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In this issue: CCSN Alberta All-party Cancer Caucus, Election Questions, Bill C-45 and more!
The CCSN webinar series is of interest to patients, survivors, family, friends, caregivers, and any member of the community interested in the best possible care and follow-up for cancer patients and survivors.
The Canadian Cancer Survivor Network (CCSN) thanks everyone who attended our breakfast event, It’s In You to Fight Cancer, on Parliament Hill in Ottawa on June 12, 2018. We were lucky to have Rob Oliphant, Member of Parliament (MP) for Don Valley West, host the event in the beautiful Parliamentary Dining room of Center Block. OverRead More
You CAN help to shape the future of cancer care! Take this short patient survey to help us gather insights on where gaps and waste occur, and how cancer care could be improved. Findings will inform policy discussions on improving cancer care for all. Please share your thoughts, to ensure the patient voice can beRead More
For immediate release: OTTAWA, ON – On June 4th, 2018, Ottawa Mayor Jim Watson proclaimed National Cancer Survivors Month in recognition of over one million cancer survivors living in Canada today. This proclamation took place at City Hall in the presence of representatives of the Canadian Cancer Survivor Network. The co-chairman of Prostate Cancer CanadaRead More
- Jun28CCSN Free Webinar: Staying Mindfully Connected and Experiencing Intimacy after a Cancer Diagnosis
Register for CCSN’s next free webinar! Date: June 28th, 2018 Time: 1:00pm – 2:00pm ET Staying Mindfully Connected and Experiencing Intimacy after a Cancer Diagnosis CCSN is delighted to welcome our presenter, Gabriela Ilie. Gabriela is a recognized quality of life scientist and professor in Nova Scotia and Ontario with international recognition for her researchView Event
- Sep232018 Bladder Cancer Canada Awareness Walk
Last September (2017), Bladder Cancer Canada hosted the 9th Annual Bladder Cancer Canada Awareness Walk. The walk took place in 19 communities across Canada, and was a great success! Together we raised just over $600,000. This is quite an accomplishment! We are sincerely grateful to all volunteers, walk participants and donors who help usView Event
- Oct01World Cancer Congress
The World Cancer Congress (WCC) encourages effective knowledge transfer and best practices exchange amongst +3000 global cancer control and health experts. Held in Kuala Lumpur, Mylasia in 2018, the 4-day event is a beacon for cancer research across the world. Registration starts at $800, and increases in price after June 29, 2018.View Event
- Take the All.Can Cancer Patient Survey!
You CAN help to shape the future of cancer care! Take this short patient survey to help us gather insights on where gaps and waste occur, and how cancer care could be improved. Findings will inform policy discussions on improving cancer care for all. Please share your thoughts, to ensure the patient voice can be at the heart of cancer care.Participate Now
- CAPT 2018 annual conference Call for Abstracts
The online abstract submission for the 2018 CAPT conference is now open at: https://www.capt-actp.com/abstracts/submit-abstract/ Open May 1 – July 21, 2018 midnight EST Why Submit to CAPT 2018? CAPT is the only national association of its kind committed to fostering balanced and on-going dialogue and networking amongst practitioners, researchers, policy makers and therapeutic product producers. This meeting in Toronto will serve as an important platform to disseminate new research and analysis. Selected submissions will present their work either as an oral or poster presentation, and will also be published in the Journal of Population Therapeutics & Clinical Pharmacology. Please see the attached guidelines for abstract submission. We invite you to submit an abstract online at https://www.capt-actp.com/abstracts/submit-abstract/ . The deadline is June 30, 2018 (midnight EST). Authors of accepted abstracts will be notified mid-August 2018.
- The patient perspective: CMA Patient Voice call for nominations now open
At the CMA, we truly appreciate you lending your support to the Demand a Plan campaign. Ensuring a patient perspective is included in all our campaigns and strategies is a huge priority for us. That’s why we’re so excited to launch an open call for our new CMA Patient Voice engagement group. The goal of the CMA Patient Voice is to bring an informed patient perspective to the CMA’s work, and to highlight emerging issues that matter to patients and the public. We’re looking for 12 engaged patient representatives from across Canada to join us. Are you interested in being a part of these conversations and influencing the future of the CMA? Do you know someone in your community who would be a vibrant addition to the CMA Patient Voice? Please encourage them to visit cma.ca/patientvoice for more information, including the terms of reference, FAQs, and the code of conduct. Deadline to apply is July 13, 2018.Participate Now
- CMA is seeking nominations for its new Patient Voice engagement group
The Canadian Medical Association (CMA) is looking for individuals interested in providing their insights and sharing their health care experiences. Through its new initiative — called the CMA Patient Voice — the CMA is looking to engage patients in its advocacy and policy work. The CMA Patient Voice will be composed of 12 patient representatives from across the country plus two CMA Board members, and will be contributing to the CMA's advocacy to foster a healthy population. The CMA Patient Voice is a key component of the CMA's 2020 Strategic Plan, which includes the objective of consistently bringing a patient perspective to the work of the association. Interested individuals must have knowledge and experience as a patient — or as a family member of one — in Canada. "Connecting with patients is part of a physician's daily life. At the CMA, we're committed to engaging with patients through initiatives such as Demand a Plan. With the CMA Patient Voice, we're looking to take this engagement to the next level," says Dr. Laurent Marcoux, CMA president. Nominations will be accepted until July 13, 2018. For more information, please visit cma.ca/patientvoice. The Canadian Medical Association unites 85,000 physicians and physicians-in-training on national health and medical matters. Formed inQuebec City in 1867, the CMA's rich history of advocacy led to some ofCanada's most important health policy changes. As we look to the future, the CMA will focus on advocating for a healthy population and a vibrant profession.Participate Now
- Share Your Experience: Take our Canadian Liver Cancer Patient & Caregiver Survey
Are you a patient, caregiver, or family member/friend affected by liver cancer & living in Canada? Please take a moment to complete our Canadian liver cancer patient & caregiver survey. The purpose of this short survey is to help the Canadian Cancer Survivor Network (CCSN) better understand the issues that patients and non-patients face with primary liver cancer diagnosis and treatment. By participating in this survey, you will be helping CCSN to shape messages for its upcoming advocacy efforts aimed at improving the lives of liver cancer patients, with the goal of furthering treatments and removing stigma. Liver cancer is stigmatized, and Canada is huge. It can be difficult to reach the patients who need our help the most, and our goal is to get this message to as many people as we can. You too can help increase liver cancer advocacy in Canada by sharing this survey with those you know. Thank you!Participate Now
- Share Your Thoughts: Help KCA Uncover Unmet Needs In Kidney Cancer/RCC
The Kidney Cancer Association (KCA) would like to learn more about your experience after undergoing surgery for kidney cancer/renal cell carcinoma (RCC) in order to uncover unmet needs in education, resources and treatment.
In an effort to better assess the current knowledge level surrounding what adjuvant therapy is and how it could play a role for RCC patients who are at high risk of recurrence, we have partnered with CancerCare, Pfizer, Inc. and Kelton, a leading international research firm, to conduct this survey among people who were diagnosed with kidney cancer/RCC and had recent surgery to treat their cancer within the past 6 months to 2 years. The survey takes about 10 to 12 minutes to complete. To access the survey please click on the following link or type the URL in the address bar of your web browser and press “enter:” http://v2.decipherinc.com/survey/selfserve/bb6/180200
If you have any questions, concerns, or problems with the survey, please click here.
KCA, Pfizer, Inc. and Kelton greatly appreciate your help and opinions as your insight will guide the development of educational tools and resources for the RCC community. We value your privacy and pledge never to share your information.
Thank you in advance for your time and participation.Participate Now
Cancer Journey Stories
This is a tale of a lengthy medical journey full of surprises. **Disclaimer: images of a tumour are shown below. It was May 11, 2016, the day before my birthday. I was explaining to my family doctor about this pain radiating along my lower abdominal area. Since I already had an existing umbilical hernia, IRead More
I have got to be the luckiest guy alive – because I am still alive. It started when I broke my ribs. That “lucky break” led to an X-Ray, which is how the spot on my lungs was discovered. If I had not gotten tested until I had symptoms, it might well have been tooRead More