Ontario Cancer Patient and Family Advisory Councils

Ajax, Rogue Valley Health System, Cancer Palliative Community Advisory Committee
Kingston, Cancer Care Southeast: Regional Patient and Family Advisory Council
Newmarket, Southlake Regional Health Centre, Stronach Regional Cancer Centre: Patient and Family Advisory Program
Ottawa Area, Champlain Regional Cancer Program: Patient and Family Advisory Council
Toronto Area, Sunnybrook Health Sciences Centre: Odette Cancer Centre Patient and Family Advisors
Toronto or National: Lymphoma Canada, Patient and Family Advisory Committee
Toronto, The Gerry & Nancy Pencer Brain Tumour Centre/Princess Margaret Cancer Centre: Patient & Family Advisory Committee

Ajax, Rogue Valley Health System, Cancer Palliative Community Advisory Committee

The primary purpose of the Community Advisory Group is to ensure that Rogue Valley Health System is made aware of the needs and viewpoints of the community. Advisory committees provide input and counsel to specific programs.

This cross site committee is comprised of community and staff representatives.The group meets four times a year, providing networking opportunities for the cancer care community, promoting awareness of the services in the community and identifying quality issues and educational opportunities for the service.

Membership terms will initially be 3 years, with the potential for two renewal terms.

Members must live within the Rouge Valley Health System catchment area.

If you are interested in participating on any of their current community/family advisory committees or any of the new ones, please contact David Brazeau, Director, Public Affairs and Community Relations at dbrazeau@rougevalley.ca.

For more information about the community advisory committees, please click here.

Kingston, Cancer Care Southeast: Regional Patient and Family Advisory Council

The Cancer Care Southeast Regional Patient and Family Advisory Council is a group of volunteers who bring the patient and family voice to every part of our cancer care system. Each member of the council has experienced cancer as a patient, family member or caregiver.

The council meets monthly and is consulted on all major cancer care decisions, programs and redevelopment initiatives in our region. Between meetings, members of the council are involved in many projects and activities that are helping to improve cancer care. These projects and activities include:

  • planning changes in cancer care;
  • developing educational materials for patients and families; and
  • participating in the hiring of cancer care providers.

If you would like to join the council, or if you are seeking patient and family input on an idea or project, please send them an email at: rosenm@kgh.kari.net.

For more information, click here.

Newmarket, Southlake Regional Health Centre, Stronach Regional Cancer Centre: Patient and Family Advisory Program

The Patient and Family Advisory Program works in partnership with staff and physicians as decisions are made about the delivery of healthcare services at Southlake. A Patient and Family Advisor can be anyone within the past two years who has been a patient or a family member, caregiver or chosen support person to a patient at Southlake.

Their role includes sitting on a council, committee, or working group with Southlake staff and physicians to:

  • Assist in the planning and design of programs, services, and facilities;
  • Assist in the development of various quality improvement initiatives and projects;
  • Provide input into policies, processes, and educational materials; and
  • Evaluate services provided.

Participation could be in the Corporate Patient and Family Advisory Council (PFAC), Program-level Patient and Family Advisory Councils or committees and working groups.

Hours will vary depending upon the nature of the Council, Committee, or Working Group’s mandate. In general, it is expected to be up to 4 hours a week to prepare for and/or attend meetings dependent upon the position.

To express interest, please complete the volunteer application form and return to:

Southlake Regional Health Centre
East Building, Level 1 (next to the Parking Office)
596 Davis Drive
Newmarket, ON
L3Y 2P9

For more information, please click here.

Ottawa Area, Champlain Regional Cancer Program: Patient and Family Advisory Council

The Champlain Regional Cancer Program Patient and Family Advisory Council provides a way for the staff of the Cancer Program to connect with patients and family members and share advice on delivering care. The main goal is to help support a patient and family centred care approach across the program.

Patient and Family Advisory Council members provide advice to the Cancer Program so improvements can be made to help other cancer patients and their families. This is done by taking part in regular meetings, as well as by helping out on committees and working groups.

The Patient and Family Advisory Council does not take on the cause of a specific patient or family member, or a special interest group. It also does not fundraise to support its activities or interests.

The Council is made up of patients and family members from across the Champlain Region who have had used the services of the Ottawa Hospital Cancer Program and its regional satellite partners. Meetings are supported by staff who serve as the main link. The Canadian Cancer Society also has a representative on the Patient and Family Advisory Council.

The Patient and Family Advisory Council meets 5 times per year. Meetings are usually held late in the afternoon so members who work are able to attend. Members will also be asked to help out on committees, workgroups or special projects as needed. Often members are asked for advice and input by email or phone between meetings as well.

The first step to becoming a Patient and Family Advisory Council member is to read the FAQ’s sheet.

For more information, please see the Ottawa Hospital Frequently Asked Questions (FAQ’s).

Any questions should be directed to Gwen Barton, Manager, Patient Experience at 613-737-7700, ext. 73633 Email: gwbarton@toh.on.ca.

Toronto Area, Sunnybrook Health Sciences Centre: Odette Cancer Centre Patient and Family Advisors

The role is open to all Odette Cancer Centre patients, as well as their family members and/or caregivers.

The Patient and Family Advisor will help the Odette Cancer Centre ensure that the person’s point of view in the context of the cancer experience is heard and integrated into all service and quality improvements.

Most importantly, the patient family advisors will provide the healthcare and management teams at the Odette Cancer Centre with the opportunity to further improve the patient and family experience.

Email them at OdettePatientFamilyAdvisors@sunnybrook.ca to express interest for the role and request an application.

For more information, click here.

Toronto or National: Lymphoma Canada, Patient and Family Advisory Committee

Lymphoma Canada is currently seeking people with diverse backgrounds from across Canada to join their Patient & Family Advisory Committee (PFAC). The committee will help to ensure programs are relevant and meet the needs of the lymphoma community.

Ideal candidates will have a passion for making a difference in the lives of those touched by lymphoma and a commitment to Lymphoma Canada’s mission. The committee will be made up of diverse representatives from the Canadian lymphoma patient and/or caregiver population, at least one lymphoma healthcare professional and selected Lymphoma Canada staff. The Committee will be co-chaired by a staff member and a patient.

The committee will meet up to six times per year, face to face or via teleconference. From time to time, the committee may decide to form sub-committee working groups to address specific issues or projects.

For more information or to fill out an application online, please click here.

You can also contact their office at 1-866-659-5556.

Toronto, The Gerry & Nancy Pencer Brain Tumour Centre/Princess Margaret Cancer Centre: Patient & Family Advisory Committee

The volunteers meet once a month to provide advice and feedback to the staff of the Pencer Centre. They tell what is being done right, what can be done better and what should be added in the list of programs. Committee members bring vital expertise and perspective to the centre’s activities through their experience as patients, caregivers and family members.

The Patient & Family Advisory Committee helps develop and evaluate all the supportive care and educational materials for people with brain tumours and their families.

The committee’s fundraising activities include the annual Head for a Cure 5K walk. At their annual Open House, they present a moving display that focuses on the experience of living with a brain tumour.

Contact Maureen Daniels, Chair of the Patient & Family Advisory Committee at: 416-946-2240 or Maureen.Daniels@uhn.ca.

For further information, click here.