The Brain Tumour Foundation of Canada

The Brain Tumour Foundation of Canada
Address: 205 Horton St. E, Suite 203
City: London Province: Ontario Postal Code: N6B 1K7
Tel: 1-800-265-5106 Fax: 519-642-7192
Email: amathias@braintumour.ca

Website: www.braintumour.ca

How many research peer review committees do you have?

The Brain Tumour Foundation of Canada has two peer-review research committees, the Research committee, which reviews all incoming grants applications, and the Youth Education Award committee which reviews applicants for the Youth Education Awards for Brain Tumour Survivors. The Youth Education Award committee is composed of survivors, educators, and caregivers.

What kind of research funding does the Brain Tumour Foundation of Canada offer?

The Brain Tumour Foundation of Canada offers fellowships to young researchers: $100 000 over two years help them start their careers in the field of brain tumour research. Studentships provide funding over two summers, or $10 000 over two years, to help young researchers start their careers in the of brain tumour research.

Their Research Grant Program funds research proposals that involve any/or all of the following:

  • The development of new concepts.
  • Patient-oriented research such as clinical trials, epidemiological studies, quality of life studies, outcomes, health services research.
  • Pre-clinical research evaluating the therapeutic potential of recent discoveries in the basic mechanisms of either brain tumour pathogenesis or experimental therapeutics.

Fellowships, studentships, and research grants respectively have a callouts once a year during the springtime. Currently, BTFC is working with in collaboration National Brain Tumour Society in funding three research projects focusing on pediatric brain tumours.

A second partnership exists between BTFC and the Brain Tumor Funders’ Collaborative, a group comprised of five other non-profit, philanthropic and advocacy organizations from the United States. During negotiations on research proposals with the Brain Tumor Funders’ Collaborative, the chair of the Research committee, the CEO, and a volunteer from BTFC are present.

The Impact Grant is led by researcher Dr. Michael Taylor at The Hospital for Sick Children, an initiative in collaboration with Brain Canada and the Canadian Cancer Society. This $1.25 million research project is looking into childhood brain cancer research. The joint funding platform is designed to fund new research that will quickly adopt innovations and accelerate the application of new knowledge to address problems in brain cancer.

How often do the committees meet?

The committees meet intensively between March and July to decide which grant proposals will receive funding. The chair of the committee, also a member of the board, reports back to the board on their progress and updates.

How many patients, survivors, caregivers and/or family members sit on each committee?

The Research committee has both a patient and a caregiver sitting on it. As stated above, the Youth Education Award committee is comprised of survivors, educators, and caregivers.

What is the role of the patients, survivors, caregivers and/or family members who sit on each committee?

Patients, survivors, caregivers and/or family members on BTFC’s research committee have the same duties as the other members. Grant proposals are reviewed by the staff, and then copies are then made and sent out to the committee to review. Committee members present their reviews and develop a shortlist. The Research committee ranks and picks grant proposals based on their quality and short-term impact on brain cancer research.

Do patients/survivors present research proposals?

Yes, patients and survivors develop a shortlist of their own and participate fully in discussions on which grant proposals will be funded.

If yes, do they present the same number of research proposals as the other members of the committee?

Yes.

Do patients/survivors have a vote?

The Research committee uses an intensive consensus-based model to reach a decision on which grant proposals they wish to fund. The patients/survivors have the same equal say as the rest of the committee members.

How are patients/survivors who sit on research peer review committees chosen?

An interested party would apply to sit on the peer-review committee and once the application is reviewed by the staff, the terms of reference are sent out to the applicant. The application then goes out to the chair of the committee for review. If the candidate is suitable, the chair contacts them to discuss what their role and responsibilities on the Research committee would entail.

Are positions on research peer review committees open to patients/survivors who are not already involved with the organization?

Membership is open to anyone but typically individuals who are affiliated with the organization or have an interest in the Brain Tumour Foundation of Canada apply to be on the research committee.

Is there mentorship available for new incoming patients/survivors on research peer review committees?

New incoming members are paired with another committee member who acts as a mentor. Their mentor connects with them and, during the first time in reviewing proposals, provides help reviewing more challenging grant proposals.

Are there resources and materials to help orient new incoming patients/survivors in their position and on the policies and procedures of the peer review committees?

The Brain Tumour Foundation of Canada has an orientation for new peer view committee members, which goes over the terms of reference, the type of grants provided, policy and procedure, and other extraneous material.

When is the next opportunity available for patients?

Ongoing opportunities are available for patients and community members to participate on such committees.