topics discussed:

  • Understanding colorectal and anal cancer, including symptoms, risk factors
  • Treatment options, including chemotherapy, radiation and biologics
  • Preventing colorectal and anal cancer

Access the YouTube recording here.
Access the slides here.

Social Media for Nonprofits – What You Need to Know!

Date held: February 25, 2016
Presented by: Matt Handy, CCSN website & social media coordinator
Topics discussed:

  • Basic social media strategies for non-profit organizations
  • Defining your goals & improving your content
  • Using analytics to your advantage
  • Making use of available tools in order to expand your audience

Access the YouTube recording here.
Access the slides here.

Medical Marijuana in Canada – Has Everything Changed?

Date held: March 3, 2016
Presented by: Trina Fraser, BrazeauSeller LLP
Topics discussed:

  • An overview of the court case including the main details, the plaintiffs, and what they were seeking,
  • Analysis of the evidence presented during the proceedings,
  • What the decision means for patients and producers, and
  • Things to come for medical marijuana in Canada

Access the YouTube recording here.
Access the slides here.

The Body-Mind-Spirit Connection – Making a Difference on the Cancer Journey

Date held: March 31, 2016
Presented by: Dr. Rob Rutledge
Topics discussed:

  • Complete cancer care (conventional + complementary care)
  • How to empower the body
  • Ways to feel & think better
  • The science of the body-mind-spirit connection

Access the YouTube recording here.
Access the slides here.

CADTH – Why is it important, & what now?

Date held: May 5, 2016
Presented by: Louise Binder, Mona Forrest, Elizabeth Lye, Sabrina Hanna
Topics discussed:

  • Discussion of the CADTH Symposium
  • Recommendations for HTA improvements in Canada
  • Audience Q&A

Access the YouTube recording here.
Access the slides here.

Pharma Funding of Patient Groups – The Building Blocks of Ethical & Appropriate Relationships

Date held: May 19, 2016
Presented by: Hugh Scott, Executive Director, Strategic Alliances at Innovative Medicines Canada, Rosy Sasso, acting Director, Ethics and Compliance at Innovative Medicines Canada, Brian Huskins, the Senior Fellow of Not-For-Profit Governance at the Institute on Governance, Martine Elias, Director of Access, Advocacy & Community Relations with Myeloma Canada, Dr. Durhane Wong-Rieger, PhD, President and CEO of the Canadian Organization for Rare Disorders.

Moderator: Bill Dempster, 3Sixty Public Affairs

Topics discussed:

  • Ethics, transparency, resources, alignment and conflicts in the important relationships between companies and patient groups.

Access the YouTube recording here.
Access the slides here.

Pharmacare: Caveat Emptor (Buyer Beware)

Date held: June 2, 2016
Presented by: Louise Binder, Canadian Cancer Suvivor Network, Antonella Scali, Schizophrenia Society of Ontario, Martine Elias, Myeloma Canada
Topics discussed:

  • Takeaways from a roundtable held on June 1st about patient-centred pharmacare in Canada
  • Reports from patient groups and other subject matter experts
  • A cohesive vision and set of values for national pharmacare in Canada

Access the YouTube recording here.
Access the slides here.

Private Insurance Plans – Do They Have a Future in Canada?

Date held: June 16, 2016
Presented by: Louise Binder, Canadian Cancer Suvivor Network
Topics discussed:

  • Background to the role of private drug insurance plans in Canada
  • Impact on access of recent developments in private insurance plan programs
  • Future directions of private insurance in Canada

Access the YouTube recording here.
Access the slides here.

A pan-Canadian Pharmaceutical Alliance (pCPA) Update – Optimizing the Process for Patients

Date held: September 1, 2016
Presented by: Louise Binder, Canadian Cancer Suvivor Network; Bill Dempster, 3Sixty Public Affairs
Topics discussed:

  • Update on the fast-evolving pCPA
  • pCPA’s impact on patient access to new, innovative treatments
  • Thoughts from CCSN’s Louise Binder on how pCPA can involve patients in the decision making process

Access the YouTube recording here.
Access the slides here.

What Patients Should Know About PMPRB

Date held: October 12, 2016
Presented by: Louise Binder, Canadian Cancer Suvivor Network; Bill Dempster, 3Sixty Public Affairs
Topics discussed:

  • Basics of the role of the PMPRB
  • Legislative underpinning of the PMPRB’s mandate and history of its development
  • Update on the changes in the health policy landscape since its inception
  • Reasons for the Guideline review and consultation
  • Specific review of the questions in the consultation with comments

Access the YouTube recording here.
Access the slides here.

Q&A with Expert About Blood Clots & Cancer

Date held: October 13, 2016
Presented by: Dr. Marc Carrier, University of Ottawa
Topics discussed:

  • Signs and symptoms of blood clots, also known as venous thrombosis
  • What types of treatments are available
  • Why people living with cancer should be aware of the dangers of blood clots and what to do if they occur.

Access the YouTube recording here.
Access the slides here.

Drug Approval Bodies in Canada 101: The Elevator Length Pitch

Date held: November 2, 2016
Presented by: Louise Binder, CCSN; Antonella Scali, Schizophrenia Society of Ontario; Sabrina Hanna, Save Your Skin Foundation
Topics discussed:

  • Primer for attendees attending the November 15-16 Drug Pricing Policy Summit
  • Broad conceptual blueprint of federal and provincial/territorial public health policy structures across Canada
  • Description of legal frameworks, government responsibility centres and their mandates for treatment access, with reference to specific opportunities for patient engagement

Access the YouTube recording here.
Access the slides here.

Engaging Your Local Political Representative

Date held: November 14, 2016
Presented by: Ryan Clarke, Advocacy Solutions
Topics discussed:

  • The skills required to have effective in-person meetings with decision makers, including the development of their personal stories.
  • The step-by-step process of getting a meeting with government officials, preparing for their meeting, conducting that meeting and following-up to ensure maximum impact.
  • The pitfalls to be avoided to ensure substantive outcomes when meeting with decision makers.

Access the YouTube recording here.
Access the slides here.

Developing An Advocacy Toolkit

Date held: November 21, 2016
Presented by: Ryan Clarke, Advocacy Solutions
Topics discussed:

  • Better appreciate the importance of utilizing key advocacy tools to effect change.
  • Understand the practical development and implementation of some of those key tools, including advocacy packages, petitions, postcards and collective letters.
  • Understand the practical steps to hosting a “Day at the Legislature”, one of the most impactful advocacy tools an organization can utilize.

Access the YouTube recording here.
Access the slides here.

Precision Medicine in Oncology

Date held: November 29, 2016
Presented by: Bill Dempster and Rachael Manion, 3Sixty Public Affairs; pathologist Dr. Diana Ionescu, BC Cancer Agency; oncologist Dr. Paul Wheatley-Price, Lung Cancer Canada/Ottawa Hospital
Topics discussed:

  • Cancer care is increasingly tailored to individual patients, who can undergo genetic or biomarker testing soon after diagnosis, to determine which treatments have the best chance of shrinking or eliminating tumours.

In this webinar, Dr. Ionescu and Dr. Wheatley-Price discuss:

  • how they are using these new tests
  • how they communicate results and treatment options to patients and caregivers, and
  • how patients can be better informed on the kinds of tests that are in development or in use across Canada

Access the YouTube recording here.
Access the slides here.

Rare Cancers: How to Empower Patients and Advocacy Organizations through Collaboration

Date held: December 9, 2016

Presented by: Bill Dempster, 3Sixty Public Affairs; David Josephy, President of GIST Sarcoma Life Raft Group Canada; Martine Elias, Director of Access, Advocacy & Community Relations with Myeloma Canada; Durhane Wong-Rieger, President & CEO of the Canadian Organization for Rare Disorders (CORD)

Topics discussed:

  • what individual caregivers can do
  • how groups can work together to pool resources and share best practices and information
  • provide concrete recommendations for the broader cancer community in Canada

Access the YouTube recording here.
Access the slides here.

Medical Marijuana: Does it have a role in the treatment of cancer patients?

Date held: December 12, 2016

Dr. Paul Daeninck is an oncologist and palliative care consultant with CancerCare Manitoba and is an Assistant Professor at the University of Manitoba. He is the Chair of the Symptom Management and Palliative Care disease site group at CancerCare Manitoba and the President–elect of the Board of Directors of the Canadian Consortium for the Investigation of Cannabinoids (CCIC). He has a research and clinical interest in the use of cannabis and cannabinoids in patients with cancer and cancer-related conditions.

Topics discussed:

  • Basic facts about medical cannabis in Canada
  • The role of medical cannabis for cancer patients
  • How to access medical cannabis under the current Health Canada process

Access the YouTube recording here.
Access the slides here.